stage III and iliostomy

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stage III and iliostomy

by Emma1Beeit on Thu Jul 02, 2009 12:00 AM

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Hi, I'm new to this and came across this site and see that there are others I can communicate with that will understand what I am going through. The cancer center that I went through couldn't find anyone for me to talk to with the same thing that I went through. I was diagnosed June 08 with stage III rectal cancer. I had surgery to remove it then did 6 months of chemotherapy. I am getting ready to have the iliostomy removed. Is there anyone out there that has just done surgery and chemotherapy without radiation for stage III rectal cancer? I am questioning the reacurrence rate and then have questions regarding the removal of the iliostomy and how hard it's going to be as it's been 10 months that I've had it on. Also what type of diet to be on after treatment and removal. Treatment ended 3 months ago and I really have no special diet, was told to watch out for skin and seeds, that's it.  I wasn't given any info regarding diet. Can anyone help me with this. I really appreciate your advice as I understand each of you are dealing with a lot already. Thank you.

RE: stage III and iliostomy

by 570sheila on Thu Jul 02, 2009 12:00 AM

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Hello...

           IF you can not find your answers your looking for on here, you may want to check out the Colon Club. Just google it....alot of people there also with alot of info to  share. My husband had 31 treatments of raditation and 6 weeks of chemo....a permenent colostomy and then more raditation and chemo. He eats just about EVERYTHING.....not to many peanuts though. I really belive everyone is different and you will learn what you can eat and can't as time goes on. Good Luck and God Bless.

                                 Sheila

RE: stage III and iliostomy

by sue_b_5 on Fri Jul 03, 2009 12:00 AM

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You will get lots of good info here if you take time and read previous posts from others. I can't offer advice re: chemo experience, but on the other questions I can. In June 08 I was diagnosed with rectal cancer - Stage 1, no chemo, no radiation, but did have the big LAR surgery with temp ileostomy that was reversed 2 1/2 months later. Most people experience frequent, loose bowel movements after reconnection, but I was the opposite and could not go without help from laxatives. Everybody is different so you will have to wait and see how your body adjusts. Get help from your surgeon when it comes to taking any medications, prescription or over the counter. It took about 4 months for me to get back to some sort of normalcy which allowed me to feel comfortable to get out of the house for longer periods of time.

As far as diet, there aren't many restrictions, unlike living with the ileostomy. But again, your system is unique - what works for others may not agree with you. I started out very gently, low calorie intake and small portions, but a variety of all foods. I did stay away from seeds, nuts and other foods that could cause upset -spicy, rich, greasy, fatty. I ate oatmeal, fish, chicken, carrots, green beans, brocolli, you know, all the "healthy" stuff.

By the way, the reversal surgery is not as bad as the first surgery, but still kind of painful, both from the incision and the re-inflating of the colon. Expect the incision to be sore for a good 4 to 6 weeks after. I was kind of deluded thinking it would be a snap. But the trade off of getting rid of the pouch was worth it.

Best of luck to you.

RE: stage III and iliostomy

by 570sheila on Fri Jul 03, 2009 12:00 AM

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Hello...I re-read your questions. Raditation after surgery is NOT usually done. ITS BEFORE SURGERY. Ted did have more raditation after....Guess it is up to the doctor. Chemo after surgery is ALWAYS....Its STANDARD of care....but once again I guess up to the doctor.  As far as reoccurence....well IF we all had a crystal ball LIFE WOULD be so much easier. The best advice I can give you IS THINK POSTITIVE AND LIVE LIFE everyday. If you are always worring about TOMORROW you will miss TODAY.

                                        Hugs Sheila 

RE: stage III and iliostomy

by heidelberg on Mon Jul 06, 2009 12:00 AM

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Hi,

I was diansed rectal ca in 2006. I hade preoperative chemo and radiotheraphy and then followed with just chemo after surgery. T answer your questions.

1. Whilst standard now seems to have radiation before surgery, if you have not you should consider it afterwards. Don't listen to that person who said not to, its the recommended approach. I would get an appointment with a radiation oncolgist or similar and get another opinion. It can ad to your chances.

2. I had a covering illeostomy which was reversed after 8 months. It was in the beginning very hard, and it might take some months to come good, but it will eventuality for most people. I am now 18 months post reversal and I am pretty good. Its just that its never going to be 100% like it was before. Consider seeking help outside of the sugeoon also. Specialist continence clinics and a dietition are good options also

 

good luck

Chris

RE: stage III and iliostomy

by 570sheila on Mon Jul 06, 2009 12:00 AM

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Hello Chris....

   I AGREE with you about the raditation. Even though my husband ended up with a permanent colostomy...DONE LAPROSCOPIATTLY.....which IS a great way to have one done IF you have no other choice. Recovery time is SO MUCH QUICKER AND ALMOST PAIN FREE.

