We are looking for any other Retinal blastoma childhood survivors ( would be in your 50's now) that had high doses or radiation as an infant and have developed Sarcoma as an adult. My sister is desperate to find others who have developed this as a result of radiation. Also anyone that has Uterine Carcinosarcoma please help we need information on treatment and what others are doing. Currently taking Cisplatin weekly and daily radiation.
My sister is totally blind so I am writing and looking for others like us.
thanks you,
Elaine