Ladies you must read this. I know it's long but I must get the word out.

I went in for my annual exam and my doctor had a problem finding my uterus. She told me I needed to get an ultrasound the next day. The tech told me the results would go to the radiologist and my doctor will get the results in two days and she will call me. After I got dressed the concerned tech told me he met with the radiologist and if my doctor does not call by mid morning the next day, I am to call her. I was scheduled to see her immediately and she told me I had ovarian cancer, CA-125 test came back 175, (normal is 30 and under so cancer was detected) and I was to meet with my surgeon the following week. Within a week after that I had a complete hysterectomy and two volleyball-sized masses were removed. (I just thought I was old and fat and that's why I had a huge stomach.) My doctor took out my unneeded uterus while the masses were examined by the UCSD pathologist. When I woke up from surgery the doctor told me the radiologist sent the masses to an outside pathologist and it would take two weeks for results. (I was totally confused.) Within a week after surgery the surgeon called me and said I was cancer free--that the cancer did not reach the outside of the masses and therefore I did not need further treatment. (Good thing I had freaked out before surgery and refused to have a port.)  But ladies, If I had not gone for my yearly exam this would have gone undetected. Ovarian cancer does not usually hurt and when it does, it has probably spread. So ladies, DO NOT MISS YOUR YEARLY PELVIC EXAM! Please tell my story to any woman that will listen. And I know encapsulated ovarian cancer is rare, ( I couldn't find info on the internet.) but still........what if I had not gone?

 

Me again. I took out "good thing" to my emails to my friends because that was stupid of me to refuse the port so please do not reply to my stupidity. I know it is instrumental for treatment. And I know this because I got my mother-in-law in for a study at UCSD 15 years earlier and it proved that chemo directed at the cancer cite gives a better rate for survival. It's good to know this is standard procedure. It furthered her life two extra years. She was given six months to live with pancreatic cancer, but we were able to enjoy her for two extra years. She would have lived even longer but she died from something else. So please, get the port.

 

On 6/25/2009 pblongboarders wrote:

I went in for my annual exam and my doctor had a problem finding my uterus. She told me I needed to get an ultrasound the next day. The tech told me the results would go to the radiologist and my doctor will get the results in two days and she will call me. After I got dressed the concerned tech told me he met with the radiologist and if my doctor does not call by mid morning the next day, I am to call her. I was scheduled to see her immediately and she told me I had ovarian cancer, CA-125 test came back 175, (normal is 30 and under so cancer was detected) and I was to meet with my surgeon the following week. Within a week after that I had a complete hysterectomy and two volleyball-sized masses were removed. (I just thought I was old and fat and that's why I had a huge stomach.) My doctor took out my unneeded uterus while the masses were examined by the UCSD pathologist. When I woke up from surgery the doctor told me the radiologist sent the masses to an outside pathologist and it would take two weeks for results. (I was totally confused.) Within a week after surgery the surgeon called me and said I was cancer free--that the cancer did not reach the outside of the masses and therefore I did not need further treatment. (Good thing I had freaked out before surgery and refused to have a port.)  But ladies, If I had not gone for my yearly exam this would have gone undetected. Ovarian cancer does not usually hurt and when it does, it has probably spread. So ladies, DO NOT MISS YOUR YEARLY PELVIC EXAM! Please tell my story to any woman that will listen. And I know encapsulated ovarian cancer is rare, ( I couldn't find info on the internet.) but still........what if I had not gone?

 

And me again. The UCSD pathologist sent the masses to an outside pathologist not the radiologist. I'm still recovering from the surgery coupled with an inability to eat due to the masses squeezing my stomach and I am very weak. I just wanted to get the word out and maybe a life will be saved. If my doctor is reading this, thank you for saving my life.

 

And me again. The UCSD pathologist sent the masses to an outside pathologist not the radiologist.

I'm still recovering from the surgery coupled with an inability to eat due to the masses squeezing my stomach and I am very weak so please ignore my mistakes. I just wanted to get the word out and maybe a life will be saved. 

If anyone has any suggestions about how I can get my appetite back and stop drinking Ensure, please let me know. I have lost 20 lbs since surgery and my whole body is shaking due to not eating enough food. I probably would have blamed chemo but I am sure my stomach "shrunk."

 

On 6/25/2009 pblongboarders wrote:

I went in for my annual exam and my doctor had a problem finding my uterus. She told me I needed to get an ultrasound the next day. The tech told me the results would go to the radiologist and my doctor will get the results in two days and she will call me. After I got dressed the concerned tech told me he met with the radiologist and if my doctor does not call by mid morning the next day, I am to call her. I was scheduled to see her immediately and she told me I had ovarian cancer, CA-125 test came back 175, (normal is 30 and under so cancer was detected) and I was to meet with my surgeon the following week. Within a week after that I had a complete hysterectomy and two volleyball-sized masses were removed. (I just thought I was old and fat and that's why I had a huge stomach.) My doctor took out my unneeded uterus while the masses were examined by the UCSD pathologist. When I woke up from surgery the doctor told me the radiologist sent the masses to an outside pathologist and it would take two weeks for results. (I was totally confused.) Within a week after surgery the surgeon called me and said I was cancer free--that the cancer did not reach the outside of the masses and therefore I did not need further treatment. (Good thing I had freaked out before surgery and refused to have a port.)  But ladies, If I had not gone for my yearly exam this would have gone undetected. Ovarian cancer does not usually hurt and when it does, it has probably spread. So ladies, DO NOT MISS YOUR YEARLY PELVIC EXAM! Please tell my story to any woman that will listen. And I know encapsulated ovarian cancer is rare, ( I couldn't find info on the internet.) but still........what if I had not gone?

