One patient with glioblastoma still alive nine years later
by kathyjo on Sun Jun 07, 2009 12:00 AM
by Paula777 on Sun Jun 07, 2009 12:00 AM
From what I've read -- medical literature on cachexia -- it remains a poorly understood metabolic disorder brought on by cancer metabolism and likely alterations in patients' brain chemistry.
Cachexia is also bit more complicated than the patient simply just lacking appetite. For example, my husband has Stage IV colon cancer, is currently NED and, as of last week, his CEA rate remains stable at only point 3 (an enviable CEA rate by the way ).
But he still lacks appetite and has now lost weight, but from what the doctor can determine it's mostly because (as written in a previous post on probiotics and digestive aids) his digestive system is out of whack. That, plus the chemotherapy has dampened his appetite (he regains a healthy appetite a day or two before his next drip is due). So, perhaps you're not dealing with cachexia after all? Maybe it is simply lack of appetite at this point. As for life expectancy -- his original set of doctors gave my husband the prognosis of three to six months. This is before he was assigned an oncologist. Now his oncologist (who is the true expert) is guardedly pleased with his progress and is cautiously optimistic that he's Stage IV cancer can be "controlled" for a long time -- much longer than the original 3-6 months. In short, it's up to God and my husband and his reaction to the various chemo regimines, how long he lasts, and as such, it would be imprudent to say what one's life expectancy would be (with or without cachexia involved). Remember, cancer patients are not statistics and many stage IV cancer patients do manage to rebound after some of the most onerous of health challenges (my cousin, being one such long term survivor of stage IV rectal cancer, was at his lowest weight about 120 lbs; today, he's 200 lbs).
by barbrob on Mon Jun 08, 2009 12:00 AM
Regarding your message, it all depends on the person and how they handle thier lives, have to be positive, and be strong, and have a good diet, You can live a long life with stage 1V cancer... some are still alive 17 yrs on ... your have to have the will to fight and never give in to this awful disease. Side effects again they are so different for each person, but there is so much stuff you can take now to help with any side effects....
BEST WISHES BARB
by Paula777 on Tue Jun 09, 2009 12:00 AM
It's me again... and I stumbled across this article that quickly and lucidly explains the process of cachexia. Again, it's a complex process. This article also discusses the role of Glutamine and Fish Oil (not cheap, but super variety) that helps negate the effects of catabolic wasting (i.e., cachexia).
Good luck! Our prayers are with you.
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If you were considering traveling for cancer treatment, which headline would you find more interesting?
Destination: HOPE. Cancer care that is worth the trip.
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