First post

I joined this site when my husband had colo-rectal cancer. He died 8/24/07. I have been getting emails from Cancer Compass since then. now I've been told by a doctor at Cleveland Clinic that I may have MM, I went there to have a second opinion on my MRI's and CT scans. He had me get x-rays and blood tests. What upset me was that he only considered the most negatives I could have instead of waiting until after the test results were completed..

So right now, i am in limbo waiting for the results. What do you folks thing of a doctor like that?

Also I am totally confused by the acronyms used on here. Is there anywhere I can look up the meanings?

I hope I did this post correctly.

Here's a good place to start http://northtexas.myeloma.org/mm101.htm

Best of luck to you

Welcome, I am new here myself, just dignaosed with MGUS last November. This is a good place to learn and get advice. Hang in there, there is a learning curve but you will make it.

On 7/4/2009 stevem57 wrote:

Welcome, I am new here myself, just dignaosed with MGUS last November. This is a good place to learn and get advice. Hang in there, there is a learning curve but you will make it.

What is that? Tat is what confuses me on here> I guess I'll just have to look for the anocrym's on the site.

If you'll visit the link I left you, you'll know what MGUS is

Good Morning Rose;

I joined this site when my husband had colo-rectal cancer. He died 8/24/07.

I'm sorry to hear about your loss. 

Now I've been told by a doctor at Cleveland Clinic that I may have MM, I went there to have a second opinion on my MRI's and CT scans. He had me get x-rays and blood tests.

You should also have given a 24 hour urine screen (UPEP) and probably have a Bone Marrow Biopsy. (BMB) I closely watch my Monoclonal Proteins (M-spike or SPEP).

What do you folks think of a doctor like that?

What matters is the fit between YOU and your doctor. It appears to me as if you may not be comfortable with this person's bedside manner. Find another one! As I've said many times before: "What do they call the guy who graduates LAST in his medical class?"

Also I am totally confused by the acronyms used on here.

I listed three above, but you really don't want this sort of treatment, do you?

Is there anywhere I can look up the meanings?

The post Doug offered you is OUTSTANDING! Beyond that, pour yourself a nice red wine and read the archives. They are a wealth of knowledge.

Welcome to the family. You're only a stranger here once! Hope to hear back from you after that glass of red wine.

Take care;

Kevin

MGUS is MonoclonGammopathy of Unknown Significance, it is the pre cancerous blood condition that causes MM.It is the presence of a cancerous protein level in the blood.  It only becomes or is called MM after it hits a certain level, Those of us with lower levels of the MGUS protei

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Are you OK Steve?  Did you start to fall asleep as you went to mail your message last night??  I hope that you hit the wrong button and that the string of 'y's' was the result!!  We wouldn't want to lose you so soon after just meeting you!!  Take good care and do get back to us soon -- cheers, Cath

My cat stepped on the keyboard, sorry about that. That is not an acronym!

Steve

From Anna,

Hi Wilted_rose61, Welcome to the group.  Sorry I can't answer your question.

Your friend,

Anna