One patient with glioblastoma still alive nine years later
by withhope on Tue Apr 22, 2008 12:00 AM
Although it's up to each individual what they should do, after my experience with all of the treatments, I would forget about them, get my affairs in order and then go about enjoying my life to the best of my ability. In truth the treatments just make it longer and harder. What's the difference, 2 years of hell or 6 months to 1 year of enjoying one another and the life that's left. Go on a great trip, write all the love letters you can, take pictures with everyone that comes to visit, journal everyday, cry like a baby, spend every moment with the ones you love, plan your funeral arrangements, get some counselling, join a local cancer group to make life-long friends, have a big party, eat out every chance you get and eat everything you want, ask Jesus to come into your life, forgive anyone that may have offended you, ask for forgiveness too, reach out to your family and friends so that they can reach back to you, refuse to lose faith in God, just do everything you can do and want to do and you'll never regret one moment. Actually we should do all that stuff whether we're dying or not. ENJOY all the life you can! Bless you.
by JoanneC on Fri Jul 11, 2008 12:00 AM
I know you posted your question awhile ago. I hope your husband is doing better. I was on Folfox and hated the oxaliplatins side effects. Cold intolerance and numbness and tingling. But it was the 5FU that nearly did me in. Fortunately my GI doctor recognize I was severely malnourished and put me on TPN ( intravenous nutrition) at home. I was able to eat but I was not digesting my foods because I was not making the enzymes needed. My doc put me on Creon (enzymes) and I responded very well. I gained weight and got a little energy back.
I had to switch to Folfiri and Erbitux and the only downside was my WBC's dropped. However I keep getting infections so I am going to take prophylactic antibiotics with chemo, now.
Hope this helps someone.
by crazysexymom on Thu Jul 24, 2008 12:00 AM
by prayingforhim on Sun Oct 12, 2008 12:00 AM
by Roswell on Sun Oct 12, 2008 12:00 AM
On 1/3/2006 Need2hope143 wrote:My husband has colon cancer that went to his liver. He has had surgery to remove part of his colon, he is on chemotherapy to shrink the 2 tumors in his liver so he can have surgery to remove them from his liver. He is so sick with the chemo. He gets it every 2 weeks. Starts on a Wed and ends on a Fri. then he is sick for a least a week. We went to Boston for a consult and it was awful. He was told that he would live 1 year without treatment and 2 years with treatment. There was no cure. Is there anyone out there that has this? How are you doing? How long have you had it? I was hopeful till we went to Boston. His chemo is 5FU, Leucovorin, Oxiplatin. (Folfax 6). He cannot take Avastin yet because he is still slowly healing from his surgery. He takes Reglan and Ativan for his nausea which has helped with the vomiting, but he cannot eat. He continues to loose weight. After the Boston visit, he is thinking of stopping chemo because he is so sick with it. Does anyone who has this type of cancer have anything hopeful to tell me?
I had colon cancer in Dec of '03, went thru chemo from Jan - April, then had a colon resection. Lost 30 lbs and weht thru the chemo pains.Three years later I had 10 mets to the liver with one on the blood supply. Was given 6 months if I didn't do anything. The doctors give you the standard statistics which scares everbody but everyone is differnt. Avastin kept the mets from spreading and shrunk them so they could operate. I would not give up chemo but have a discussion with your oncologist regarding the chemo issues. I was really sick 1/2 way thru the first chemo and they cut my dosage by 10% and it was much better. I would also get a second opinion from a liver surgeon.
For the hope part - I am still here but I don't think I would be here without Avastin and getting a second opinion on the liver surgeon. They now do quarterly scans which have been clean so far.
by JESUSaboveALL on Mon Nov 08, 2010 08:46 PM
my father hade collon cancer and we fond out me and my sisters and borther and mother we cryed and prayed and ask God to help us cuss we know that cancer is a big thing but you most understand that God is above all even above cancer the cancer was removed but it moved to his liver the chemo makes him fell sick to we are born agian Christians and we belive in i believe in miracles we seen cancer go from stage 4 to noting at all yes times may look bad but if you belive that God can make trun the bad in to Good noting is inposabel whit God
and nother thing we did is every time my father did chemo we prayed over it that it woodid make him fell so sick and that it wood help him glory to God it helped alot ... i will keep you and your husben in my prayer it take faith to move montins but remember you need to belive God is above all
read this its from the holy bible
Luke 1:37 (New King James Version)
37 For with God nothing will be impossible.”
by viole1 on Mon Sep 12, 2011 06:27 PM
Cancer successfully treated in new procedure
Radioactive beads target liver cancer
A man gravely ill with cancer has received a new lease on life after undergoing pioneering treatment to kill the tumour in his body.
In a procedure lasting just two days, Brian Brooks, 72, had tiny radioactive resin beads injected into his bloodstream to target liver cancer.
Mr Brooks had been diagnosed with bowel cancer that spread to his liver, and was given less than a year to live.
He underwent a procedure called radioembolisation, which is part of the Foxfire trial at Addenbrooke's Hospital inCambridge.
Following the innovative procedure, and subsequent chemotherapy, the cancer is now in remission.
Advanced bowel cancer is difficult to treat, because of the size and location of the tumours makes them difficult to remove or target with radiotherapy.
Radioembolisation delivers powerful radiation through the bloodstream and directly into the tumour.
The radioactive particles are absorbed into the tumour via its blood supply, and then proceed to kill the cancerous cells, while keeping healthy cells alive.
After successfully treating the liver tumours, Mr Brooks underwent chemotherapy for his colon tumour.
