neuroendocrine cancer

3 Posts | Page(s): 1 

neuroendocrine cancer

by TraceyLynn on Wed Jul 08, 2009 12:00 AM

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Currently my dad has received two rounds of chemotherapy for this type of cancer.  I heard that it affects your taste and appetite, but I was wondering if anyone has experienced this and if there were any foods they felt were appetizing or worked better than others.  My dad has lost a lot of weight, doesn't want to eat, often says he cannot swallow and barely takes his supplements.  He still has more chemotherapy, but I am afraid that he will not be strong enough if he doesn't start moving and eating.  Does anyone have experience or advice with this?

RE: neuroendocrine cancer

by Aunt_Shug on Fri Jul 10, 2009 12:00 AM

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I am a neuroendocrine pancreatic islet cell tumor patient.  I have had major surgery to remove my cancer.  I am awaiting scan results to see how successful the surgery was.  I have not had any chemo yet so I can't personally speak to that issue.  My husband has had aggressive chemo and suffered from loss of appetite, lethargy, etc.  My suggestion would be to discuss the food issues with a dietician and/or the doctor or physician's assistant.  Usually an  oncology clinic will  have a dietician associated with it.

I remember that my husband depended a great deal on soups when he did not feel like eating.  The important thing is to find something of nutritional value that your father can/will eat--even if it doesn't fit the medical idea of the perfect food!

RE: neuroendocrine cancer

by Kennie on Fri Jul 24, 2009 12:00 AM

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I am a recent cancer patient with throat cancer I've had my voice box totaly removed and left with a hole in my neck to breath threw and to talk with.  I have 2 more treatments of radiation to go.  I have suprized the doctors because I have been able to maintain my weight threw 6 weeks of radiation they thought that I would lose 10lbs.  I no chemo is supposed to be worse. The way I have been able to maintain my weight is rawmen noodles, ice cream shakes, and popcycles these are the three main things I have ate for 6 weeks my throat has been so sore its like having a soar throat times ten.  I found that the rawmen noodles were easy to get down and the shakes and popcycles felt good on my throat.  I hope that this may help your dad.  Best of luck Kennie
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