Teal Warriors

Hi all you from chemotherapy posting welcome to our new message board.

Terry, Harriet, Pam, Sandy, Merryk, Ann, Pat, DianeT, Gayle!

We needed a change! lets get this site going, here gals!

Nancy

On 6/24/2009 Harrietg. wrote:

hi gals! thats the way! welcome to all newcomers! how's it going nancy?

Harriet I am doing pretty good considering I had chemo Gemzar yesterday, a bit foggy in head but feel OK. Been cleaning up wires behind computer they look bad. Glad your having family to visit you. it helps boost your spirits. I return from a small family gathering on Monday. Had a nice weekend upstate.

Its summer so I gather everyone is off doing things, they pop on now and then.

Got to get back to my wires. Nancy

Hi Nancy and all oc fighters,

I'm recovering from my third surgery in two and a half years,  and under "house arrest" for a week until I can drive again, then will have radiation because no chemo is working for me.  I'm interested in something called molecular profiling where the tissue is analyzed to predict which chemos might be effective, but so far doctors have not been supportive of this test.  I seems to make sense to not waste time on drugs that will not work in favor of others that might. 

Hi everyone, summer is here and I am taking Full advantage of two months of no cocktails and no pokes.  My 3 kids have had to move back in and  a three year old grandson.........so needless to say I don't have time to think about two months from now (unless it's wondering when they are back on their feet and moving out. LOL)

Hope you are all keeping up in life and knowing there are lots more chapters in life.  I am always keeping an eye on the board and praying for us all. Lots of hugs, Pam

Hi Everyone, so glad that we started another post. Well I went for a pet/ct scan there was no evidence of disease except that they found a small tumor on my vaginal cuff. It seems that the chemo is unable to get rid of it so I'm going to do radiation. We have a trip planned for July 11th and are still going on it . The radiation can wait until I come back. We will be gone for 4-5 weeks. I've been on non stop chemo for over a year and a half. I need a break. It's good to see everyone is comming back and are doing well.

Hugs and Prayers to all you Teal Warriors!!

Love,Terry

Thanks Nancy for starting this new posting.  So happy to hear from everyone. 

 Having a great summer.  With chemo extended to every 3 weeks, I have a "life" and can do so much more these days - more social, more glass work, more everything!  And, my hair is starting to shape up, seems a little thicker, easier to manage. I was debating a wig while wearing lots of hats to hide the hair, but looks like I can put the hats away for a while.

Markers are still good on this regime, 125 is 10 and 2729 is 20 which the Dr. approves of.  I'll continue with this same chemo/schedule for a while.  It will give me a good summer to have some family visits and take short trips.

I had a friend give me a paper on the value of eating asparagus.  I will copy it and sent it to you, but not on this site.

Keep in touch, keep the fail, and eat well!

Gayle

PS NYC was a blast!  Been there, won't go back.

On 6/25/2009 41gram wrote:

Hi Nancy and all oc fighters,

I'm recovering from my third surgery in two and a half years,  and under "house arrest" for a week until I can drive again, then will have radiation because no chemo is working for me.  I'm interested in something called molecular profiling where the tissue is analyzed to predict which chemos might be effective, but so far doctors have not been supportive of this test.  I seems to make sense to not waste time on drugs that will not work in favor of others that might. 

 

this does exist, but i cant remember which lab does it, if i do i will post it; a friend of mine did it: it ruled out avastin for her; unfortunately she's also tried everything under the sun; i am also due for tomotherapy in 2 weeks for 3 small lesions on the liver, & u? harriet

The company that does molecular profiling is www.targetnow.com.  I'm going to have the test because any more  chemos that won't work does not make sense to me.  I have one small nodule on my esophagus which I may have removed after I recover from last week's pelvic surgery.  There will be radiation nextmonth. 

 I also recommendwww.emegingmed.com which researches clinical trials and matches them to a patient.  Just more info for consideration.  In the meantime, I'm loving the summer and enjoying every day.  Hope all you fighters are doing the same.  Praying for you and all the researchers who are trying to help us.

 Pat