ovarian cancer

my mum has stage 3c ovarian cancer which was dignosed in oct 07,she has had surgery and chemo,and was clear for a year but is now undergoing more chemo,my mums form of ovarian cancer is rare,and we have been told it will keep coming back and to expect that she will have chemo for 6mths a rest for 6 mths then back to it again.she is doing realy well tho,there is so much they can do now.keep doing what your doing.stay positive.

 

On 7/30/2009 amyhutcheson wrote:

my mum has stage 3c ovarian cancer which was dignosed in oct 07,she has had surgery and chemo,and was clear for a year but is now undergoing more chemo,my mums form of ovarian cancer is rare,and we have been told it will keep coming back and to expect that she will have chemo for 6mths a rest for 6 mths then back to it again.she is doing realy well tho,there is so much they can do now.keep doing what your doing.stay positive.

Hello Amy, what kind of Ovarian Cancer does your mother have? I have OC too and have been told to expect that I'll need to treat it as a continuing situation with chemo off and on the rest of my life to "put out fires" as they crop up. I am doing really well and can do most activities that I enjoyed before my diagnosis. I did retire last December so I don't have to get myself to work any more =) I LOVE my support groups. I go to one for women only with gyno cancers and a mixed-gender mixed-cancer
group too which is special in that, at the same time in another room, there is a group for our spouses, partners, caretakers, etc. Where they can share their concerns. Each is led by a professional therapist.

Hugs,

Ann

 

 

On 7/30/2009 kayaxrus wrote:

 

On 7/30/2009 amyhutcheson wrote:

my mum has stage 3c ovarian cancer which was dignosed in oct 07,she has had surgery and chemo,and was clear for a year but is now undergoing more chemo,my mums form of ovarian cancer is rare,and we have been told it will keep coming back and to expect that she will have chemo for 6mths a rest for 6 mths then back to it again.she is doing realy well tho,there is so much they can do now.keep doing what your doing.stay positive.

Hello Amy, what kind of Ovarian Cancer does your mother have? I have OC too and have been told to expect that I'll need to treat it as a continuing situation with chemo off and on the rest of my life to "put out fires" as they crop up. I am doing really well and can do most activities that I enjoyed before my diagnosis. I did retire last December so I don't have to get myself to work any more =) I LOVE my support groups. I go to one for women only with gyno cancers and a mixed-gender mixed-cancer
group too which is special in that, at the same time in another room, there is a group for our spouses, partners, caretakers, etc. Where they can share their concerns. Each is led by a professional therapist.

Hugs,

Ann

 

 hi ann,my mum has what they call ovarian serous cancer,she had taxol and carboplatium chemo first,then surgery and debulking then more chemo,and now its back she is havinh taxol and caelyx chemo,she is just about to have her second lot.what type of o.c do you have?my mum is 61 and retired,and is about to try and start up a support group,as where we are she has struggled to find groups surrounding ovarian cancer.are you having treatment at the moment?it sounds like you keep yourself very busy,and am glad you have found support in groups.how have your family dealt with things.hope you are keeping well.lots of love.x

 

On 7/31/2009 amyhutcheson wrote:

 

On 7/30/2009 kayaxrus wrote:

 

On 7/30/2009 amyhutcheson wrote:

my mum has stage 3c ovarian cancer which was dignosed in oct 07,she has had surgery and chemo,and was clear for a year but is now undergoing more chemo,my mums form of ovarian cancer is rare,and we have been told it will keep coming back and to expect that she will have chemo for 6mths a rest for 6 mths then back to it again.she is doing realy well tho,there is so much they can do now.keep doing what your doing.stay positive.

Hello Amy, what kind of Ovarian Cancer does your mother have? I have OC too and have been told to expect that I'll need to treat it as a continuing situation with chemo off and on the rest of my life to "put out fires" as they crop up. I am doing really well and can do most activities that I enjoyed before my diagnosis. I did retire last December so I don't have to get myself to work any more =) I LOVE my support groups. I go to one for women only with gyno cancers and a mixed-gender mixed-cancer
group too which is special in that, at the same time in another room, there is a group for our spouses, partners, caretakers, etc. Where they can share their concerns. Each is led by a professional therapist.

