what can we do?

2 Posts | Page(s): 1 

what can we do?

by Lori_Al on Mon Jul 27, 2009 12:00 AM

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My husband was disnoged with colon cancer to start with about three years ago. We thought we had it under contol almost cured but all of the studden it took off again and haven't been the same since. He ended up with a blood clot in the leg. We've been taking chemo for about two and half years and then we had a reaction to one on the treatments and then they ran out of teatments to give him. We had went a couple of months with him feeling really good. Then all of the sudden  he started feeling pain close to his liver they did a CT scan and sure enough that's where it has moved to.  They tried to see if they could do surgury but it was growing from the main blood vel to his liver one cut he would die. So we did ratation which only shrunk 3/4 of an inch but the catch is only one month of ratation and that's it no more because it will hurt the rest of your organs. So here we go again!!!!  A few months later he starts getting not able to have a bowl movement off to the hospital again with emergency surgery with a bockage at the small intestine then ended up with pnomnia. He was in the hospital for three weeks then I get him home and he has been going down hill ever since. Now I might end up calling hospice in. Did we do the right thing? Is their anything else we can do?  

RE: what can we do?

by lccakes on Tue Jul 28, 2009 12:00 AM

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I am so sorry to hear about the recent decline and spread to the liver.  Not sure if you are close to NCI in Bethesda, MD, but they were able to review my mom's records and set up an appointment within a week and I feel sure most research centers would be able to do that. They do want people for clinical trials as long as they are strong enough to participate (platelet count high enough, have enough healthy liver tissue left, etc).  My mom did not benefit from the trial she participated in, but we did get lots of support and information which was a big help to us. 

I think it is wise to get hospice involved.  In the state of Virginia, you can have  hospice involved and still be involved in a trial and chemotherapy but that is not always the case in all states.  Just because you call in hospice does not have to mean that you aren't going to keep looking for help.  The doctor will usually agree to hospice if they think the person has less than 6 months and if cancer has returned, that is usually the case. However, there are plenty of success stories of people that have lived many months longer than that and still been getting hospice.  If you do get hospice involved, I would highly recommend getting these books from them or from the bookstore: FInal Gift and Crossing the Creek (written by Michael Holmes). The first one can be gotten in any bookstore. The second one has to be borrowed from a hospice or ordered.  They are essential to helping you get through all of this.  I wish you all the best. 

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