One patient with glioblastoma still alive nine years later
by Chellybell on Fri Dec 16, 2005 12:00 AM
by Inazone2 on Tue Jan 03, 2006 12:00 AM
by Tamran on Fri Feb 03, 2006 12:00 AM
by Chellybell on Fri Feb 03, 2006 12:00 AM
by Weronica on Fri May 12, 2006 12:00 AM
by Cynthia_Rose on Wed Mar 07, 2007 12:00 AM
I'm a 50 year old female and just found out I have Mgus,I need to hear some positive things from people out there with this, also I'm on lexapro a ssri med for depression I just found out that one of the side effects is it effects your platelet count and I was wondering who else is on anykind of ssri and has mgus.
please respond, thanik you, cynthia rose
by Pattin on Tue Mar 20, 2007 12:00 AM
I am 44 years old and just last week diagnosed with Mgus. I am very scared. I am 2 time Hodgkins Disease Survivor and in million years, did I ever think that 10 years later I would have Mgus. I never heard of it and never told about it.
I am scared, not sure what this means for me. I have to go for a bone marrow biopsy and other lab tests...my doctor and oncologist tell me not to worry.
But can't help it, I am worried.
Thanks for listening. Patti
by Chellybell on Sun Apr 22, 2007 12:00 AM
Sorry, this is the first time I've checked the board in quite a while. Of course you're scared, honey--this is terrifying at first. It does start to feel normal after a while, though--I've had it for over a year, and have recently notcied that life just took over and I stopped thinking about it so much.
Since you posted, I hope you've gotten some results back that have eased your mind. For the majority of people, MGUS stays MGUS and never turns into anything more than annoyingly regular bloodwork. Please let me know how you're doing, Patty.
Hi Cynthia Rose,
I haven't taken any anti-depressants, but I do have the lovely MGUS. Some positive things...? I'm still here, still healthy, and my levels are stable. You may be reassured to look up some of Dr. Robert Kyle's studies--he's with the Mayo Clinic and is the world leader in MGUS studies. I actually had the pleasure of speaking to him about my case, and he was able to reassure me, based on my test results, that my chances of moving into myeloma were very small. His main advice? To keep my body in outstanding physical condition, through diet, exercise, sleep, and hydration. He said if the time ever comes, I should be ready to fight as hard as I can and that people in peak condition seem to do quite well. Hope this lifts your spirits. Hang in there, Cynthia Rose. Things will settle down, once you have some time to adjust.
I have IGG lambda, and it's fairly small, thankfully. How have you been doing this year?
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