advice

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advice

by virgo1319 on Mon Aug 10, 2009 12:00 AM

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my spouse was diagnosed with colon cancer with met to liver 33 months ago. She has received folfx and avastin,(resistent) removal of 3 inch's of sigmoid, 60% liver resection, lymph ablation, liver microbead radiation, today we learned she is resistent to erbitux. New leasions in mesentary and lungs. I think we are at the end of options. Any thoughts??

RE: advice

by barbrob on Mon Aug 10, 2009 12:00 AM

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  Hi sorry to hear about your wife,,, have you tried .. Milk Thisle   its good for liver cancer  check it out on  google,,, also check out sugar and cancer .... tumeric and cancer.... asparagus and cancer..... Linseed oil and cancer....

  Never give up keep going  and pray lots ....

  God Bless You Both ....

RE: advice

by Agnes1570 on Tue Aug 11, 2009 12:00 AM

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Is clinical trial possible? Don't give up!

RE: advice

by mrready on Tue Aug 11, 2009 12:00 AM

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Virgo,

What about Folfiri?  Not sure if they could add Avastin to it.  It is a standard colon cancer regimen so insurance should pay for it.  I am currently on it and it is my last standard chemo.  My next path is a clinical trial.  I have heard of someone getting mytomycin which is usually used for rectal cancers, but she had success with it for colon cancer.

 Jack

RE: advice

by Mousey on Wed Aug 12, 2009 12:00 AM

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Hi and sorry to hear about your wife. My husband has stage IV, diagnosed a year ago.

I am not sure if your message meant that your wife has only received oxaliplatin and Avastin? My husband's first regime was Eloxatin (oxaliplatin) + Xeloda (capesitabine), then they added Avastin. When Eloxatin was dropped, Xeloda and Avastin alone did not keep the situation stable, so the regime was changed to Erbitux + Xeloda + Camptosar (irinotecan) and it is working well. Has your wife received Camptosar? Camptosar can be given with both Avastin and Erbitux (or Vectibix which is similar to Erbitux just made by another company).

However, please check, I think I read about research that suggests that the KRAS mutation may not be 100% proof Erbitux will not work, it may still work for some patients despite the mutation. I am not sure if insurance covers it though in such case.

Other than that there are not currently many standard options but like someone else said, clinical trials may offer something valuable to your wife. Also some non-standard use of chemo, like Sorafenib (Nexavar), Gemcitabine, Cisplatin usually used for certain types of kidney or liver cancers might be used but your wife's doctors would naturally know a lot more about what might be sensible to test that as they are familiar with her case. Many of these non-standard uses are currently tested in clinical trials but as the medicine itself is approved maybe thay can be used for colorectal cancers even though they are not meant for it originally.

All the best, Mousey

RE: advice

by lisakc on Thu Aug 13, 2009 12:00 AM

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I just heard about the chi machine and infe-red (and I'm spelling that wrong) machine. My sisters  friend swears by it. But I'm hearing alot since I have been recently diagnoised and haven't even started chemo yet. I have a lot to learn. But is it worth a try? Good luck and God bless.  
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