GBM: popping clicking sound in head?

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GBM: popping clicking sound in head?

by heart_and_soul on Sun Jul 12, 2009 12:00 AM

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OK, another thing we don't understand and have never heard of before: Andy says he hears a popping and clicking sound inside his head. (GBM/PNET left temp lobe, resected 33% 1/13/09, conventional Tem/Rad, has had three rounds of 5/23 Temodar.) He says it's not steady, like his pulse. It's more like popcorn, irregular. Comes and goes. No pain, just this bothersome clicking.

Any ideas? Call doctor?

Thanks,

Sarah

mom of Andy 26 dx GBM/PNET 1/09

RE: GBM: popping clicking sound in head?

by madonnav on Sun Jul 12, 2009 12:00 AM

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Sarah;

 There really seems to be all kinds of odd symptoms with the miseable thing.  Rob doesn't have any clicking but some buzzing.  He also feels really cold inside his ear.  Have asked the NO and he has no answer- he sees nothing looking into the ear and it is not cold to the touch.  Go figure- he also has to put a hat on when outside or any breeze irritates his ear.  I would put a call into the Dr. though- you never know what's up.  Sarah, I send you a private message also. 

Donna wife of Rob

RE: GBM: popping clicking sound in head?

by LittleGreys on Mon Jul 13, 2009 12:00 AM

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My mom says she hears a "ticking" noise inside her head. She first noticed it after her first surgery in Apr 08, while still in the hospial after her surgery. Not sure how long it lasted, maybe a few weeks. Then nothing until about two weeks ago. She had a second surgery Apr 09, but didn't notice the ticking until July 09. The first time we thought it may have somthing to do with the chemo wafers they implanted. She did have the wafers this past surgery also. We have no idea what it is, but we sure are curious!

RE: GBM: popping clicking sound in head?

by Lorre_G on Mon Jul 13, 2009 12:00 AM

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I am only auggesting this as a maybe - I have seen a few patients who have bone flap issues.  The bone flap doesn't fit exactly snuggly and makes a popping/clicking sound.  Again, I'm not saying this is what it is, but I have seen that with a few patients.  It can drive you crazy.

onemorehour onemorehour
(Inactive)

RE: GBM: popping clicking sound in head?

by onemorehour on Mon Jul 13, 2009 12:00 AM

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My  husband has this.  It's the titanium plate and screws. 

RE: GBM: popping clicking sound in head?

by garyswife on Tue Jul 14, 2009 12:00 AM

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My husband had it for several week's after his surgery but it eventually subsided.  In fact I just asked him if he was feeling it anymore and he doesn't even remember having it.  Funny!

Jennifer, w/o Gary dx GBM 3/09

Heritage_Softail Heritage_Softai...
(Inactive)

RE: GBM: popping clicking sound in head?

by Heritage_Softail on Wed Jul 15, 2009 12:00 AM

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To All,

I have to laugh at this one. 2 years ago I had surgery and my wife "claimed" I would do this at night. Of course I said she was crazy until.....she produced a cellphone recording. I laughed as she turned on the lights and I was toltally unaware as she was taking video of me sleeping. Anways long story shorter see below medical definintion:

 

Temporomandibular joint disorder (TMJD, TMJ or TMD), or TMJ syndrome, is an umbrella term covering acute or chronic inflammation of the temporomandibular joint, which connects the mandible to the skull. The disorder and resultant dysfunction can result in significant pain and impairment. Because the disorder transcends the boundaries between several health-care disciplines — in particular, dentistry, neurology, physical therapy, and psychology — there are a variety of treatment approaches.

Stress can cause this and other events as well. Good luck and I am still "clicking/Pooping" away but less. Have to let go and breathe and th eresults are suprising!

Damon

DX Nov 07 

 

RE: GBM: popping clicking sound in head?

by oceanswimmer on Thu Jul 16, 2009 12:00 AM

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My son reported something similar a few nights ago.  He said he had a mild throbbing pain, in/behind his ear, where the surgery scar ends. About a half hour after the pain started, he said he felt like something popped, and then he had a sensation of water running down the inside of his ear. There was no fluid in his ear. I called his dr who said that it could be a bone flap or metal issue, something shifting, he said there can be all kinds of strange sensations in the surgery area, but he also suggested that we move the MRI up, so we could check and hopefully all feel better.  We are going for the MRI on Sunday.  The dr also said that if there was any drainage from his ear, or increased neurological symptoms or severe headache, to go to the ER.  The next morning, my son said the pain and water running feeling was gone.

RE: GBM: popping clicking sound in head?

by Tortuga on Fri Jul 17, 2009 12:00 AM

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My husband had a clicking sound in his head that seemed to corospond to his heart beat. It was more pronounced when he was lying down AND I could hear it too by pressing my ear against the right side of his head. It went away about a year after surgery.

 

 

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