 My husband HAD 32 RADITATION treatments before his surgery and 10 more treatments AFTER surgery PLUS his CHEMO BEFORE AND AFTER.  I can not see anyone going through all of this and NOT do EVERYTHING for the cancer NOT to return. BUT worse off is I can NOT belive any doctor would not have anyone not do raditation......you must fight this disease with ALL YOU GOT.....Do it RIGHT the first time so there is NO SECOND time. Besides Raditation and chemo IS STANDARD of care for MOST colon rectal patiences....and from what I have read this sounds MUCH like my husbands. EVERYONE NEEDS a second opinon and NEEDS TO BE THEIR OWN ADVOCATE, for if you do NOT look out for yourself.....WHO WILL?????

                                      Good Luck........Sheila

RE: stage III and iliostomy

by jeh627 on Thu Jul 09, 2009 12:00 AM

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On 7/6/2009 570sheila wrote:

Hello Chris....

   I AGREE with you about the raditation. Even though my husband ended up with a permanent colostomy...DONE LAPROSCOPIATTLY.....which IS a great way to have one done IF you have no other choice. Recovery time is SO MUCH QUICKER AND ALMOST PAIN FREE.

 My husband HAD 32 RADITATION treatments before his surgery and 10 more treatments AFTER surgery PLUS his CHEMO BEFORE AND AFTER.  I can not see anyone going through all of this and NOT do EVERYTHING for the cancer NOT to return. BUT worse off is I can NOT belive any doctor would not have anyone not do raditation......you must fight this disease with ALL YOU GOT.....Do it RIGHT the first time so there is NO SECOND time. Besides Raditation and chemo IS STANDARD of care for MOST colon rectal patiences....and from what I have read this sounds MUCH like my husbands. EVERYONE NEEDS a second opinon and NEEDS TO BE THEIR OWN ADVOCATE, for if you do NOT look out for yourself.....WHO WILL?????

                                      Good Luck........Sheila


Hi

I had chemo and radiation before my surgery.  I had a temporary Iliostomy which was reversed about six or seven weeks later.  I had more chemo after the reversal, just to be on the "safe side" as my Oncologist put it.  After the reversal there was no special diet to follow.

June

RE: stage III and iliostomy

by jeh627 on Fri Jul 10, 2009 12:00 AM

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On 7/9/2009 jeh627 wrote:

 

On 7/6/2009 570sheila wrote:

Hello Chris....

   I AGREE with you about the raditation. Even though my husband ended up with a permanent colostomy...DONE LAPROSCOPIATTLY.....which IS a great way to have one done IF you have no other choice. Recovery time is SO MUCH QUICKER AND ALMOST PAIN FREE.

 My husband HAD 32 RADITATION treatments before his surgery and 10 more treatments AFTER surgery PLUS his CHEMO BEFORE AND AFTER.  I can not see anyone going through all of this and NOT do EVERYTHING for the cancer NOT to return. BUT worse off is I can NOT belive any doctor would not have anyone not do raditation......you must fight this disease with ALL YOU GOT.....Do it RIGHT the first time so there is NO SECOND time. Besides Raditation and chemo IS STANDARD of care for MOST colon rectal patiences....and from what I have read this sounds MUCH like my husbands. EVERYONE NEEDS a second opinon and NEEDS TO BE THEIR OWN ADVOCATE, for if you do NOT look out for yourself.....WHO WILL?????

                                      Good Luck........Sheila


Hi

I had chemo and radiation before my surgery.  I had a temporary Iliostomy which was reversed about six or seven weeks later.  I had more chemo after the reversal, just to be on the "safe side" as my Oncologist put it.  After the reversal there was no special diet to follow.

June

Hi Shiela

Life does get back to a 'new normal', I've come to the conclusion that more doctor visits are part of it.  I don't drive, but my son and daughter-in-law have been wonderful in getting me to appointments.  My two little grandsons are very used to Mommy taking Grandma to the Doctor and sitting and waiting.  I finished my chemo the end of April, the beginning of August I go in for a Scan.  I'm hoping and praying everything is still all clear.

June

 

RE: stage III and iliostomy

by yodics on Wed Jul 15, 2009 12:00 AM

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Hi. I am also diagnosed with stage III rectal cancer last january. had undergone neo adjuvant therapy, w/c include 28 sessions of Radiation, xeloda tablets and IV chemo. was operated LAR last june 9. My ass is still sore upto now. i constantly take celebrex 400 at night so i can sleep better. there will be more chemo therapy probably after 2-3 weeks. My doctor said ileostomy  reversal will be done after 8 months, which will be february next year. Praying that everything will be alright after that. 

By the way i'm 37 yrs old 

RE: stage III and iliostomy

by yodics on Wed Jul 15, 2009 12:00 AM

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Hi June,

your resection healed after 7 weeks? i am already in my 5th week and i continue to feel pain in my ass and still have those mucous leak which my doctor said is puss due to infection...... Hope mine will heal as fast as yours.

 

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