up-date neuroendocrine

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up-date neuroendocrine

by kzfamily on Wed Jun 17, 2009 12:00 AM

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It has been a while since I posted an up-date on my husband's condition. He was diagnosed with IIIB neuroendocrine lung cancer in November.  He is only 42.  He has had 6 rounds of chemo and 37 radiation treatments. The chemo worked at first but after 4 treatments the tumors started to grow again.  It has been 4 weeks since his last radiation treatment.  Monday we saw the doctor and found out that the radiation slowed the growth of some of the tumors however, others grow and now he has another tumor right outside the heart.  So we are up to 6 tumors maybe 7.  They still are not sure about the adrenal gland.

Now the doctor is telling him that there is a study for a new chemo treatment.  She said there is a 20% change of slowing the growth of the tumors to give him maybe a couple more months.  He jumped at the idea.  I on the other hand am opposed to it.  I explained my reasons to him and told him that I will support his decision and be there for him all the way.

I don't want him to do the treatment because I want my husband to have some quality of life.  This past week has been the best that he has been since October when all this started. I don't want him to have to suffer through the side effects of the chemo until the cancer takes over. Which is what she said will happen. Then he has to deal with that.  I want him to be able to enjoy life the most he can while he can. I also want my children to be able to enjoy some time with their father not being sick.  I understand his desire to live as long as he can no matter what but he has suffered enough.  All I want is for him to have a break from the sickness even if it is just a couple of weeks.

I've tried to get him to talk to someone other then myself.  Someone who is trained to help him get through this but he doesn't want to.  He is afraid and I don't know how to help him.  Any suggestions are appreciated. 

Kzfamily

 

  

RE: up-date neuroendocrine

by Chessie on Wed Jun 17, 2009 12:00 AM

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What new treatment are they recommending and is it part of a clinical trial?

RE: up-date neuroendocrine

by CancerStrike2 on Thu Jun 18, 2009 12:00 AM

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Hello,

 

You can go to caring.com to post your question for professional responses.  Also, search for things you need to know before chemo article, you will glad you prep this journey well for both of you.  There are many side effects could b very much preventive from the start but the doctors sometimes dont know and dont prepare their patients well at all from the start and at the end, we patients/caregiver are suffering for their errors / mishaps / misjudgement. 

Pls make sure have immunotheraphy / nourish the patient body well to fight too.

Better do your homework prior and pls fight, dont give up, cancer dont rest and you should not take too much time off to treat it. 

Victoria

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