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Any Insight On Sarcoma In The Lungs?

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Christine24
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Subject: Any Insight on Sarcoma in The Lungs?
Date: 12/25/2005
Hello,
I have very limited information regarding my 75 year old aunt who has sarcoma. Here is what I do know, she has had 1 tumor removed from her foot about 10 years ago, and had radiation that followed. She went in nov 2005 to have a tumor removed from her back, and they found 2 masses on her lungs. they did not do the surgery to removes the mass on her back. this is from the findings of her chest xray and ct scan: Large masses in the right hemithorax. One is likely to be pulmonary in origin, the other is centrally located and may be pulmonary-hilar-mediastinal. findings suggest neoplasm.

she had a biopsy last thursday and has had to have 3 chest xrays since then (not sure why?) and she goes back to the dr this thurs to discuss treatment options, however since the beginning of Nov, she has had dificulty breathing and gets short of breath very quickly. I am trying to not think the worst, however the info I do have does not sound promising. Does anyone have any feedback on the info I posted here? anything would be helpful. thank you
Subject: Sarcoma of The Leg
Date: 02/17/2006
Hello,

I'm trying to get in touch with someone that is going through the same as I. My bestfriend was diagnosed with Sarcoma in her foot that spreaded up her leg. When she took the PET sacn they showed the tumor in her foot and her leg, also a spot on her lungs. I didn't know that it could have spreaded to her lungs. They are not focusing on her lung as much as her leg. She has been throgh two different treatments of chemo. nothing is working so far. She has also had radiation on her leg, but still no go resulsts. She needs to take a MRI, but feels as thought she can not take it because the wound has opened up. I try to encourage her as much as possible but she is falling into a deep deppression, that I can not get her out of. What can i do. She is 37 year old Afro American, Why did this have to happen to her so soon in her life? Can you help me cope with this situation..... Can someone tell me the right thing to do at this point. I don't want to give up, but she is becoming so mean and evil that I don't know what to do at this point....
Subject: Sarcoma
Date: 05/05/2006
My experience may help. April 2005 soft tissue sarcoma was the diagnosis from a tumor removed from my back. Further surgery in June to take out more tissue. Radiation treatments followed.
Further surgery was planned in Nov but cancelled when x-rays showed 20 cancerous nodles in my lungs. two treatments of adriomycin chemo were taken but scan showed that was doing no good. More radiation was given. I have completed 5 cycles of ifosfamide chemo and after two cycles scan showed the size of largest nodules had been reduced. A cycle consists of a week of all day treatment. I'm scheduled for scan next week and also a 6th cycle starting 15 May. Apparently medics have to experiment with chemo tools to find the best treatment for a specific case.
Suggestion is to get started on chemo.
Best of luck.
Subject: Sarcoma in Lungs
Date: 06/30/2006
I had a 9cm tumor (fibro myxoid sarcoma) removed from my upper arm in 1995 and 35 treatments of radiation after that. 5 years later (1999), nodules began showing up in my lungs and in 2004, my surgeon removed 25 nodules from all sections of my lungs. There was one nodule that they could not remove going in from the front so that one is still there and measures 5.2cm by 8.5cm as well as several other smaller ones.

In Feb, 2006, I started the Perifosine clinical trial and was told about the gastrointestinal side effects, but went into the trial with the idea that if anyone could take it, I could.

Initally, the first week or so things seemed to be OK and I thought I would be able to tolerate it, but it appeared to build up in my system over time making me sicker. After 6 weeks I took a two week break to get myself back to feeling better and then went back on it for another 4 weeks. My scans indicated "grossly unchanged" tumors and no new tumors. I agreed to continue the clinical trial and was on it another 3 weeks when the sickness started getting worse. I was working full time, (working from home on Fridays) but the nausea, diarhera and bad feeling began to move into the workweek. So I was sick Friday, Saturday & Sunday and carryover into Mon, Tue and Wed. Then I started anticipatory sickness on Thursday before I would start another regimen on Friday. After being sick from Feb to June, I decided to come off the trial. I was told that if the perifosine worked, I would be on it for the rest of my life and right now I am too healthy to be sick all the time. However, I can't say for sure what I would do if I did not have the choice. My cancer is Fibromyxoid Sarcoma and is is considered low grade for the time being.
I'm praying that they will figure out a way for perifosine to have less side effects.
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