sorting out tests

I am a 43 year old with 3 healthy children.  I have had painful periods for a few years now.  Over a year ago I went through a stage where they thought I had gallbladder problems so I had CT scan and ultrasound.  They found a fibroid and simple cyst on my ovary.  I've had the cysts before and nothing to worry about I was told.  This month I went to my family dr. thinking I had a bladder infection.   No infection so she did a bunch of blood work and CA125 came back 93.  More CT scans and ultrasound.  Can't find my left ovary which I'm told is normal.  Still have the fibroid, 2.6cm complex cyst on my right ovary, small nodule on my lung.  I went to my gyno yesterday and he said the CT scan also showed thickening of my uterus lining and an enlarged adrenal gland.  Then he says not to worry about the lung nodule because that was there on CT scan 1 1/2 ago.  Why didn't my family dr.  tell me these things then?  Gyno did a uterine biopsy and said from the exam he thinks I just have endometriosis.  Scheduled another ultrasound and repeat of the CA125.  Depending on what they show he scheduled a consult with a gyno/onc. How worried should I be?  

I would be concerned and certainly would get a second opinion - perhaps a gyn/onc.  A PET scan is the only true test to determine if there is cancer pesent.  Ovarian cancer is usually discovered after it has moved on to other areas and then it is almost too late.  Early detection is the answer. 

I have been battling Ovarian/Peritoneal cancer and breast cancer for over 3 years now.  It was the breast cancer test that brought up questions about where the cancer was and ultimately a PET scan that found the Peritoneal cancer.  After surgery and chemo I had a year which appeared to be cancer free, but it is back and now I'm on chemo forever.  Had I caught it earlier, I could have been cured.

Good luck with making the right decision.

On 9/3/2009 Daws123 wrote:

I am a 43 year old with 3 healthy children.  I have had painful periods for a few years now.  Over a year ago I went through a stage where they thought I had gallbladder problems so I had CT scan and ultrasound.  They found a fibroid and simple cyst on my ovary.  I've had the cysts before and nothing to worry about I was told.  This month I went to my family dr. thinking I had a bladder infection.   No infection so she did a bunch of blood work and CA125 came back 93.  More CT scans and ultrasound.  Can't find my left ovary which I'm told is normal.  Still have the fibroid, 2.6cm complex cyst on my right ovary, small nodule on my lung.  I went to my gyno yesterday and he said the CT scan also showed thickening of my uterus lining and an enlarged adrenal gland.  Then he says not to worry about the lung nodule because that was there on CT scan 1 1/2 ago.  Why didn't my family dr.  tell me these things then?  Gyno did a uterine biopsy and said from the exam he thinks I just have endometriosis.  Scheduled another ultrasound and repeat of the CA125.  Depending on what they show he scheduled a consult with a gyno/onc. How worried should I be?  

Yes, you need another opinion immediately from a gyn oncologist, preferably at a teaching hospital.  Don't delay.  OV cancer grows and spreads quickly.

Good luck.