One patient with glioblastoma still alive nine years later
by natbug on Thu Aug 13, 2009 12:00 AM
by SaraF on Tue Sep 15, 2009 12:00 AM
by natbug on Wed Sep 16, 2009 12:00 AM
Thank you so much fo writing me back. What are the side effects of the sandostatin and does help with your tachycardia?
by Sam77 on Wed Nov 11, 2009 07:27 PM
Hello, I am 37 years old and have had neuroendocrine carcinoma with liver mets, I was diagnosed June 20th 2008. I had my gallbladder removed and would experience severe pain in the upper left quandrant for over 9 - 10 yrs since. The doctors had considered I had esophogial spasms and used nitro spray for the pain which helped. I was than referred to a liver specialist in January 08 and had a biopsy which came back negative and CAT scan was re-done after the 3 month period and a change in the scans had confirmed, cancer. I had a total of 9 tumors on my liver and they had found the primary tumor near the small bowel. Nov /08 5 tumors were removed from the left side of my liver and 3 remain on the right and one near my lymph nodes, a portion of my small bowel was also removed. they stopped the circulation on the right side of my liver. i am currently waiting for PET/CAT scans which they will decide if they will remove the right side of my liver. I cannot take sandostaton because it causes cramps to my stomach. I do experience flushing, sweating, nausea, same severe pain and also fatigue. I also experience palpatations and chest pain (not bad though). I usually try not to take anything for the pain, but when it does get its worst i do go to the ER. Get plenty of rest when you need it, I didn't when I was first diagnosed, wanted to keep working, working, only made myself tired, get your rest.
God bless you
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