Need advice and up-date

6 Posts | Page(s): 1 

Need advice and up-date

by kzfamily on Fri Aug 14, 2009 12:00 AM

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I posted a message a few days ago about how the radiologist did a wrong comparison the person compaired his most recent scan to a scan he had back in January and then when he re-did comparison it was unclear as to what he was say.  Well yesterday I spoke to the doctor and she finally got a clear report that was a comparison to the one he had in June.  Unfortunately, now of the news was good all of his tumor had grown.  So she stopped the treatment he was on and they are going to start a new treatment next week.  But it only has a 10 to 20% chance of extending his live a few months.  During my conversation I asked her based on how the tumors are growing what was her best educated guess of how much longer he has to live.  Well she confirmed what I was thinking.  He could have six months if the new treatment works.  If not may be 3 months.

Ok now what do I do.  I am having all kinds of trouble getting him to accept what is happening do we tell him or not.  The thing is what about my kids what do I tell them.  I have been very honest with them during this whole thing if they ask a question I answer it very honestly.  But I don't know how to tell them this.  I knew this day was coming and I thought I was prepared but I am having a little trouble today.  There is only one set of foot prints in the sand today because the Lord is carrying me.

 Please I need some advice.

kzfamily

RE: Need advice and up-date

by kkaye on Fri Aug 14, 2009 12:00 AM

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On 8/14/2009 kzfamily wrote:

I posted a message a few days ago about how the radiologist did a wrong comparison the person compaired his most recent scan to a scan he had back in January and then when he re-did comparison it was unclear as to what he was say.  Well yesterday I spoke to the doctor and she finally got a clear report that was a comparison to the one he had in June.  Unfortunately, now of the news was good all of his tumor had grown.  So she stopped the treatment he was on and they are going to start a new treatment next week.  But it only has a 10 to 20% chance of extending his live a few months.  During my conversation I asked her based on how the tumors are growing what was her best educated guess of how much longer he has to live.  Well she confirmed what I was thinking.  He could have six months if the new treatment works.  If not may be 3 months.

Ok now what do I do.  I am having all kinds of trouble getting him to accept what is happening do we tell him or not.  The thing is what about my kids what do I tell them.  I have been very honest with them during this whole thing if they ask a question I answer it very honestly.  But I don't know how to tell them this.  I knew this day was coming and I thought I was prepared but I am having a little trouble today.  There is only one set of foot prints in the sand today because the Lord is carrying me.

 Please I need some advice.

kzfamily


Hello, kz family.  I have lung cancer in remission now.  I know that I never wanted any doctor to tell me how long I have. Mainly because God is in charge of that!  The docs give us the pills and the Lord heals.  He needs to remain positive and pray for his health.  God bless!

RE: Need advice and up-date

by lccakes on Fri Aug 14, 2009 12:00 AM

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For my mom who had small cell lung cancer, she did four different regimens.  She had a "complete response" to the first line of treatment but then the cancer came back in 6 months and had expanded to her liver.  The second line of treatment was amrubicin which was a clinical trial drug. She had a huge response to that and everything was shrinking. She would have kept doing that drug however, she got pneumonia and missed one of the sessions by more than 2 weeks. As a result, she had to be dropped from the clinical trial. They waited a month and did a scan and everything was growing again.  She did Topotecan and the cancer got bigger.  Then she did one more clinical trial involving Taxol with CBT-1 and no response.  We were told that the further along you get with trying different medications, that your response to them becomes less likely.  I really wish she could have continued with the amrubicin because it had very few side effects and was working.  It is possible that your family member will have a response to the new medicine particulary if it is in a different "family" than one previous tried.  My mom was always ready to try the next medicine because she wanted as much time as possible with my two sons.  She just wasn't ready to go yet and I think since she had huge responses to two previous medicines, she always held out hope that the next one would work too.  All you can do is talk about all the pros and cons and let them make a decision.  My advice would be to go somewhere for a few days in a new environment.....a lake house, a beach house, the mountains....anywhere to get away and think more clearly to make a decision. When my mom was making her decisions for the 3rd and 4th line of treatments, she felt so awful already that she didn't have much to lose in order to try another medicine. So if the person is feeling good, then you have to decide if they want to go through chemo side effects to have another few months.  My mom was already so sick with her liver being affected that we knew she probably wouldn't have much quality of life if we didn't do anything. 

I would recommend looking into some homepathic medicines and maybe even meet with an herbalist/homeopathic cures person.  You can do an internet search for your area.  If you live in VA, I can recommend someone.  I wish my mom had explored that route earlier.  

Good luck and take care. 

Laura

 

RE: Need advice and up-date

by nevah on Sun Aug 16, 2009 12:00 AM

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On 8/14/2009 kzfamily wrote:

I posted a message a few days ago about how the radiologist did a wrong comparison the person compaired his most recent scan to a scan he had back in January and then when he re-did comparison it was unclear as to what he was say.  Well yesterday I spoke to the doctor and she finally got a clear report that was a comparison to the one he had in June.  Unfortunately, now of the news was good all of his tumor had grown.  So she stopped the treatment he was on and they are going to start a new treatment next week.  But it only has a 10 to 20% chance of extending his live a few months.  During my conversation I asked her based on how the tumors are growing what was her best educated guess of how much longer he has to live.  Well she confirmed what I was thinking.  He could have six months if the new treatment works.  If not may be 3 months.

Ok now what do I do.  I am having all kinds of trouble getting him to accept what is happening do we tell him or not.  The thing is what about my kids what do I tell them.  I have been very honest with them during this whole thing if they ask a question I answer it very honestly.  But I don't know how to tell them this.  I knew this day was coming and I thought I was prepared but I am having a little trouble today.  There is only one set of foot prints in the sand today because the Lord is carrying me.

 Please I need some advice.

kzfamily


You'll read all around here that different treatments have amazing results for different people.   And, that our attitude of hope is medicinal.   This could be the treatment that gives him another year or 2.   Hope is always there.   Quality of life is very important.   He can keep trying things, enjoy each day, and then decide if he wants to quit because of quality of life issues.    Is he at a major cancer center that has access to all the latest in treatments?    A major cancer center like MD Anderson or SCCA (you can google) will give you 2nd opinions, insurance often pays, and you just need to have your current treatment center send your records, which is a service they should offer free of charge.   Lance Armstrong says to eat your vegetables and get 2nd opinions.    Eat a healthy diet, look for times that distract that he enjoys, that keep him from being stressed, get his exercise and enjoy each day.   These things will help.   Hope these ideas help.

RE: Need advice and up-date

by SKMalaysia on Mon Aug 17, 2009 12:00 AM

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Stay strong . As what you mentioned in  your message " her best educated guess " , means it is a guess and it is not confirm .

Sk

RE: Need advice and up-date

by CancerStrike2 on Thu Aug 20, 2009 12:00 AM

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Hello,

My prayer will be with you.  I know how hard this would be.  I went thru the same thing. 

For me personally, I think it is better to tell them so at least you and your family can spend a lot last precious time together, value the little time you have left together, cherish it, make him smile and laugh, no negative arguement or discussion, record (video) the time together so you dont regret at the end.

My family always thought we could save mom but doctors gave up and it was a long battle for us to find cure for mom. 

Check this website to find out more info about cancer and treatment.

http://www.lungcancerclaims.com/

Best wishes,

Vic

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