Herpes/shingles Intensified W/chemo: Treatment?

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Herpes/shingles Intensified W/chemo: Treatment?

by Cdpb80 on Tue Dec 20, 2005 12:00 AM

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My husband is undergoing the second 4 week round of treatment for esophageal cancer w/mets to the liver. He normally has a shingles outbreak when stressed- it's really phenomenal now. Has anyone experienced this added attraction with chemo? he's getting Cisplatin and Irinotecan. I'm wondering what they'll be able to give him, anti-viral wise, that won't make him sick...any thoughts welcome!

RE: Herpes/shingles Intensified W/chemo: Treatment?

by Melrowsplace on Mon Feb 18, 2008 12:00 AM

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On 12/20/2005 Cdpb80 wrote:

My husband is undergoing the second 4 week round of treatment for esophageal cancer w/mets to the liver. He normally has a shingles outbreak when stressed- it's really phenomenal now. Has anyone experienced this added attraction with chemo? he's getting Cisplatin and Irinotecan. I'm wondering what they'll be able to give him, anti-viral wise, that won't make him sick...any thoughts welcome!

By the date on your email I can guess you have had an answer by now. But, I thought I would give it a shot anyway.

Yes I did contract shingles during my chemo treatment, not once, not twice, not three times but FOUR outbreaks of shingles.  It would no more than clear up and bam! I would get it again. 

More importantly though is the permanent pain I have been left with because of the shingles.  It has taken visits to my oncologist, my neurologist, my internist and an orthopedic surgeon... and my own in-depth research to determine that the chronic pain I live with is a result of the shingles contracted during chemo. 

The pain is constant; I am on a very strong pain medication and nerve medication and will probably remain on both the rest of my life.

At first, they thought it was just temporary pain and would diminish over time.  After 2 years it showed no signs of decreasing and they had to tackle the problem.  They even tried to pin it on a mental well being sort of thing.  I knew I was not imagining the pain.  They tried to tell me I had arthritis, but the pain is not just in my joints.  It is from my waist down to my toes; in my hips and legs. And, it is a burning/wet/cold, highly sensitized pain..

My oncologist FINALLY figured it out when she went back to other patients' records (I badgered all of my doctors for over 2 years...until someone came up with an answer!)

Knowing what has caused this has helped so much.  Evidently, this is not common but it does occur.  and thankfully I can live my life and manage the pain.

 I hope your husband is well and living a wonderfully healthy life. 

I am in remission and say Thank You, God every day for having another chance at life.  Even if it is with chronic pain..You know, that's not so bad....Take care

 

 

 

RE: Herpes/shingles Intensified W/chemo: Treatment?

by CancerStrike2 on Sun Jun 07, 2009 12:00 AM

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On 2/18/2008 Melrowsplace wrote:

 

On 12/20/2005 Cdpb80 wrote:

My husband is undergoing the second 4 week round of treatment for esophageal cancer w/mets to the liver. He normally has a shingles outbreak when stressed- it's really phenomenal now. Has anyone experienced this added attraction with chemo? he's getting Cisplatin and Irinotecan. I'm wondering what they'll be able to give him, anti-viral wise, that won't make him sick...any thoughts welcome!

By the date on your email I can guess you have had an answer by now. But, I thought I would give it a shot anyway.

Yes I did contract shingles during my chemo treatment, not once, not twice, not three times but FOUR outbreaks of shingles.  It would no more than clear up and bam! I would get it again. 

More importantly though is the permanent pain I have been left with because of the shingles.  It has taken visits to my oncologist, my neurologist, my internist and an orthopedic surgeon... and my own in-depth research to determine that the chronic pain I live with is a result of the shingles contracted during chemo. 

The pain is constant; I am on a very strong pain medication and nerve medication and will probably remain on both the rest of my life.

