Granulosa cell

Hi everyone, I am new to all this... Just last month, I was diagnosed with Granulosa cell cancer. I had a mass in my left ovary just over 5cm, and after having the ovary and tube removed, is when we were told it was Granulosa cell. I have tried to do as much research as i can and i am waiting the results from my CT's and The Inhibin levels. They think they got everything, and the tumor was removed with out being opened.I have been told the chances of Granulos cell returning are almost nothing (like 10%). I am wondering if there is anyone who is in a similar situation as i am and what your journey has been like? I am only 24 and like i said this is all new to me.

Thank you for your time! 

 

Yes chances of re occurance are low BUT it can return 10-20 years later (there is documented case of 37 yrs) so never let your Drs tell you are "cured" get Inhibian levels every 2-3 months for  2years then every 6 months for 2 years then after 5 years once a yr. along with the blood test CT scan should be done (this schedule assumes test come back neg) If re occurance happens surgery is usually 1st line of "defense" be sure you are under the care of a gyn Onc that has experience with GCT + is willing to confer with other Dr on latest treament (if needed) this is rare diease with little data on it, It is slow to progress but can be relentless

Hi Ladybug, I was dx July14,09 for a granulosa tumor incased in a very large benign teratoma . Had surgery removed left ovary and tube. Went to gyn onc. he drew more blood to check my inhibin level if it is down from 189 ( anyone know what is a normal range?) and my scans for lungs,pelvis,and abdomen are negative I can wait 3months before checking again without the chemo. I do not want chemo especially since there is not enough evidence it works for this. # doctors said this is rare. I didnt even know what a granulosa was before July14. Since I am home and started researching this is not rare like they say.  There are way too many of us that have this monster. What I want to know is what is it caused from virus, pesticide, genetics, how I got it and how to get rid of it totally. This is not something I want to worry about 24-7 for the rest of my life. I wanted to have hope that because mine was inside of the teratoma and there was no spillage that I will not have a recurrence but then when I think that the inhibin marker is only to detect for granulosa then some of those cells are in our blood already. I will be in touch as I find out any new findings. Willowtree ( :

http://www.gctf.org.nz/#

 Please go to the NZ site for more information out granulosa Cell