precancerous pancreatic cysts

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precancerous pancreatic cysts

by Pinga on Fri Aug 28, 2009 12:00 AM

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My 59 year old husband was recently diagnosed with precancerous cyst at the head of his pancreas.  I don't have all of the exact measurments as I write this, but I know that this endoscopic ultrasound determined the size to be 7 cm.  We have known about the cyst for at least 5 years, but the doctor who did the most recent procedure is telling us things we've never been told.

 She says that the cyst "is not nothing" - it is irregularly shaped, but too small to aspirate for further testing.  Basically, she is telling us we have two options.

1.  Wait, watch, pray and hope for the best

2.  Remove via whipple procedure

We are waiting to go to surgeon next but in the meantime, we have so many questions.

How do we find the best surgeon? How urgently should this surgery be done. What happens afterward - will there still be monitoring?

His dad died of pancreatic cancer a few years ago so we are worried that somehow this might be genetic.

All insight, and constructive replies are much appreciated

RE: precancerous pancreatic cysts

by The_Wife on Fri Aug 28, 2009 12:00 AM

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There is a form of pancreatic cancer that runs in families so you are right to be concerned.

I think you need to seek a second opinion as soon as possible. While the Whipple is a serious surgery, people can and do get well. They get used to their new normal. 

My personal feeling is that when I take action and things do not turn out perfectly, it is still better than not taking action and things do not turn out well.

I know this is a difficult decision and I would definitely seek another opinion. You already know how difficult PC is so use that knowledge, and your doctor's advice, in making your decision. Best of luck.

RE: precancerous pancreatic cysts

by bammy on Sat Aug 29, 2009 12:00 AM

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I had the same diagnoisis and have whipple july 9th 09. No cancer. I feel so much better the surgery is not fun and has it;s ups and downs I would suggest a whipple soon and find a surgeon that preforms at least a 100 a year or more. I was in surgery for 10 hrs had the best surgeon Dr. Duane Andrews in Tyler Texas I have had no problems and eat what I want. I had 2/3 of pancreas removed and am not a diaabetic. Very lucky. Good luck to you

 Bammie

RE: precancerous pancreatic cysts

by Pinga on Sat Aug 29, 2009 12:00 AM

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On 8/29/2009 bammy wrote:

I had the same diagnoisis and have whipple july 9th 09. No cancer. I feel so much better the surgery is not fun and has it;s ups and downs I would suggest a whipple soon and find a surgeon that preforms at least a 100 a year or more. I was in surgery for 10 hrs had the best surgeon Dr. Duane Andrews in Tyler Texas I have had no problems and eat what I want. I had 2/3 of pancreas removed and am not a diaabetic. Very lucky. Good luck to you

 Bammie


 

Thank you so much.  How did you find/select your surgeon?  Can you tell me your age and general pre-surgery health and how long you were in the hospital.

RE: precancerous pancreatic cysts

by Shemay on Sat Aug 29, 2009 12:00 AM

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Good morning Pinga I hope you will find the following information constructive and hopeful for your husband's situation. There is a great deal of evidence that the average North American suffers from low levels of vitamin D3 and that adequate levels of this very valuable vitamin are absolutely necessary for one's immune system to work efficiently. On my doctor's recommendation I personally take 5000IU daily as one part of my alternative cancer healing protocol but of course each individual should have their own assessment done with a simple blood test..... Sincerely, Sheila...... http://www.medicinenet.com/script/main/art.asp?articlekey=98 .......... http://abcnews.go.com/Health/story?id=2436385 .......... http://www.vitamindcouncil.org/ ............. _____________________________________________________________

On 8/28/2009 Pinga wrote:

My 59 year old husband was recently diagnosed with precancerous cyst at the head of his pancreas.  I don't have all of the exact measurments as I write this, but I know that this endoscopic ultrasound determined the size to be 7 cm.  We have known about the cyst for at least 5 years, but the doctor who did the most recent procedure is telling us things we've never been told.

 She says that the cyst "is not nothing" - it is irregularly shaped, but too small to aspirate for further testing.  Basically, she is telling us we have two options.

1.  Wait, watch, pray and hope for the best

2.  Remove via whipple procedure

We are waiting to go to surgeon next but in the meantime, we have so many questions.

How do we find the best surgeon? How urgently should this surgery be done. What happens afterward - will there still be monitoring?

His dad died of pancreatic cancer a few years ago so we are worried that somehow this might be genetic.

All insight, and constructive replies are much appreciated


RE: precancerous pancreatic cysts

by baldridd on Sat Aug 29, 2009 12:00 AM

Quote | Reply
I was diagnosed with a 4cm cyst in November of 2006. I was told to watch and wait even though the cyst fluid showed a CA19 of 3500 and it was growing. I did wait for a while but decided to have the whipple in October 2007. It turned out to be prescancerous (acinar cell). I am 38 and still had a rough recovery from the surgery but I would not have changed anything. The way I look at it...it was a ticking time bomb. I was blessed to be able to even have the surgery and that it was found when it was. Please do not hesitate for her to have the whipple. It is tough but it does save lives. She has been blessed with a pre-warning when most are not.

RE: precancerous pancreatic cysts

by baldridd on Sat Aug 29, 2009 12:00 AM

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My apologies. I meant to say 'he' to refer to your husband.

RE: precancerous pancreatic cysts

by bammy on Sun Aug 30, 2009 12:00 AM

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I am 49 in the hospital for 10 days. I work for Trinity Mother Frances in Tyler. Dr. Andrews has preformed this surgery for many  many years he is the best around he is 70yrs old and a saint the man knows what he is doing. I felt good within 2 weeks and went back to work 2 weeks early. He calls me short of a miracle. I was in surgery for 10 hrs. I feel great


Bammie/Melinda

RE: precancerous pancreatic cysts

by Pinga on Mon Aug 31, 2009 12:00 AM

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Thanks so much for your help.

RE: precancerous pancreatic cysts

by leanorag on Wed Sep 16, 2009 12:00 AM

Quote | Reply

 

On 8/28/2009 Pinga wrote:

My 59 year old husband was recently diagnosed with precancerous cyst at the head of his pancreas.  I don't have all of the exact measurments as I write this, but I know that this endoscopic ultrasound determined the size to be 7 cm.  We have known about the cyst for at least 5 years, but the doctor who did the most recent procedure is telling us things we've never been told.

 She says that the cyst "is not nothing" - it is irregularly shaped, but too small to aspirate for further testing.  Basically, she is telling us we have two options.

1.  Wait, watch, pray and hope for the best

2.  Remove via whipple procedure

We are waiting to go to surgeon next but in the meantime, we have so many questions.

How do we find the best surgeon? How urgently should this surgery be done. What happens afterward - will there still be monitoring?

His dad died of pancreatic cancer a few years ago so we are worried that somehow this might be genetic.

All insight, and constructive replies are much appreciated


 

Dr. Murray Brennan, Memorial Sloan Kettering, NY is one of the best at this procedure.
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