At first, they thought it was just temporary pain and would diminish over time.  After 2 years it showed no signs of decreasing and they had to tackle the problem.  They even tried to pin it on a mental well being sort of thing.  I knew I was not imagining the pain.  They tried to tell me I had arthritis, but the pain is not just in my joints.  It is from my waist down to my toes; in my hips and legs. And, it is a burning/wet/cold, highly sensitized pain..

My oncologist FINALLY figured it out when she went back to other patients' records (I badgered all of my doctors for over 2 years...until someone came up with an answer!)

Knowing what has caused this has helped so much.  Evidently, this is not common but it does occur.  and thankfully I can live my life and manage the pain.

 I hope your husband is well and living a wonderfully healthy life. 

I am in remission and say Thank You, God every day for having another chance at life.  Even if it is with chronic pain..You know, that's not so bad....Take care

 

 

 


What kind of med were u given for your shingles?  My mom got one for the past 3 months and nothing appeared to be working - patches, lyrica, etc...  Pls help,

Victoria

RE: Herpes/shingles Intensified W/chemo: Treatment?

by sdramirez on Fri Jul 08, 2011 03:59 AM

Quote | Reply

On Jun 07, 2009 12:00 AM CancerStrike2 wrote:

 

On 2/18/2008 Melrowsplace wrote:

 

On 12/20/2005 Cdpb80 wrote:

My husband is undergoing the second 4 week round of treatment for esophageal cancer w/mets to the liver. He normally has a shingles outbreak when stressed- it's really phenomenal now. Has anyone experienced this added attraction with chemo? he's getting Cisplatin and Irinotecan. I'm wondering what they'll be able to give him, anti-viral wise, that won't make him sick...any thoughts welcome!

By the date on your email I can guess you have had an answer by now. But, I thought I would give it a shot anyway.

Yes I did contract shingles during my chemo treatment, not once, not twice, not three times but FOUR outbreaks of shingles.  It would no more than clear up and bam! I would get it again. 

More importantly though is the permanent pain I have been left with because of the shingles.  It has taken visits to my oncologist, my neurologist, my internist and an orthopedic surgeon... and my own in-depth research to determine that the chronic pain I live with is a result of the shingles contracted during chemo. 

The pain is constant; I am on a very strong pain medication and nerve medication and will probably remain on both the rest of my life.

At first, they thought it was just temporary pain and would diminish over time.  After 2 years it showed no signs of decreasing and they had to tackle the problem.  They even tried to pin it on a mental well being sort of thing.  I knew I was not imagining the pain.  They tried to tell me I had arthritis, but the pain is not just in my joints.  It is from my waist down to my toes; in my hips and legs. And, it is a burning/wet/cold, highly sensitized pain..

My oncologist FINALLY figured it out when she went back to other patients' records (I badgered all of my doctors for over 2 years...until someone came up with an answer!)

Knowing what has caused this has helped so much.  Evidently, this is not common but it does occur.  and thankfully I can live my life and manage the pain.

 I hope your husband is well and living a wonderfully healthy life. 

I am in remission and say Thank You, God every day for having another chance at life.  Even if it is with chronic pain..You know, that's not so bad....Take care

 

 

 


What kind of med were u given for your shingles?  My mom got one for the past 3 months and nothing appeared to be working - patches, lyrica, etc...  Pls help,

Victoria

Yes, I had what looked like an outbreak of shingles on both my breasts (little tiny blisters where tape used to be) very shortly after my first round of chemotherapy.  At first I thought I developed an allergy to surgical tape because I had recently had a mediport implanted.  But lo & behold, within the next two days, my esophagus because really sore and I developed tiny sores in the corner of my mouth.  Alcohol free antiseptic and gargling with salt water helped some.  However, I had to find out the cause, so I went to see my doctor as soon as I could.  They say this doesn't normally happen to chemo patients unless they are very young or over the age of 50 and has had chiken pox before.  I am 52 and had chicken pox at the age of 4.  When I found out that the shingles were a side effect of the cheomotherapy.  I was prescribed ACYCLOVIR 800 mg. twice a day for the next two months.  From looking around the internet, I also found that Acyclovir is prescribed for viral herpes.

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