"I was given a death sentence, it's a very difficult thing to get your head around," Mr Brooks told the Daily Telegraph.
"Obviously there is always the risk that the cancer can come back but I am now in remission and that is something that the doctors did not believe was possible."
Mr Brooks was one of about 40 patients who received the treatment as part of the Foxfire trial, which launched 18 months ago.
Doctors are hoping to recruit a total of 500 suitable patients to undergo the new treatment.
This sounds hopeful, I hope it helps!
by CaRita on Wed Feb 08, 2012 04:05 PM
On Jan 03, 2006 12:00 AM Need2hope143 wrote: My husband has colon cancer that went to his liver. He has had surgery to remove part of his colon, he is on chemotherapy to shrink the 2 tumors in his liver so he can have surgery to remove them from his liver. He is so sick with the chemo. He gets it every 2 weeks. Starts on a Wed and ends on a Fri. then he is sick for a least a week. We went to Boston for a consult and it was awful. He was told that he would live 1 year without treatment and 2 years with treatment. There was no cure. Is there anyone out there that has this? How are you doing? How long have you had it? I was hopeful till we went to Boston. His chemo is 5FU, Leucovorin, Oxiplatin. (Folfax 6). He cannot take Avastin yet because he is still slowly healing from his surgery. He takes Reglan and Ativan for his nausea which has helped with the vomiting, but he cannot eat. He continues to loose weight. After the Boston visit, he is thinking of stopping chemo because he is so sick with it. Does anyone who has this type of cancer have anything hopeful to tell me?
On Jan 03, 2006 12:00 AM Need2hope143 wrote:
In April 2010 I was diagnosed with stage IV colon cancer after being scoped. They admitted me right into the hospital and operated the next day. I had a golf ball sized tumor where the large intestines meet the small. About a foot was taken out. However, when they had my body open they saw two silver dollar sized tumors, one on each lobe of my liver. They closed me up. They told my husand I was a mess inside and that I had three months to live, 6 months at the most. I was told that I was hopeless. I never once cried or believed it was hopeless. In March of 2010 I was told I might have colon cancer and I had changed my diet even before they scoped me. I dropped all sugar from my diet. I ate high amounts blueberries, strawberries, all kinds of greens, all kinds of beans, red onions, cabbage, cauliflower carrots, grapes (wash good), flax seed, sunflower seeds, almonds (all kinds of nuts), raspberries, sweet potatoes, soy nuts, and drink lots of water and green tea. No sugar at anytime. They put a port into me and I took 12 chemo treatments (June 2010 to December 2010) of Oxiplatin, Avastin, F5U, and leucovorin. On the 13th treatment (Jan. 2011) I became allergic to Leucovorin and couldn't take anymore treatments of chemo in the veins. My liver tumors became smaller. The chemo made me lose 30 pounds. I was so sick I thought I would die. I was offered Chemo pills and refused. I had chemo put directly into the liver once in March 2011 and once in Oct. 2011. The tumor on the small lobe of the liver was reduced to a dime size and died. The tumor on the large lobe of my liver started growing again in December 2011 and by January 2011 my CEA test read 55. I believe my diet has kept the cancer from spreading into my brain and lungs or elsewhere. I am going to have the last tumor burned out in Feb. 2011. I have no cancer return in my colon. I was scoped in May 2011 and the doctor was amazed. I will be scoped in March 2012 to see what is going on in the colon. My catscan in Feb. 2012 shows one tumor in the large lobe of my liver about the size of a quarter or larger. I became penecostal and they prayed for me. My desire to live is high. I refused to go yet. God has helped me help myself. Chemo put my in a state of mine to give up but, never give up. Everyone must make their own choices. I hope my story may help someone else. When April 2012 rolls around I will have made it two years. C. M. C.
by CaRita on Wed Feb 08, 2012 05:43 PM
This is C. M. C.
I wanted to correct a couple of dates I made in my previous postings. I had a CEA reading of 55 in January 2012 not 2011. I will have my tumor burned out in February 2012 not 2011. Sorry about the typos. The procedure to burn the tumor out is called Radiofrequency Ablation. The procedure to put chemo up in the liver directly on the tumor is called Chemoembolization. Check these out.
I also wanted to note that in July 2010 I had a gall bladder attack. I beleive it was due to being on Chemo. It so weaking by body that my gall bladder was inflamed. It was the worst thing ever. I had a few gall stones. They wanted to remove it. I said no I can't take anymore operations. My gall bladder doesn't bother me anymore since I got of chemo. There are natural treatments for getting the gall stones out. I also got lung infections all during the chemo. I have asthma. Since stopping sugar it doesn't bother me much. Exercise is another thing one need not over look. Do it as it helps. I thank the Lord everyday I wake up. I am so happy nothing can get to me. Have no fear, lay yourself into to God's mighty hands and let him do for you. However, you must be willing to help one's self. God put into my mind what to eat or not to eat. I take vitamin C, 1000 units and take one vitamin B6 per day. Get rid of salt. Sprikle, cinnamon, curry powder and ground turmeric on your foods. Eat garlic and the offensive foods that foul breathe as it offends the cancer. Cancer cannot live in a healthy body. These are my thoughts and conculsions. One must detoxify the body. This is working for me. Good luck to all and God Bless and be with you.
C. M. C.
P. S. Let go of all fear and anger.
by CaRita on Wed Feb 08, 2012 06:02 PM
This is C. M. C. again. I keep remembering things I should post. I function normal. I have no bags on me. I have no pain. I don't even think of cancer until the next doctor appointment. I live. That's what one must do. Live everyday well.
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