problems with walking and fatigue

 

On 6/29/2009 partnerof wrote:

Hello Again:

It has been a long time since I have posted a word.  My husband was dx in Aug. 2008 at which time I took him to the ER thinking he had a stroke.  CT scan revealed a mass in the Occiputial Lobe.  Surgery followed Sept. 3, 2008 biopsy results Glioblastoma followed by pt and ot therapy.  Then home.  He then received six weeks of radiation and chemotherapy tolerated it fairly well.  Have received six cycles of temodar and odanestrone with MRI every two months.  Experienced fatigue, and some loss of appettite but has maintained a good weight.  Had his last MRI on 6/26/09  which was unremarkable.  He has been experiencing severe fatigue, and terrible problems with walking he says "his legs feel like concrete."  We were both terrified that the it had reappeared  because of his difficulty with walking.  My husband's Dr. said that nothing on the MRI showed that would account for his difficulties and it could not be the result of the temodar because we had not started the next cycle.  We left the Dr and he said if anything changes to call him.  This morning he says it feels like it is getting worse and I plan on calling the Dr. by the afternoon.  We are a bit confused as to what is causing his symptoms and I am scared to death.  Just wondering if anyone else has experienced anything like this and if so what steps you took to eleviate the problem.  Any responses will be greatly appreciated.

God Bless

Debb

Did ytou call Dr.? what did you find out?I have trouble walking I always stay pretty dizzy.Please keep in touch. I hope to talk to you soon    Donna LuLu

 

On 7/11/2009 lulu5 wrote:

 

On 6/29/2009 partnerof wrote:

Hello Again:

It has been a long time since I have posted a word.  My husband was dx in Aug. 2008 at which time I took him to the ER thinking he had a stroke.  CT scan revealed a mass in the Occiputial Lobe.  Surgery followed Sept. 3, 2008 biopsy results Glioblastoma followed by pt and ot therapy.  Then home.  He then received six weeks of radiation and chemotherapy tolerated it fairly well.  Have received six cycles of temodar and odanestrone with MRI every two months.  Experienced fatigue, and some loss of appettite but has maintained a good weight.  Had his last MRI on 6/26/09  which was unremarkable.  He has been experiencing severe fatigue, and terrible problems with walking he says "his legs feel like concrete."  We were both terrified that the it had reappeared  because of his difficulty with walking.  My husband's Dr. said that nothing on the MRI showed that would account for his difficulties and it could not be the result of the temodar because we had not started the next cycle.  We left the Dr and he said if anything changes to call him.  This morning he says it feels like it is getting worse and I plan on calling the Dr. by the afternoon.  We are a bit confused as to what is causing his symptoms and I am scared to death.  Just wondering if anyone else has experienced anything like this and if so what steps you took to eleviate the problem.  Any responses will be greatly appreciated.

God Bless

Debb

Did ytou call Dr.? what did you find out?I have trouble walking I always stay pretty dizzy.Please keep in touch. I hope to talk to you soon    Donna LuLu

 

My dad was diagnosed with an anaplastic oligoastrocytoma a about 14 months ago. He had a full resection and recieved radiation and has been on Temodar. His MRI's have shown no significant differences lately however he has had problems with fatigue, personality is nowhere close to where it was even after the surgery. Now it he has been having problems with getting dizzy whenever he gets up. The doctors cant seem to understand why this is happenening. As you all know it is very frustrating especially since he seems to be fine and then he just mentally drifts off and cant walk. They upped his Kepra to two tabs 3 times a day and the decadron steriods to 16mg. It seems to have helped but not too much. He is going for more tests just wish we could get answers.