Hugs,

Ann

 

 hi ann,my mum has what they call ovarian serous cancer,she had taxol and carboplatium chemo first,then surgery and debulking then more chemo,and now its back she is havinh taxol and caelyx chemo,she is just about to have her second lot.what type of o.c do you have?my mum is 61 and retired,and is about to try and start up a support group,as where we are she has struggled to find groups surrounding ovarian cancer.are you having treatment at the moment?it sounds like you keep yourself very busy,and am glad you have found support in groups.how have your family dealt with things.hope you are keeping well.lots of love.x

Hello Amy-Mine is plain old ovarian/peritoneal cancer diagnosed in March 2008. I had had the Taxol-Carboplatin first, 2 cycles, then surgery, then continued with Taxol/carbo. combination. I got a lot of numbness in my feet and some pain so I was changed to Taxatere. We were about to put me on a maintenance dose but at the end of October I found swollen lymph glands in my neck and biopsy showed ovarian cancer cells there. CT scan showed those and some new ones in my abdomen and groin. They put me on Doxil and it seemed to work but not real effective. I went on a study for PEG Irinotecan a couple of months soon after. I have been taking that till this week when my latest CT scan showed that one tumor that had gone away was back and my CA-125 has been slowly going up. From 9 to 20 to 30 in the latest tests. I see my Dr. next Thursday and he'll examine me and decide which drug to use next. The most recent has been pretty kind to me except for random dairrhea. I am 65 and live in Southern California where there are lots of groups to choose from. I feel mostly good and went kayaking this morning and am preparing our little tent trailer for a camping trip in a couple of weeks. I find I have more energy when the activity is fun =)

Best of luck to you and your mom. Write any time. Where does she live?

Hugs,

Ann

 

What kind of rare ovarian cancer does your mom have and what chemos is she on?   I, personally have not heard of 6mo on and 6off....does it spread inbetween that time of off and on?   Waiting to hear....Curly66

HI Ann,   read your story on your cancer.   What was your maintenance program going to be?   I am on Doxil and have been for a few months now...seems to respond so far.   Have you been on Avastin yet?   What hospital do you go to where you live...I used to live in orange county and wish I were back there...know of any good rentals?   I live alone and pretty much have delt with this horrible disease by myself....I am a young 67 senior full of energy with no support system as I have no family here as I lost my husband a couple of years ago to lung cancer....Curly66. 

 

On 8/8/2009 curly66 wrote:

HI Ann,   read your story on your cancer.   What was your maintenance program going to be?   I am on Doxil and have been for a few months now...seems to respond so far.   Have you been on Avastin yet?   What hospital do you go to where you live...I used to live in orange county and wish I were back there...know of any good rentals?   I live alone and pretty much have delt with this horrible disease by myself....I am a young 67 senior full of energy with no support system as I have no family here as I lost my husband a couple of years ago to lung cancer....Curly66. 

Hi Curly, So sorry you have to deal with this by yourself! I really like this site for connecting.

You know, they didn't even tell me what my maintenance was going to be. Just charged ahead with dealing with the recurrance. They started me with Doxil for a couple of cycles but it allowed some nodes to grow.  I was not on it very long and did not have any of the advertised side effects of red peely hands or rash at areas of tight clothing. Have you had any of that? We quit and I went on a trial of PEG Irinotecan, a chemical cousin of Topotecan. It seemed to be doing well for quite a while but recently my CT Scan showed that a node that had shrunk to invisibility, reappeared =( and my CA-125 had been steadily going up.

I met with my oncologist Thursday and he is putting me on Topotecan which is a 21 day cycle which starts with 3 days in a row. Side effects might be fatigue, low white cell count (affects bone marrow), and hair loss. Won't mind being bald if diarrhea would go away =).

I have never had Avastin. My status is recurrent platinum resistant O.C.

My Dr. is John V. Brown of Rettenmaier and Brown. The office is across the street from Hoag Hospital in Newport Beach. My Dr. has an infusion center at his office with a nice view of the ocean. I live in Santa Ana and the hospital I go to is Saint Joseph in Orange where he has priveliges.

I am 65 and married with 2 grown daughters, one in New York City and one in Santa Barbara. Lots of support from family, friends, and neighbors. There are rentals in my neighborhood but very expensive =(. Where do you live now?

