GRANULOSA CELL TUMOR

I am 49 years old. February 2009 I had a total hysterectomy, oopharectomy and a granulosa cell tumor removed.  It was the size of a small football. The surgeon did a belly wash.  The tumor came back stage 1. She said if I was going to have ovarian cancer it was the best to have. I am now having inhibin levels drawn every 6 months. She does not think I will have any more problems.

She stated just do not be complacent about it. To get my regular screenings. It is a scary thing. You wonder what is growing inside of you.  My pcp says oh it looks like it was benign. But isn't stage 1 still considered cancerous. Should I be under the care of a gyn oncologist?  Looking for answers

st

Find an informed gyn/onc immediately. Also, go to "google alert' and you can request the latest info on Gct. You need to do a lot more research and be your own advocate. Most women are told the same things you have been told by their physicians. It is more serious than what you have been told. I am sorry for the news., however there is a chance it will never return again or so many years from now that it won't matter much and may only require another surgery. May you never hear from this unique tumor ever again.

 

On 6/16/2009 michelle58 wrote:

Find an informed gyn/onc immediately. Also, go to "google alert' and you can request the latest info on Gct. You need to do a lot more research and be your own advocate. Most women are told the same things you have been told by their physicians. It is more serious than what you have been told. I am sorry for the news., however there is a chance it will never return again or so many years from now that it won't matter much and may only require another surgery. May you never hear from this unique tumor ever again.

 

I hope I never hear from this unique tumor ever again. Thank you for the information. I have already done a lot of research on this tumor and that is

why I am so worried. glynis

On 6/15/2009 worriedwifeandmom wrote:

I am 49 years old. February 2009 I had a total hysterectomy, oopharectomy and a granulosa cell tumor removed.  It was the size of a small football. The surgeon did a belly wash.  The tumor came back stage 1. She said if I was going to have ovarian cancer it was the best to have. I am now having inhibin levels drawn every 6 months. She does not think I will have any more problems.

She stated just do not be complacent about it. To get my regular screenings. It is a scary thing. You wonder what is growing inside of you.  My pcp says oh it looks like it was benign. But isn't stage 1 still considered cancerous. Should I be under the care of a gyn oncologist?  Looking for answers

st

I am a 7 year survivor of granulosa cell ovarian cancer. I had the same surgery as you except I also had my omentum removed. I was stage 1a or 1c. There was an issue in the washings, so they weren't sure. For the first 5 years, I visited my gyn-oncologist every 6 months. I had a pelvic, pap, and an Inhibin A & B blood test drawn. The last 2 years, it was 1 x per year. Now, I'm considered good to go. I'm a RN and realize cancer doesn't play by any rules. . .My best advice to you is to listen to your body. If you feel something isn't right, don't give up looking for help until you find someone who will get the answer. Your chances are excellent for a long life. God bless.

I went 13 years between reocurance I don't think we are every good to go