Latest messages for CancerCompass discussion http://www.cancercompass.com/message-board/message/all,36498,0.htm Mon, 23 Nov 2009 00:00:00 GMT Mon, 23 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Grammie27Not sure if you looked into the clinical trials but thought I would point it out to you.http://clinicaltrials.gov/ct2/results?term=NK-cell+leukemiaGod BlessDamonDX Nov 07 AO Grade 3 Heritage_Softail Mon, 25 May 2009 00:00:00 GMT I was diagnosed with aggressive natural killer cell (LGL) leukemia 6 years ago.  My prognosis at that time was less than 2 months.  However, I was considered to have undergone a spontaneous (and extremely rare)remission weeks after the diagnosis and have been essentially asymptomatic since that time.  I am now considered to have a chronic form of NK cell leukemia.This is a rare leukemia, and I have found no one else with this illness and limited information. Within the past 3 months, my counts and markers have begun to change.Is there anyone else who has dealt with this leukemia and can provide guidance as I am now facing decisions regarding treatment, etc.  My current oncologist leaves much to be desired.  So I am also searching for a new doctor.   Grammie27 Mon, 25 May 2009 00:00:00 GMT