anyone ever diagnosied w/ stage 0?? and any input on it would be great?? new to this

my aunt who is 85, has had 2 years of high elevated white blood cells. without any no reason. you would think she is 65, she is outgoing, her mind is fully there and dresses to the T. anyway i decided to take this furhter cuz, of her counts, i finally ask the dr for a referal to a hemo/onc. so we went this past april and the dr didnt want to do a bone biospy yet w/ her age etc... but she did take blood and examed her and the only complaint my aunt has was the chills and weight loss. the dr said back in april we will send the blood work out to the lab and if there is any red flags she would call. so u know no news is good news. WELL wrong!!! i took my aunt this past monday 3 months later thinking all was ok, no leukemia etc.. we did have to see anthor dr in the office beacuse the other dr was on vac. so this dr. said to us did dr. **** call u w/ the results 3 months ago. i said NO, I am her health proxy as well. he said it came back leukemia probably a stage 0. slow growing... but i am so upset with this dr. that no phone was made 3 months ago. so my aunt was not notified about this or I. so i am taking this furhter as i wouldnt want this dr. doing this to anthor patient. so i wanted to know with stage 0 any info from someone would be great??? thanks soooooooooo much...a very concerned neice that loves her aunt

Hi. I have cll with a wbc of 81,000. At 53 years old and I feel great.However I do feel your concern greatly. I have found two great places for help. #1  City of Hope , lots of great info.  #2  LLS.org,  aka The Leukemia & Lympohma Society. Find the local office and the wealth of free info is great. They also have info and will send it to your house on all types of cancers free.

I hope this will help you. Let me know.

Endmill  

with stage 0 and indolent you dont have all that much to be concerned about.  I had stage 0 initially and went into a 'wait and watch' and after time (14 months) it went aggresvie on me and i had to take 6 months of chemo. so just watch it with periodic blood tests and dr exams.

and just to be clear, be concerned--very concerned as you are, but living with CLL now I have moved from worrying stages as it just doesnt get you anywhere positive.  

 I go in now every month for blood tests and twice a year for bone marrow/scan tests.