Early study found it had high accuracy, but experts say it won't replace colonoscopy anytime soon
by PacosDad on Sat Jul 25, 2009 12:00 AM
On 7/23/2009 kristi24 wrote:Hello my name is kristi and my five yr old was diagnosed with a level 4 gbm 1 mo ago. I am so afraid!!! All ive heard about the survival of gbm is awful. Please tell me have you heard of any long term survivers. I just want to let you know my heart and prayers go out to you and your family.
Hello my name is kristi and my five yr old was diagnosed with a level 4 gbm 1 mo ago. I am so afraid!!! All ive heard about the survival of gbm is awful. Please tell me have you heard of any long term survivers. I just want to let you know my heart and prayers go out to you and your family.
My heart goes out to you. While my wife is sick with the GS-GBM, we have a 5 year old son and a 4-month old. I can't imagine seeing my son suffer so. I'm having trouble trying to figure out how to explain to my son what's happening with his Mom and why she's at the doctor so much... much less try to explain what all the poking and tests are about if it were him.
My wife was paranoid that somehow our baby could have gotten this in-utero since she most certainly had the cancer growing while she was pregnant. We've heard from at least three doctors, neurosurgeons and neuro-oncologists that they have never heard of these passing to a baby during pregnancy.
Best of luck to you and your daughter to beat the odds. I just heard of a singer here in Sacramento who is holding a fund-raiser concert. He just passed 12 years post-diagnosis with a GBM.
by nati17871 on Thu Mar 25, 2010 07:31 PM
"Hello my name is kristi and my 5 yr old was diaganosed with a level 4 gbm im a so afraid for her! I could not amangine living life with out her. My heart and prayers go out to you and your family. I was wondering if you have heard any thing postive about people surviving,because all ive heard is negative. Just to let u know my daughter is in her second week of radation and her second week of chemo. She is taking temdor. So far it has not made her sick,though she does seem to be more tired than usal"
My son is actually 7 and he was diagnosed with Giant cell glioblastoma in Sept 09. Since then he has had surgery and did the chemo and radiation. Now he is doing more chemo. This has been very hard for me. I just wanted to know how your daughter is doing and if actually the treatment is working. We will keep all of ou in our prayers..
by Sbuggg on Thu Jun 30, 2011 02:21 PM
by ortizgen on Fri Jun 15, 2012 04:29 PM
by ortizgen on Fri Jun 15, 2012 04:42 PM
by siblingof on Fri Jun 15, 2012 05:08 PM
by Egopotimus on Fri Jun 15, 2012 09:20 PM
My son had a giant cell gbm resected in 09 when he was 11. Since then he's had radiation and chemo with Temodar, Avastin and Irrinotecan. Throughout our ordeal he was able to continue to play on a soccer team, attend school and have a good quality of life. Thank goodness for our local community of friends.
He is now 14 with no recurrence. He is still in his advanced classes at middle school although he's had to work harder than before. Still loves soccer. Still loves Xbox. Still our kid in every way. :)
I've learned that despite the scary statistics for parents, kids can have a great quality of life one day at a time.
by ortizgen on Sat Jun 16, 2012 08:51 AM
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