Are there any 4th stage survivors on here?

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Are there any 4th stage survivors on here?

by ramblinrose on Wed Jul 22, 2009 12:00 AM

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My Mom is very interested in meeting/talking to other 3rd or 4th stage Cervical Cancer Survivors like herself. However it seems they are few and far between (as in we have only found one other). If there are any on here please let me know, I would like to hear your story.

RE: Are there any 4th stage survivors on here?

by Daryl on Fri Jul 24, 2009 12:00 AM

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On 7/22/2009 ramblinrose wrote:

My Mom is very interested in meeting/talking to other 3rd or 4th stage Cervical Cancer Survivors like herself. However it seems they are few and far between (as in we have only found one other). If there are any on here please let me know, I would like to hear your story.

Hey Ramblin Rose,

There are alot of 3rd & 4th stage survivors out here...I happen to be one...don't get too caught up in the stage / level, as you have probably already discovered,(we all did the mad scramble for a internet quick answer/fix)...there are soooooo many different descriptions for EVERY stage...it's quite confusing and many times very upsetting...

I was fortunate to find a doctor who chose to deal with me personally as opposed to getting caught up in what the hell stage I was at...

Being diagnosed with cancer is scary enough without adding anymore stress...

Please whatever you do stay focused on the positive.... because there are a lot of options and choices out their for your mom. 

This is going to be are hard bumpy road for your mom and she is going to need all the support you can give her...!!!!!

Although cancer WILL change your mom's life (as well as all of her loved ones) forever...it does NOT automatically equate to a death sentence.

When was your mom diagnosed? Does she have ABSOLUTE confidence and trust in her doctor???, In my opinion that is the # one priority. If not she won't be able to make very important choices without second guessing herself.

My prayers are with you and your mom,

Daryl

RE: Are there any 4th stage survivors on here?

by cindy63 on Fri Jul 24, 2009 12:00 AM

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I was originally a stage 1B1, but ended up with three additional recurrences.  I just wanted to share that my last treatment with Taxol and Avastin appears to have cleared up my cancer.  Most of my other tumors were removed surgically and followed by radiation treatment.  I even had, after the fist recurrence, cisplatin and topotecan chemotherapy, but still ended up with recurrences.  It was like playing "whack a mole" as they popped up.  With this last recurrence, we removed one tumor, and left a problematic one that would have been difficult to remove.  We treated it as a "measuring stick" to test the effectiveness of the chemo.  My last PET scan showed no trace of the previous tumor!  Note:  Avastin is not FDA approved for cervical cancer although a recently published study is showing it has some effectiveness.  It's also very expensive.  For me it is $8000/dose times a total of 6 doses!  I'm appealing for insurance coverage but expect to be denied.  However, my family was willing to pay the cost since it appears to be working!

RE: Are there any 4th stage survivors on here?

by ty3239 on Wed Nov 18, 2009 02:47 AM

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Hi Cindy,

I have a very similar situation to you as well.  I had varying stages according to 3 different docs in the beginning, but averaged around 1b and 2b.  I had radical hyst, cisplatin, and radiation.  My cancer came back one month after radiation/chemo.  I started cisplatin, taxol, and avastin in Dec 08 for 4 months.  I paired it with many alternative treatments.  My cancer disappeared in front of our eyes.  I had 5 tumors before we started and after 6 treatments, they were all barely visable.  My cancer is now back, doing the same thing and I'm waiting to see docs to determine treatment.  Are you doing any alternative treatments?  I wanted to tell you that your doctor's office can apply to Genentec to give your hospital replacement drugs - they accepted me as a patient b/c I was turned down as well.  Look into it. How are you doing now and what is the status of your last scans?  I would love to talk more with you.  I hope you are doing great!

RE: Are there any 4th stage survivors on here?

by babygirl1176 on Sat Mar 13, 2010 10:19 PM

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Hi, Cindy

I'm sorry to hear that ur cancer is back, i hope that further treatment;s work for u. I want to ask when u had ur radical hysterectomy did they take ur cervix out?..

RE: Are there any 4th stage survivors on here?

by DawnAsurvivor on Tue Jun 29, 2010 09:22 AM

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I am a stage 4 survivor just got my 5 years all clear yesturday i am 31 and new on here.

