Latest messages for CancerCompass discussion http://www.cancercompass.com/message-board/message/all,37293,0.htm Mon, 23 Nov 2009 00:00:00 GMT Mon, 23 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My name is Louis, I have been recently dx'd with AS also. Let's keep in touch, through this blog and prayers. lmwils1017 Fri, 13 Nov 2009 00:00:00 GMT I am so sorry for your pain and his. You are in my prayers. Please post an update when you can. I have been recently diagnosed with AS; just beginning this dark journey. lmwils1017 Fri, 13 Nov 2009 00:00:00 GMT My brother was diagnosed in June 2009.  What have your treatments been and how are you doing?  It is a frustrating cancer since all the oncologists don't seem to know much about it.  kelee422 Wed, 04 Nov 2009 00:00:00 GMT I was recently diagnosied with angiosarcoma and found out that this type of cancer is rare. I will pray for your husband and what type of chemo is he doing? volfan Tue, 29 Sep 2009 00:00:00 GMT My ex-husband and father of 2 of my children (little girls 6 & 8)  was diagnosed with Angiosarcoma in August of 2004.  At that time I did a  lot of research and found that if he survived it would be a miracle.  I found that it is often caused by exposure to Vinyl Chloride which is used in a lot of manufacturing processes.  It is rare and the survival rate is not the best.  He fortunately went into remission for 3 1/2 years which was great.  At that time our daughters did not really notice anything was going on because they were 1 and 3.  However he recently found out that it has returned with a vengance.  He went in for what he thought was hernia surgery and found out that it was swollen lymphnoids.  After getting fully checked out, they discovered that he has 3 tumors this time instead of 1 and that the tumors will be more difficult to remove.  They got a portion of the one but the other 2 they have decided to see what effect chemo and radiation have on them before attempting to remove them.  We are at a loss for the words to tell our daughters.  The outcome looks bleak at this point.  He lost a lot of weight this time and his hair started falling out yesterday when I dropped my girls off to see him.  He can't see them as often due to the aggressive chemotherapy and how much it wipes him out. I am so afraid that they might lose him.  Anyone who reads this please pray for him and anyone else that may have any type of cancer. monkeyz Thu, 18 Jun 2009 00:00:00 GMT