things we've learned

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things we've learned

by zookmax on Sun Jun 07, 2009 12:00 AM

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My fiance is 51, stage IV and declining.  I wish he had gotten the celiac plexus block for pain so we could have had better quality time and maybe he would have eaten more.  Maybe we should have gotten a feeding tube early on, or started with appetite stimulas sooner.  I feel like I have learned alot and I wish I could have more knowledge earlier. 

 

RE: things we've learned

by confusedtoo on Sun Jun 07, 2009 12:00 AM

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Like me and many more to come,the thoughts of,if only or what if,creep into our minds almost daily. I have been my wifes caretaker for 1 year and counting. I reflect back on things and question myself,only to come to the conclusion that i did the best I could at that time! Just this past week,while talking with a pastor friend,i realized that my wife and I are closer now than ever. Having to be around her 24/7 can sometimes get hectic,but looking back, I have gotten to know her in ways that I didnt before,we have been married 19 years. I hope to encourage you to let go of the things you cant go back and change,take extra precaution now and research EVERYTHING. KEEP UP THE FIGHT!!! God does have a plan.

RE: things we've learned

by The_Wife on Mon Jun 08, 2009 12:00 AM

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We all do the best we can with the information we have at the time. We want to believe that we can control most situations but this is one we cannot control. Be assured that you helped someone today by telling what you would have done differently. Someone on this board will learn from that.

RE: things we've learned

by BCinOntario on Mon Jun 08, 2009 12:00 AM

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Excellent responses above! My heart goes out to you at this time zookmax as this must be very hard on you. I have experienced some of the same regrets during and after my mother's battle with PC earlier this year which she unfortunately lost, but working to let go of this and remember that I did my best with what I knew at the time. Some days are better than others.

I wish you and your husband peace and strength through this time and hope you have some good days ahead. When the time comes, hospice can help in making your husband comfortable if you are not already setup with them. God bless you both.

RE: things we've learned

by zookmax on Mon Jun 08, 2009 12:00 AM

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Thank you for responding.  This site makes me know I'm not alone.

RE: things we've learned

by lt65736 on Tue Jun 09, 2009 12:00 AM

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My dad just got diagnosed with Stage IV pancreatic cancer. They are
telling him surgery is not an option. I am not satisfied with taking no
as an answer. Any one have any advice? We are open to absolutely any
ideas, references, ANYTHING!

I have been reading a lot about dendrite stem cell therapy. Anyone know anything about this?

Also,
if anyone has any advice for making this as comfortable as possible...
from food/nutrition to pain to ways of staying positive... 

Thanks in advance to anyone who responds.

RE: things we've learned

by HNutritionTherapist on Tue Jun 09, 2009 12:00 AM

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My heart goes out to the caretakers, especially those who have to deal with cancer cachexia. I'm finding that a lot of cancer patients and families are not fully educated on how cancer changes someone's metabolism. In advanced cancer, because of the physiological changes that solid mass tumors cause, there is no evidence to suggest that aggressive nutrition support - i.e. tube feedings and IV nutrition improve morbidity (how sick someone is) or mortality (how long they might live)- in fact in some cases aggressive therapy may shorten someone's time. I think that it is important that caregivers of advanced cancer patients understand that the way in which the body uses nourishment is not something we have learned to control and if we can't change it - it would be better to let that stress go. I have seen families at each others' throats because their loved one can't eat and the caregivers think that this must mean that he/she has given up, he/she hasn't given up... the cancer is supressing the appetite and using what he/she does it for fuel... the cancer, in the advanced state, gets 'first dibs' on food.

My advice is to focus on alleviating any suffering and connecting emotionally with your loved ones and eliminating needless worries. Sorry for rambling, but I think this is an area where burdens need to be lifted.

RE: things we've learned

by Ellen_Marie on Wed Jun 17, 2009 12:00 AM

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My husband was diagnosed with pancreatic cancer and given 3 months to live. Then we got a 2nd opinion at UW in Seattle and were sent to  Dr.Sam Whiting, a researcher and oncologist at Fred Hutchinson Cancer Center. He recommended PRRT (peptide receptor radionuclide therapy) which is done at the University Hospital in Basel, Switzerland. (not yet FDA approved here in the USA). Chemo did NOT work but PRRT did and now my husband is cancer free...even the liver mets are gone.

Ask your oncologist about this life-saving treatment. (PS Blue Cross paid)

Hope this info helps save a life

Ellen 

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