Just Diagnosed

I have just been diagnosed with MGUS.  I had the urine & bone scan done and just saw the doctor and he said I definitely do not have multiple myeloma.  I will be seeing the doctor every 6 months for follow-up blood work.  I was at first very scared, frightened and worried as I was concerned the diagnosis would be multiple myeloma.  What a relief it was to find out it was MGUS.  I was already starting to get my affairs in order so my husband wouldn't have to go through the stress that it could be MM and all that it would entail.  I am getting all my affairs in order because no one person knows what is in store you at any time.  

I can now look at this disease the same way as my Multiple Sclerosis.  When first diagnosed with MS, I couldn't eat for 3 days and when I finally did, I threw everything up.  It took a long time for me to deal with this diagnosis.  

I can now look at this new disease as the same way as MS.  Live each day like it's the only day you have.  Do not think about the past or worry about the future.  Live each day the way you want it to be.  Do not let others control you.  You are in control of yourself physically and emotionally.  

I hope this helps everyone and would love to hear from anyone.  

Thanks!

Welcome to the forum my dear! I think you have a very healthy attitude!! Best wishes for continued good reports.

Hugs,

Amy

Welcome Ms,

Well I was MGUS first then now have been getting chemo for MM since April and so far it has not been a big deal.  MM is now more of a chronic long term disease, is not the death sentence that it once was.

MS is so hard, but now they even have drugs that help some with prolonging their mobility. 

The thing with MGUS is some people never go into MM. They only ever have MGUS. Knowlege is power, ask questions and keep up with your labs and stay  tuned on this very informative message board! Gayle

Well we are a club that is for sure MM or Mgus similar problems. Here is a good link from UTaboy that will be useful to you:

http://northtexas.myeloma.org/mm101.htm

I also recomend you read the last 2-3 months of posting on the myeloma site as it goes into deatail on natural remedies or you can must put Natural healing for Multiple Myeloma in CC search area.  There are so many ways to go but not givung up or givining in is an option. Your reaction to your diagnosis is normal now find out all you can about your disease. Rally forth and be well and stay that way. MMS

On 6/27/2009 MS & MGUS GAL wrote:

I have just been diagnosed with MGUS.  I had the urine & bone scan done and just saw the doctor and he said I definitely do not have multiple myeloma.  I will be seeing the doctor every 6 months for follow-up blood work.  I was at first very scared, frightened and worried as I was concerned the diagnosis would be multiple myeloma.  What a relief it was to find out it was MGUS.  I was already starting to get my affairs in order so my husband wouldn't have to go through the stress that it could be MM and all that it would entail.  I am getting all my affairs in order because no one person knows what is in store you at any time.  

I can now look at this disease the same way as my Multiple Sclerosis.  When first diagnosed with MS, I couldn't eat for 3 days and when I finally did, I threw everything up.  It took a long time for me to deal with this diagnosis.  

I can now look at this new disease as the same way as MS.  Live each day like it's the only day you have.  Do not think about the past or worry about the future.  Live each day the way you want it to be.  Do not let others control you.  You are in control of yourself physically and emotionally.  

I hope this helps everyone and would love to hear from anyone.  

Thanks!

 

From Anna,

Hi MS & MGUS GAL, Welcome to the group.  My Dad does have the MM.  He's had it going on 12 years.  Hang in there my friend. Sounds like you have a good attitude.

Your friend,

Anna