8 months later

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8 months later

by Buggie on Thu Aug 27, 2009 12:00 AM

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My husband was diagnosed with HCC 12/31/08.   It has been an emotional ride since then but I am pleased to say he is doing okay and living life as normal as possible.   He has only missed work a few days since than other than doctor appointments.   He has been on nexavar since diagnosed with the exception of 3 weeks for a break.   We try to enjoy life and do our normal routine but it is so hard at times.   My question is he experiences unexplained fevers at times.   Most recently this week for one night.   I knew when I walked in the door he wasn't feeling well - complexion pale and lathargic.   I called oncologist becuase this isn't the first one and he said to call each time he had one.   Luckily this only lasted a few hours and broke sometime in the middle of the night.   The following day he was still tired and run down but by the next day he was back to his normal self.   Any explanation for this?   Is this something that is going to happen?   What can I expect as time goes on?   It would be helpful to understand what to expect so I can help him through it.   Also help myself deal with it.   Thank you for any help you can give.

RE: 8 months later

by hepatokid on Tue Sep 01, 2009 12:00 AM

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Hi Buggie,

I'm new here, so please forgive me if I do something wrong.  I have HCC and have been fighting it for over 2 years now.  I reacted very badly to nexavar and have had several embolizations that have kept me going pretty well.  I don't know if that's an option for your husband, you'd have to talk to your doctor.  I've been treated at Shands at the University of Florida and they are great.  Every person there has been very nice and caring in dealing with me.  Teaching hospitals have a lot of cutting edge procedures and trials if it comes to that.  Unfortunately (or maybe fortunately) this cancer is rare in the US so a lot of trials aren't being done. 

If you have questions that I can help you with let me know.  Keep as good an attitude about this as you can.  Believe me I know it helps.  Sorry I couldn't help better with the nexavar question.

Bob

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