temodal+xeloda

Hello, to all members, I have one question. First, my name is Milena, 30 years old, from Croatia, Europe. My sister is stage 4 pc, with liver mets, and her therapy is temozolamide or temodal+xeloda. My question is did someone of you here had such therapy? Please, all kinds of information will be a  appreciated. Sorry for my english, it is not very good. Thank you, and good luck you all...

We recieved Gemzar, tarceva, 5FU and oxialplatin.  Look wup the National comprehensive cancer network, clinical practical guidelines for direction.  I don't know those chemos.

 

On 6/1/2009 mylena wrote:

Hello, to all members, I have one question. First, my name is Milena, 30 years old, from Croatia, Europe. My sister is stage 4 pc, with liver mets, and her therapy is temozolamide or temodal+xeloda. My question is did someone of you here had such therapy? Please, all kinds of information will be a  appreciated. Sorry for my english, it is not very good. Thank you, and good luck you all...

Hi Milena....I have a neuroendocrine panc. tumor, believe stage 2 with no mets so far. My chemo is xeloda and temodar, 2 weeks on, 2 weeks off for 3 months, then Ct scan. Been doing this for 5 months and latest scan shows 20% shrinkage. Fortunately, I feel good and am doing normal things with no pain or symptoms so far. Hope this information is helpful.

Hi, Brock, I can't believe I finally found someone that have the same thing like my sister, and takes same medications. My sister is also fine, she leads normal life,takes her therapy and it is ok. We all hope for the best, I think positive thinking is the most important thing. I  wish You all the best, be positive, and believe, then everything is going to be fine...I pray for You

First your English is very good.  Yes I have been on the Xeloda Temodal treatment.   I had a pancreatic tumor located in the head of my pancreas in February of 2007, had not post operative treatment and 16 months latter had 4 new tumors, 2 in the liver, 1 near the aorta and the other in the pancreatic bed where 1/2 of my pancreas had been located.  I went on the combination chemo program prescribed by a Dr. Larry Kvols of the Moffitt Cancer and Research Center in Tampa Florida, USA.  He is one of the worlds leaders in neuro endocrine cancer.  Within 2 cycles or 45 days I had a cat scan and both tumors were gone in the liver and the other two which were 2-3 cm had been reduced to 1-2 mm.  According to all of the doctors I had an outstanding response to the treatment.  3 months after finishing the treatment the tumors returned.  I had the one in the pancreatic bed radiated and have started on the combination treatment again.  No real problems from the radiation and the combination of Xeloda/Temodal for me had posed no real side affects other than at times in the afternoon I would tire and had some slight problem with peeling of the skin on my feet which is normal.  I have been on the chemo for 5 days know and am doing fine.  Hope that gives you some information.  If you need anything else contact me @ --Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html--my name is Douglas M. also I have a very rare type of pancreatic cancer called mixed acinar endocrine which is so rare that there are less than 20 cases recorded in medical journals.  Good Luck !!!!!!!!!!