what is aptullary cancer

My good friend had the whipple procudure done and now they have told us he has aptullary cancer. There is not a hole lot of information about this cancer. I was hoping that some one could PLEASE help me out with a little info. They have told us that it is a rare cancer and that there is no treatment. I can not give up so easily. Thank you  and GoD bless.

candy girl,

The Ampulla Vater is a small nipple-like projection in the beginning of the duodenum.  It serves as the conduit for the fluids that move through the bile and pancreatic ducts on their way to the stomach where they begin the process of breaking down the food we eat.  This cancer is treated the same as pancreatic cancer, but has a much better outcome.  Depending upon the stage, your friend may not need further treatment.  If there were positive lymph nodes, chemo will probably be done.

You can find much more info about this cancer and how it is treated by googling 'How is Ampulla Vater cancer treated?'.

Hope you found this helpful

Joan L

 

On 6/19/2009 candy girl wrote:

My good friend had the whipple procudure done and now they have told us he has aptullary cancer. There is not a hole lot of information about this cancer. I was hoping that some one could PLEASE help me out with a little info. They have told us that it is a rare cancer and that there is no treatment. I can not give up so easily. Thank you  and GoD bless.

Thank you very much. Its good to hear some good news. My friend is trying to deal with dying in 2-5 years. I keep telling him that it could be gone but there is so little about this cancer that no one around here knows anything about it and its treatments. Thank you again

On 6/20/2009 candy girl wrote:

 

On 6/19/2009 candy girl wrote:

My good friend had the whipple procudure done and now they have told us he has aptullary cancer. There is not a hole lot of information about this cancer. I was hoping that some one could PLEASE help me out with a little info. They have told us that it is a rare cancer and that there is no treatment. I can not give up so easily. Thank you  and GoD bless.

Thank you very much. Its good to hear some good news. My friend is trying to deal with dying in 2-5 years. I keep telling him that it could be gone but there is so little about this cancer that no one around here knows anything about it and its treatments. Thank you again

I have had Ampullary cancer going on 3 years now and am doing very well. I had a Whipple, chemo with Gemzar, no radiation. I get full scans every 3 months now and blood tests. I too have been told 3-5 years and that it will come back and end my life in that there isn't any new or more treatment. I feel great...take Creon pills with every meal and snack to help me digest food...have gained weight back. Not to worry....good luck to you all.

 

On 8/7/2009 Seagull1 wrote:

 

On 6/20/2009 candy girl wrote:

 

On 6/19/2009 candy girl wrote:

My good friend had the whipple procudure done and now they have told us he has aptullary cancer. There is not a hole lot of information about this cancer. I was hoping that some one could PLEASE help me out with a little info. They have told us that it is a rare cancer and that there is no treatment. I can not give up so easily. Thank you  and GoD bless.

Thank you very much. Its good to hear some good news. My friend is trying to deal with dying in 2-5 years. I keep telling him that it could be gone but there is so little about this cancer that no one around here knows anything about it and its treatments. Thank you again

 

I have had Ampullary cancer going on 3 years now and am doing very well. I had a Whipple, chemo with Gemzar, no radiation. I get full scans every 3 months now and blood tests. I too have been told 3-5 years and that it will come back and end my life in that there isn't any new or more treatment. I feel great...take Creon pills with every meal and snack to help me digest food...have gained weight back. Not to worry....good luck to you all.

 

I was diagnosed with adenocarcinoma of the Papilla of Vater (ampullary cancer) in January 1998. No signs of metastasis so I was given no chemo or radiotherapy.After removal of my gallbladder and a stent to unblock the duodenum I had a full Whipple, 2 emergency ops because of a pancreatic fistula and then 3 months later a bile deviation procedure because of bile refluxes. Since then I have been leading a normal life except for constant bile refluxes, which only recently improved with new medication (Pantoprazol and Plasil). Clearly my digestion is not normal after such an operation. My stomach takes ages to empty although Motilium helps. Sometime after the ops I experienced leg pains and numbness, which they discovered was due to lack of Thiamine (Vit. B1) due to removal of the duodenum. So I take a supplement. Otherwise, I leave a normal life. I am 73 and live in Rio de Janeiro, Brazil, where I was operated. My GP reckons they got it in time. I had the Whipple shortly after the jaundice appeared.

Annettejb

 

On 8/7/2009 Annettejb wrote:

 

On 8/7/2009 Seagull1 wrote:

 

On 6/20/2009 candy girl wrote:

 

On 6/19/2009 candy girl wrote:

My good friend had the whipple procudure done and now they have told us he has aptullary cancer. There is not a hole lot of information about this cancer. I was hoping that some one could PLEASE help me out with a little info. They have told us that it is a rare cancer and that there is no treatment. I can not give up so easily. Thank you  and GoD bless.

Thank you very much. Its good to hear some good news. My friend is trying to deal with dying in 2-5 years. I keep telling him that it could be gone but there is so little about this cancer that no one around here knows anything about it and its treatments. Thank you again

 

I have had Ampullary cancer going on 3 years now and am doing very well. I had a Whipple, chemo with Gemzar, no radiation. I get full scans every 3 months now and blood tests. I too have been told 3-5 years and that it will come back and end my life in that there isn't any new or more treatment. I feel great...take Creon pills with every meal and snack to help me digest food...have gained weight back. Not to worry....good luck to you all.

 

I was diagnosed with adenocarcinoma of the Papilla of Vater (ampullary cancer) in January 1998. No signs of metastasis so I was given no chemo or radiotherapy.After removal of my gallbladder and a stent to unblock the duodenum I had a full Whipple, 2 emergency ops because of a pancreatic fistula and then 3 months later a bile deviation procedure because of bile refluxes. Since then I have been leading a normal life except for constant bile refluxes, which only recently improved with new medication (Pantoprazol and Plasil). Clearly my digestion is not normal after such an operation. My stomach takes ages to empty although Motilium helps. Sometime after the ops I experienced leg pains and numbness, which they discovered was due to lack of Thiamine (Vit. B1) due to removal of the duodenum. So I take a supplement. Otherwise, I leave a normal life. I am 73 and live in Rio de Janeiro, Brazil, where I was operated. My GP reckons they got it in time. I had the Whipple shortly after the jaundice appeared.

Annettejb

 

Dear Annette in Rio... Wow, we are are fortunate to be able to communicate with each other and to have such good news. I had not heard of a low Vitamin B1 level but I too have leg pains. I will ask my doctor on Monday at my 3 month check up to check my B1 levels. It would be great to get rid of the leg pain. Today is a beautiful, sunny , low -humidity, high 70's day on Cape Cod, Massachusetts in the USA. We are going to the beach and I will be thinking of how wonderful it was to know you too are doing well. We have many Brazillians living on Cape Cod and I feel a closeness to you just because of that. May all your days be well and I wish you a long, long life. Thank You...Deanna

My 40 yr old  husband was told he probably had ampullary cancer, and had a whipple 6/9/09. The tumour was precancerous, and he was deemed to be "cured."  Surgery day was scary, and the 3 following weeks exhausting, but since then he is almonst 100% back to normal.