RE: Are there any 4th stage survivors on here?

by mmagooh on Tue Jun 29, 2010 12:24 PM

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Hi there...My sister has been battling melanoma for the last 10 years, with her latest results indicating her cancer has spread to her liver.  she is 38 years old.   I am encouraged to hear there are survivors out there.  can you share with me what treatments you underwent?

RE: Are there any 4th stage survivors on here?

by skicrazy on Tue Jun 29, 2010 02:15 PM

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On Jun 29, 2010 12:24 PM mmagooh wrote:

Hi there...My sister has been battling melanoma for the last 10 years, with her latest results indicating her cancer has spread to her liver.  she is 38 years old.   I am encouraged to hear there are survivors out there.  can you share with me what treatments you underwent?

Raising her glutathione levels will help.  Have you heard of MaxGXL?

RE: Are there any 4th stage survivors on here?

by sciencerocks on Wed Oct 12, 2011 07:56 PM

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Hi Ramblin Rose

I'm sorry to hear of your mother's situation.  I hope I can offer some words of support.

Eleven years ago I was diagnosed with Stage 3 Cervical Cancer.  It was so devastating!!  I literally froze on the outside and the inside when I found out.  Fortunately I was able to be treated at an outstanding hospital and by outstanding doctors and nurses.  I went through many weeks of combined radiation and chemo, landed in the hospital 4th of July weekend, lost my hair, my appetite (that's saying something!!), 30 lbs., but never lost hope.

After the first set of treatments I was told to resume life to the best of my ability and hope for the best.  I did what the doctors said and returned to my teenage son, my dogs and my friends.  After about 4 more months passed, I was scheduled for surgery to correct some internal radiation damage.  At that time my doctor told me he found a new tumor and that I needed to go home and get my life in order.  Deja vu all over again!!  I did what the doctors said and got a will made, appointed a guardian and prepared to live out my days as best I could.   They offered my another round of chemotherapy which I accepted. 

To make a long story short, the second tumor either disappeared or never existed.  Ten years later  I am cancer free and having a great life.  Physically speaking I am somewhat comprised from my treatments, but emotionally I am much stronger.  I appreciate every day and am thankful for every morning I wake up and see I am still here!!

My son is now an adult and doing well in his chosen career.   I am hoping for a weddng and grandchildren someday.

God bless you and be strong.  Prepare for the worst, but always hope for the best!! It can and does happen.  Please let me know if there is any way I can be of help.

RE: Are there any 4th stage survivors on here?

by mesicoriloni on Wed Mar 21, 2012 04:21 AM

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Yes, I was diagianoised with 4th stage cervical cancer 15 years ago, and yes there are those of us who are survivors of this. At first my doctor thought it was a fluke or a misreading of the test. So like any good doctor he retested me since I had never had a abnormal pap before. Then he sent me to a outside doctor thiking possibly it was the lab that had made a mistake. But needless to say the test confirmed 4th stage cancer. Well to no surprise we also at this time was in the process of retiring from the military. So I informed my doctors find me a physicain where we were going set the appointment up, and I would go. I did go I was tested with my new doctor who I love dearly and who is amaizing also over all of the OBGYN department at University Medical Center in Jackson Mississippi and happened to have went to school with my doctor in Kingsbay Georgia. He tested me It was positive for the 4th time and watched me for the next year testing every 2 months after that he had me come in for a procedure using a lapriscopic blade that cits and corterizes the tissue after administering a shot in the cervics since there is no feeling naturally I did not feel it. He removed a large portion of tissue since he had pinpointed the areas he knew to hace cancer cells. Like I said he is a wonderful doctor. Also I never took chemo only because I had watch my mother who had lung cancer and my best frined who was as close to me as a sister have breast cancer each took chemo and I lost both of them the body can not recover fast enough once the cells that are good have been destroyed. I swore if I came down with cancer and I did I would never take chemo. Cancer robs a person of life after I found out I did research on cancer immunity vitaims, vegetables, anything that strengthen the immune system. I have continued to take Royal Jelly 500 mg which if anyone reads about has 121 cancer fighting properties I can not say that this vitamin or herbal capsule works for everyone but it helped me along with my doctor. You must keep a healthy attitude and a cleased mind for fighting cancer of any type is a up hill battle. Not to be taken likely, buit to be understood by those who have it, study it, fight it, beat it, and win. Never give up for life is to short and those that we lose to this deadly disease can never be returned to us that are left behind. Fight like there is no tomorrow. Fight!!!!!!

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