 

Me again. I took out "good thing" to my emails to my friends
because that was stupid of me to refuse the port so please do not reply
to my stupidity. I know it is instrumental for treatment. And I know
this because I got my mother-in-law in for a study at UCSD 15 years
earlier and it proved that chemo directed at the cancer cite gives a
better rate for survival. It's good to know this is standard procedure.
It furthered her life two extra years. She was given six months to live
with pancreatic cancer, but we were able to enjoy her for two extra
years. She would have lived even longer but she died from something
else. So please, get the port.

I'm still recovering from the surgery coupled with an inability to
eat due to the masses squeezing my stomach and I am very weak so please
ignore my mistakes. I just wanted to get the word out and maybe a life
will be saved. 

If anyone has any suggestions about how I can
get my appetite back, please let me know. I
have lost 20 lbs since surgery and my whole body is shaking due to not
eating enough food. I probably would have blamed chemo but I am sure my
stomach "shrunk." My body is malnourished and I need to eat but I can't eat very much. So let me know.

 

 

hi! u were indeed very lucky! my bad fortune was that my gp didn't recognize that bladder infections could be ovca! also that i was going on a trip & when i wanted to have an earlier yearly at the gyn, he gave me 2 months later! then he blamed me for changing my appointment! i would also have missed a wonderful trip to china! of course if the previous gyn had removed my ovaries when i had a hysterectomy 15 years ago, none of this would have happened!!!

for peace of mind, i would still have the ca125 checked & see the gyn more often: one can never be 2 careful! harriet

Hi Ladies,

Harriet, I went in for a hyst when I was 32 and he wouldn't do a full cause I was too young.(wasn't gonna have no more kids anyway)  He was the same doc who found my mom's cancer many years prier.  Needless to say OC when I was 40.  I was so p-ssed.  Do you think I wouldn't of had OC if he would of done what I begged him too? Pam

 

On 6/25/2009 Itsallgood wrote:

Hi Ladies,

Harriet, I went in for a hyst when I was 32 and he wouldn't do a full cause I was too young.(wasn't gonna have no more kids anyway)  He was the same doc who found my mom's cancer many years prier.  Needless to say OC when I was 40.  I was so p-ssed.  Do you think I wouldn't of had OC if he would of done what I begged him too? Pam

i have no doubt! but 32 is very young to be cut off all those good hormones: maybe if u'd had to take hrt u would have had breast cancer instead! i was borderline: nearly 47! harriet

 

On 6/25/2009 pblongboarders wrote:

 

On 6/25/2009 pblongboarders wrote:

I went in for my annual exam and my doctor had a problem finding my uterus. She told me I needed to get an ultrasound the next day. The tech told me the results would go to the radiologist and my doctor will get the results in two days and she will call me. After I got dressed the concerned tech told me he met with the radiologist and if my doctor does not call by mid morning the next day, I am to call her. I was scheduled to see her immediately and she told me I had ovarian cancer, CA-125 test came back 175, (normal is 30 and under so cancer was detected) and I was to meet with my surgeon the following week. Within a week after that I had a complete hysterectomy and two volleyball-sized masses were removed. (I just thought I was old and fat and that's why I had a huge stomach.) My doctor took out my unneeded uterus while the masses were examined by the UCSD pathologist. When I woke up from surgery the doctor told me the radiologist sent the masses to an outside pathologist and it would take two weeks for results. (I was totally confused.) Within a week after surgery the surgeon called me and said I was cancer free--that the cancer did not reach the outside of the masses and therefore I did not need further treatment. (Good thing I had freaked out before surgery and refused to have a port.)  But ladies, If I had not gone for my yearly exam this would have gone undetected. Ovarian cancer does not usually hurt and when it does, it has probably spread. So ladies, DO NOT MISS YOUR YEARLY PELVIC EXAM! Please tell my story to any woman that will listen. And I know encapsulated ovarian cancer is rare, ( I couldn't find info on the internet.) but still........what if I had not gone?

 

And me again. The UCSD pathologist sent the masses to an outside pathologist not the radiologist. I'm still recovering from the surgery coupled with an inability to eat due to the masses squeezing my stomach and I am very weak. I just wanted to get the word out and maybe a life will be saved. If my doctor is reading this, thank you for saving my life.

 

Correction. I saw my surgeon today and she said I am 97% free from cancer recurring. But I like those odds! And it wasn't encapsulated oc. They were both tumors but with a low malignancy so they don't treat with chemo. Now I just have to get a physical every 6 months for the rest of my life just in case she may have missed removing one cell. But I still think I'm lucky and every woman should still get a yearly exam. At least I don't have to get a pap smear!

 

Wow! 32 is too way young for a hysterectomy. You need those ovaries for as long as possible otherwise no one will want to be around you! after menapause you feel like it's pms every day.And you have to use Astro Glide when having sex.

Yeah, thanks. I hope that will be included in the visits every 6 months for the rest of my life.