One patient with glioblastoma still alive nine years later
by heart_and_soul on Sun Jul 12, 2009 12:00 AM
OK, another thing we don't understand and have never heard of before: Andy says he hears a popping and clicking sound inside his head. (GBM/PNET left temp lobe, resected 33% 1/13/09, conventional Tem/Rad, has had three rounds of 5/23 Temodar.) He says it's not steady, like his pulse. It's more like popcorn, irregular. Comes and goes. No pain, just this bothersome clicking.
Any ideas? Call doctor?
mom of Andy 26 dx GBM/PNET 1/09
by madonnav on Sun Jul 12, 2009 12:00 AM
There really seems to be all kinds of odd symptoms with the miseable thing. Rob doesn't have any clicking but some buzzing. He also feels really cold inside his ear. Have asked the NO and he has no answer- he sees nothing looking into the ear and it is not cold to the touch. Go figure- he also has to put a hat on when outside or any breeze irritates his ear. I would put a call into the Dr. though- you never know what's up. Sarah, I send you a private message also.
Donna wife of Rob
by LittleGreys on Mon Jul 13, 2009 12:00 AM
by Lorre_G on Mon Jul 13, 2009 12:00 AM
by onemorehour on Mon Jul 13, 2009 12:00 AM
by garyswife on Tue Jul 14, 2009 12:00 AM
My husband had it for several week's after his surgery but it eventually subsided. In fact I just asked him if he was feeling it anymore and he doesn't even remember having it. Funny!
Jennifer, w/o Gary dx GBM 3/09
by Heritage_Softail on Wed Jul 15, 2009 12:00 AM
I have to laugh at this one. 2 years ago I had surgery and my wife "claimed" I would do this at night. Of course I said she was crazy until.....she produced a cellphone recording. I laughed as she turned on the lights and I was toltally unaware as she was taking video of me sleeping. Anways long story shorter see below medical definintion:
Temporomandibular joint disorder (TMJD, TMJ or TMD), or TMJ syndrome, is an umbrella term covering acute or chronic inflammation of the temporomandibular joint, which connects the mandible to the skull. The disorder and resultant dysfunction can result in significant pain and impairment. Because the disorder transcends the boundaries between several health-care disciplines — in particular, dentistry, neurology, physical therapy, and psychology — there are a variety of treatment approaches.
Stress can cause this and other events as well. Good luck and I am still "clicking/Pooping" away but less. Have to let go and breathe and th eresults are suprising!
DX Nov 07
by oceanswimmer on Thu Jul 16, 2009 12:00 AM
by Tortuga on Fri Jul 17, 2009 12:00 AM
My husband had a clicking sound in his head that seemed to corospond to his heart beat. It was more pronounced when he was lying down AND I could hear it too by pressing my ear against the right side of his head. It went away about a year after surgery.
by Weblinx on Mon Sep 01, 2014 05:53 AM
Im also experiencing a sound clicking on my head......What's this?
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