Latest messages for CancerCompass discussion http://www.cancercompass.com/message-board/message/all,37588,0.htm Tue, 24 Nov 2009 00:00:00 GMT Tue, 24 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Dr. Jesus Esquivel at St.Agnes Hospital in Baltimore, Maryland only specializes in adenocarcinoma. My mom was diagnosed in 2005 with appendix adenocarcinoma. Heated chemo and debulking is very helpful to patients with this disease. It can add to your life of 15 years. The problem with the surgery and heated chemo would be getting your insurance to pay for it. My mom's insurance through giant union workers kept telling us that it was experimental. I researched this disease and treatment. It is the only treatment that seems to make a difference.  A lot of major insurance companies were covering it. So I went to my congressman and delegate and they helped me fight for the coverage. It took me about 7 months of nagging, letter writing, sending our story to the news,  to get them to reverse their decision. Unfortunately when they went to do the surgery my mom was too sick with the disease.  She passed away peacefully at 57 years old leaving me without any parent or sibling. I miss her so much. I was so angry with the insurance but so happy that I fought to get them to reverse their coverage . Don't ever feel hopeless with your insurance companies, they can be pressured. I hope that my fight helps other patients with similar diseases that insurance companies hymm and hawww about.  Dr. Esquivel is a topnotch doctor that knows everything about adenocarcinoma. That is what he treats.  I witnessed patients coming from all over the country of US and the world to see him. My prayers are with all of you. imissmymom07 Mon, 29 Jun 2009 00:00:00 GMT