Please write and tell me how you are doing.

 

 

On 8/8/2009 kayaxrus wrote:

 

On 8/8/2009 curly66 wrote:

HI Ann,   read your story on your cancer.   What was your maintenance program going to be?   I am on Doxil and have been for a few months now...seems to respond so far.   Have you been on Avastin yet?   What hospital do you go to where you live...I used to live in orange county and wish I were back there...know of any good rentals?   I live alone and pretty much have delt with this horrible disease by myself....I am a young 67 senior full of energy with no support system as I have no family here as I lost my husband a couple of years ago to lung cancer....Curly66. 

Hi Curly, So sorry you have to deal with this by yourself! I really like this site for connecting.

You know, they didn't even tell me what my maintenance was going to be. Just charged ahead with dealing with the recurrance. They started me with Doxil for a couple of cycles but it allowed some nodes to grow.  I was not on it very long and did not have any of the advertised side effects of red peely hands or rash at areas of tight clothing. Have you had any of that? We quit and I went on a trial of PEG Irinotecan, a chemical cousin of Topotecan. It seemed to be doing well for quite a while but recently my CT Scan showed that a node that had shrunk to invisibility, reappeared =( and my CA-125 had been steadily going up.

I met with my oncologist Thursday and he is putting me on Topotecan which is a 21 day cycle which starts with 3 days in a row. Side effects might be fatigue, low white cell count (affects bone marrow), and hair loss. Won't mind being bald if diarrhea would go away =).

I have never had Avastin. My status is recurrent platinum resistant O.C.

My Dr. is John V. Brown of Rettenmaier and Brown. The office is across the street from Hoag Hospital in Newport Beach. My Dr. has an infusion center at his office with a nice view of the ocean. I live in Santa Ana and the hospital I go to is Saint Joseph in Orange where he has priveliges.

I am 65 and married with 2 grown daughters, one in New York City and one in Santa Barbara. Lots of support from family, friends, and neighbors. There are rentals in my neighborhood but very expensive =(. Where do you live now?

Please write and tell me how you are doing.

Hi Ann...so pleased to hear from you...feel like I gained a friend.   I do hav e support of family and friends but none live here in Nevada that is why I am trying to get out of here and back to Ca. where I am orginally from.   I own a home and cant even sell it without taking a major loss and renting it out worries me as people dont care about what doesnt belong to them.   It sounds like you are in the right places for care...I used to live in the foothills of Mission Viejo..loved it there.   I had a friend who went to St. Josephs and she spoke highly of it.  Yes I have had some minor rashes, twice I believe in a years time, a couple of times with mouth sores but overall that has been about it.   Have done well on Doxil so far and I have been on it for a long time.  I have lost my hair twice when I was on taxol/carbo, and I hate being bald...wigs are hot and I refused to go without one, it's a trade off I guess when it comes to bald versus diahrea huh?   Lots of luck on your Thurs. appt. and prayers are with you and all of us others out there....keep in touch.  Curly66

 

Hi Curly =)

My appointments this week are for Tue, Wed, & Thu for the Topotecan chemos then nothing for 18 days and do over.

It sounds like you are doing well on Doxil without bad side effects, that's good!

 We live in the nice old neighborhood in North Santa Ana, Floral Park.

Yes, this is a nasty time to try to sell a house. Where in Nevada? North or South? I have rented and treated it as my own but also have rented out a nice old family home and had to evict them for bad behavior etc. =(

Just got home from an Angels vs Rangers ball game. Angels won and I didn't poop myself =)

Take care and write any time, hugs,

Ann

 

On 8/8/2009 curly66 wrote:

What kind of rare ovarian cancer does your mom have and what chemos is she on?   I, personally have not heard of 6mo on and 6off....does it spread inbetween that time of off and on?   Waiting to hear....Curly66

 hi curly,my mum has ovarian serous cancer,they can not completely get rid of the cancer as deposits keep growing back,so we have been told that it will be a case of having treatment,then a break then back to the chemo for as long as it is working.my mum is doing well,it has become part of our life,i would do anything to have the treatment for my mum,i want her to be enjoying her life,not fighting for it,but we do not get a choice in life do we.what type of o.c do you have?hope you are doing o.k.take care.x x x