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Post Treatment All: Side Effects

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Subject: Post Treatment All: Side Effects
Date: 12/05/2005
Darren,

My husband is in remission from ALL. He was diagnosed 6/03 at age 36. Did not have a BMT.
Looking over your treatment plan, it looks pretty much the same as his.
He just finished his 2 years of chemo on 11/09/05.
He went through all the hideous treatments like a champ (induction, consolidation and maintenance therapy) In the last 8 months, he developed acne breakouts 1x per month, right after his monthly Vincristine injection. The Prednisone would clear it right up. It is like a Shingles outbreak. He takes antibiotics for that. The breakouts are like clockwork. Hopefully,that will subside soon.
We have just been celebrating the completion of his chemo the last few weeks, trying not to hold our breath. Paranoia tends to creep up with each headache, sneeze, flea bite etc!!
However, in the last few days he has been complaining of a tender and sensitive feeling in his lower right hip at the small of his back. I placed a call to his Dr to run it by her.
Did you have any post treatment aches and pains?
Do you still have the dry mouth?

Congratulations on your health.

Beth
Subject: Darren...are You There? All Please Read
Date: 08/01/2006
My husband was diagnosed with ALL at 35 (see previous posts) and I have not posted in a long time.

He went through ALL treatment for 2 years and finished in Nov 05. Ever since his treatment was over, his white's have been slightly elevated. The Dr. wanted to wait for a few months to see if they came down..she thought it could be an accumlative effect from the prednison etc.

Last week she decided to do some extensive blood work...the results came back with the marker of CML (aka the Philidelphia chromosome). He has had CML the ENTIRE time and we had no idea. God only knows how this went undetected for 3 years of biopsies etc.

The ALL was actually a secondary off shoot of the CML know as a 'blast'. So, here we go again. We are scheduling consults with Dr's at MD Anderson in Texas as well as Fred Hutchinson in Seattle. He was just put on Gleevec, so we will wait to see how that works. From my research, the only true cure is a BMT...any feedback from anyone would be greatly appreciated. We are terrified, but in war-business mode this time.

Beth
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