Latest messages for CancerCompass discussion http://www.cancercompass.com/message-board/message/all,37907,0.htm Sat, 21 Nov 2009 00:00:00 GMT Sat, 21 Nov 2009 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My TSH both times I was hypo was 135!!My endo told me there have been people that slipped into a coma at 140! I guess I'm one of those people whose TSH shoots up rapidly. RTKAM Mon, 20 Jul 2009 00:00:00 GMT My husband's TSH is at 100!  He was told that is extremely elevated and they only need it to be a 20 to do RAI.  4 is supposedly normal so that is just crazy. I'm surprised he can still get up and function. He's been a real trooper through this. He's in quarantine right now.  -R racheln24 Wed, 15 Jul 2009 00:00:00 GMT Hi, Mine was 87 about a week before. I had my labs on Friday and expected a call from the doc. I finally called on Wednesday and was told it was 87 so I was good to go. I called the hospital to set up the date since the doc was slacking on this too. Got in for a tracer dose on Thursday, scan on Friday, then the actual RAI meds on Saturday. Thank goodness they came in on Saturday. Don't think I could have waited any longer. I restarted meds on Tues or Wed? after the RAI and it took probably a week to feel noticeably better, not great but not terrible. Take care, it does get better! clarke Fri, 10 Jul 2009 00:00:00 GMT My TSH was near 60 the day before I did RAI. Endo said it was high enough, nuclear guy said he wished it was higher. I think that we all have our own normals though, and while someone may feel terrible at a 6 someone else may feel decent at a 14...As for adjusting after RAI, it took forever for them to get me on the right dose. He started very low and gave it 6 weeks to adjust. I did feel improvements each time though. If you are allowed to resume your regular stable dose, you should get some relief pretty quickly.Lori Tavish Thu, 09 Jul 2009 00:00:00 GMT Just wondering how high everyone's TSH got while going hypo and preparing for RAI?   I just had my blood tested today -- my RAI is next week.   My TSH was 94!!   How am I even still functioning?   Strangey enough, I don't really feel sleepy, but my arms and legs feel like lead weights (my typing speed is slowed down and my arms feel limp) --I guess I am hypo enough for RAI -- just hope it doesn't take too long to get back to normal afterwards -- so far, the weight has been OK too -- I actually lost 6-7 lbs. on Cytomel, so I have some leeway -- hope I don't pack on 10 in the remaining week -- I have no appetite at all though -- have been making myself eat.  Hopeful30 Thu, 09 Jul 2009 00:00:00 GMT