HI,
I have become extremely frustrated with my inability to swallow. Since December, I have lost almost 40 pounds-my normal weight is 177-180 and I weigh in about 140-144 each day. I did get a pump to distribute my formula and yesterday got up to 6 cans (where I am supposed to be). Today is more difficult and I have so far managed 4 cans and it is 8PM. I had a visit from the speech pathologist and was given an excercise to try to learn to swallow again. It is the most difficult and fleeting thing I have ever had to do. I was wondering if anyone out there is having the same issue or has figured out how to learn to swallow on their own. I know if I can swallow, I can get my weight back, but it is not coming. The formula is Osmolite 1.5 cal. I can ask for more concentrated formula, but it isn't going to help me swallow those pancakes that I desperately want to eat! I I start radiation and chemo next week, even with the weight loss and it is just going to get worse. I can deal with the pain from all the sites from surgery and rehab my own wrist no problem, but I hope somebody can please help with some real world results. I also have a ton of mucous that interferes with swallowing and sometimes breathing. I have severe COPD and have had my colon removed since 1993. I am 58 this November. Any help is greatly appreciated.
Steve