Tcell - ProLymphocytic Leukemia

Hello

I was hoping to make contact with someone who has been diagnosed with Tcell Prolymphocytic Leukemia for peer support.

Looking forward to hearing from someone.

Happy trails

Brandy in Ontario, Canada 

On 6/5/2009 Brandy in Hamilton wrote:

Hello

I was hoping to make contact with someone who has been diagnosed with Tcell Prolymphocytic Leukemia for peer support.

Looking forward to hearing from someone.

Happy trails

Brandy in Ontario, Canada 

 

Hi Brandy, I'm happy to provide some support while I'm able to. My husband was diagnosed with T-PLL 12 months ago. Apart from Campath induced CMV in January he's doing quite well. He has had to stop Campath again due to low bloods. He'll have another bone marrow biopsy in six weeks. So fingers crossed. I'm sending you lots of good blessings from this side of the world. Let me know how I can help :)

HI Brandy,

My husband has T-PLL, was diagnosed in December of
2007, started on sub-q Campath first week of October of 2008. He was told he was officailly in remission first week of March of this year. He is now
on a maintenance program with continuing Campath gradually decreasing
the dosage. He will undergo a bone marrow transplant sometime later
this year.Right now he feels well but we are still cautious about crowds and exposure to anyone who has a cold or any type of infection. 

I would be glad to share our experiences and be part of your support.There are so few cases of this disease it is helpful to find those to connect with.

We are just across the border from you and have close friends in Hamilton. Looking forward to hearing back from you and maybe even meeting some day?

Blessing and hugs being sent to you...

Shirley