CA125

I have now survived ovarian cancer and reoccurence 2007, 2008, 2009; 80% of the people diagnosed with ovarian cancer have a high CA 125 - so there are some false/positive results - would it not be worth it to have this test done annually and to follow close surveliance for those showing positive - we still have those who do not show anything that will have ovarian cancer but maybe we can catch a few more cases - this also happens to mamograms but no one is saying don't do it. 

 I was under the care of an oncologist for 7 years following breast cancer/non Hodgkins simultaneously and was not given a CA125 - PET scan showed abdominal fluid - discovered I was Stage IIIc - Previously I had asked my gyn to please sonogram my oaries as they hurt - she said well based on your history, I guess we could do it...but PET scan diagnosis came before GYN had scheduled test.

Had the worse chemo for ovarian - IP - port in stomach and one in chest - went through hell only to have it return within 6 month period.

My CA125 has been an excellent tumor marker for my disease.

Now using cottage cheese & flaxseed oil daily to slow growth of cancer.  The cottage cheese is the protein vehicle that carries  the flax seed oil to the cancer and helps breakdown the cancer cell so that it once again uses oxygen instead of sugar..

 Thanks 

On 6/18/2009 ptjosie wrote:

I have now survived ovarian cancer and reoccurence 2007, 2008, 2009; 80% of the people diagnosed with ovarian cancer have a high CA 125 - so there are some false/positive results - would it not be worth it to have this test done annually and to follow close surveliance for those showing positive - we still have those who do not show anything that will have ovarian cancer but maybe we can catch a few more cases - this also happens to mamograms but no one is saying don't do it. 

 I was under the care of an oncologist for 7 years following breast cancer/non Hodgkins simultaneously and was not given a CA125 - PET scan showed abdominal fluid - discovered I was Stage IIIc - Previously I had asked my gyn to please sonogram my oaries as they hurt - she said well based on your history, I guess we could do it...but PET scan diagnosis came before GYN had scheduled test.

Had the worse chemo for ovarian - IP - port in stomach and one in chest - went through hell only to have it return within 6 month period.

My CA125 has been an excellent tumor marker for my disease.

Now using cottage cheese & flaxseed oil daily to slow growth of cancer.  The cottage cheese is the protein vehicle that carries  the flax seed oil to the cancer and helps breakdown the cancer cell so that it once again uses oxygen instead of sugar..

 Thanks 

 

 

I'm really sorry you had such a bad time with the IP chemo....  and sometimes I wonder if the treatment isn't worse than the disease, but not sure what the answer is......  I do know I want to beat this monster... probably won't, but not ready to give up yet...gonna give it my best shot

You are right about the CA125 blood test, I went to my ob/ gyn in Oct 2006, I specifically asked for the blood test, but he refused to do it..  said too many people were getting false positives, needless to say 3 months later (Jan 07) I was diagnosed with OC stage 3C,,,,   I can't help but wonder where the disease might've been in Oct, and if maybe it could've been caught at an earlier stage...  my advice to anyone who feels a need to do the CA125, don't let the doc talk you out of it...  the ca125 has been a good marker for me and my disease too..  if a positive comes up, you can have numerous tests to rule out OC, but not much to do if it's positive and you do have Ovarian Cancer but hope for the best

good luck to you....  keep figting the battles...