Hello there- I have a very confusing situation and wondered if any of you had any insight. My dad (60) was told by his internist that high levels of bence jones protein had shown up in some tests they had run. He also had elevated free kappa light, and many of the symptoms of myeloma (anemia, carpal tunnel in both arms, severe back pain, and lesions on his leg bones). He referred him to an oncologist who did another battery of tests (I'm sorry that I don't know specifics). The oncologist looked over the OLD test results and said it definately looked like MM. So they made an appt for a bone marrow biopsy, and they would also go over the new test results that day before the biopsy.
However, on the day of the biopsy, the doctors office called and said there was no need to do it. My dad went in and met with the PA and she told him that although he had many symptoms, they just didn't feel that it was MM. He was so flustered that he forgot to ask if they found the BJP still. His kappa light chain levels had actually increased since the first test, but they felt that was because he had lots of ulcers or something. They told him to go back to his first doc and get referrals to specialists for all of his symptoms, and to come back in a month to retest just to be sure.
Can you see why this is sooo confusing? Two docs were sure it was MM (and our family went through 3 wks of emotional turmoil that I know you all understand), then they had some kind of conflicting test results and wouldn't do the bone marrow biopsy to confirm? Does anyone have any insight? Can the BJP be present in any other condition?? Should we seek a second opinion? Thank you for your help!