Sarcoma

My husband was diag. with Sarcoma of the rt.thigh and in some pelvic lympnodeds.

I am 35 and he is 43. we have 4 daughters, 18,16,13,3yrs old.

our house was stressed enough and then i am sick on top of it.

when we got this news we were a reck, well guess what we still are.

i am trying to help him but i am not sure i am. i keep thinking negative and trying to prepare for the worst. everyone says not to but hell if everyone has blinders on what happens when it gets to that point.

i am scared and dont know how to be... any advice on how i can get through this with my husband. i miss him and he misses me but this cancer has gotten in between us.

april

Hello - I am in Perth Western Australia.  I friend of mine lady aged 82 noticed a lump protruding from her thigh.  went to docotr...nothing to worry about..a month later, the lump had grown.

Sorry he said...Yes, she had a sarcoma...she had surgery.  She also followed up with 33 consecutive days of radiotherapy.  The radiotherapy burnt/ damaged her knee causing her to fall.

She refused chemotheraphy and wished she had not completed the radiotherapy.

Not long after, the cancer spread to the lungs and this is the first place of metastasis (spreading).  And it did.

 We tried B17, Apricot kernels but for one day only as it made her very sick .Asparagus fresh or tinned was administered also sodium selenite drops.  She passed away less than 12 months from diagnosis.

If the sarcoma is say one or two nodules then Cyberknife treatment could be good.  There is also professor Rolle in Germany who is a potential source for cure/treatment.

I would be happy to tell you anything else I know or have found out.  Please feel free to contact me.

 

 

 

On 9/9/2009 RockCrawler wrote:

My husband was diag. with Sarcoma of the rt.thigh and in some pelvic lympnodeds.

I am 35 and he is 43. we have 4 daughters, 18,16,13,3yrs old.

our house was stressed enough and then i am sick on top of it.

when we got this news we were a reck, well guess what we still are.

i am trying to help him but i am not sure i am. i keep thinking negative and trying to prepare for the worst. everyone says not to but hell if everyone has blinders on what happens when it gets to that point.

i am scared and dont know how to be... any advice on how i can get through this with my husband. i miss him and he misses me but this cancer has gotten in between us.

april

 

Good morning April

I'm truly sorry to hear of your struggle, you need to know that you're not alone. There are many families in similar situations and groups that provide direction and support for your family. I have a faith in God which allows me to lean on Him in troubled times. Not every cancer story has a bad ending, mine was good. Being optimistic and positive is a choice and I would suggest the better of choices, it doesn't mean you aren't aware of other possible out comes. The better you make each day the better your relationship will be. Your man doesn't need help worrying about the negative that's a normal struggle for most cancer patients, he will need your loving support. There may be friends or support groups nearby that you could meet with regularly to find strength ... and there's always my earlier stated support! I was initially told I had 6 weeks and that was Jan 2007 so I believe all thinks are possible. Please choose to live in the present and deal with the challenges of today, tomorrow with bring its own.

sincerely Max

Cancer can bring out the best or the worst in people. My advice is that there are support systems for patients and their family's. One, which I used and was excellent (and free) was Gilda's Club (www.gildasclub.org). They are wonderful and have clubhouses in many states. You can check on line to see if there is one near you. There are also therapists who deal with illness and bereavement. You might want to consider this. Sometimes, clergy have been trained as counselors and can be of help, too. There are many different paths and any or all of these may be able to help your husband, you and your children through this journey. As I said, it is a scary time. My husband developed cancer though a much more serious type and although we tried everything, he unfortunately succumbed to his disease at 51 eighteen months ago. I know in my heart we did everything and I also know that we were there for one another which, in the end, has been what has allowed me to go on. Cancer is scary, it can be unpredictable and there really is no road map for the ups and downs you might experience. Being there as a family for one another is the most important thing. Try to get some help as you navigate this very difficult passage in your lives. jo www.turpinfoundation.org

Hi April, I also deveped sarcoma in my left thigh. I kept a positive attitude and after 5 sessions of chemo, 2 surgeries and 30 radiation treatments I am doing great. My Ex-husband who before my illness could not get along with me was very supportive and helped me get through the treatment by just being there. I did not need negative thinking nor did I think of the worst instead I thought of a lump that needed to go away and focused on what I needed to to get rid of it. Compare that to helping someone loose weight. Just be there for your husband, remind him and yourself of all that you have done together and all that you can do after this. You children also need to see you being positive as they will follow your example, if you don't believe in his cure you will transmit that to them and if you think about how hard it it's for you imagine how hard it is for your children and specially for your husband to think you already gave up on him. God bless you and your family.

 

On 9/9/2009 RockCrawler wrote:

My husband was diag. with Sarcoma of the rt.thigh and in some pelvic lympnodeds.

I am 35 and he is 43. we have 4 daughters, 18,16,13,3yrs old.

our house was stressed enough and then i am sick on top of it.

when we got this news we were a reck, well guess what we still are.

i am trying to help him but i am not sure i am. i keep thinking negative and trying to prepare for the worst. everyone says not to but hell if everyone has blinders on what happens when it gets to that point.

i am scared and dont know how to be... any advice on how i can get through this with my husband. i miss him and he misses me but this cancer has gotten in between us.

april

Hi April,  I'm sorry to hear what you are going through.  It is a very scary thing to face.  I have been going through surgeries and chemo treatment with my Mom for a year and a half. She is 80 years "young" and she's fighting all she can...as she says, "I'm not ready to go yet"! And I'm not ready to let her go.

 It is an insidious disease and can consume not only the body but the mind and spirit if you let it. You don't have a choice about the cancer, but you do have a choice as to how you handle it. The best advise I can give you is to be proactive in your husband's care, learn as much as you can about the disease and the available treatments and don't just take the doctor's word, if you have questions....ask them and you can only do that if you are well informed. If you don't like how the doctor is treating this or how he's treating you....find another doctor. It is important to have a doctor who is good at what he does, but also one who is willing to listen to you and who is compassionate. 

Try to keep you life as normal as possible and yes, be positive...that doesn't mean have blinders on and ignore,but having a positive attitude is a great help in fighting this thing.I

If you are a spiritual person, reach out to your God and allow him to help you through this.  I would also recommend trying to find a support group for the whole family.  I reached out to Gilda's Club, it's free. I don't know where you live or if there is a Gilda's Club near you, but check it out on the internet.  If not, ask your doctor for any recommendations he may have for support groups in your area. It really helps.

Use this time to live your life....if the worst happens you'll have plenty of time to mourn..don't start before you have to.

I wish you luck and all God's Blessings,

Elena

RockCrawler sorry for what your both going though that a young 43 same age I got advanced prostrate cancer was about 43 when the news  deverstated me Im now 57 my kids have moved out of home finily look I know your trying to prepare for the worst this will put more stress on you I had a pain in my ribs worrying about my wonderfull wife the kids if you ever get this robing  linenment on you saw ribs helps do you know that Sarcoma has a 60 to 70 % seriveal rate with the chemos we got now if he wants he can inprove on that with taking vitamin D3  if he on chemo if not high dose of vitamin C also cuting  back on the sugar will help to.  but to realy help him with he realy needs to laugh and I not kiding A guy in our cancer suport group was told this by his doctor as he was literly falling a part with Sarcoma so he had his wife go down to the vido store and rent as meny funny cartoons as she could  he layed down in bed and watch cartoon as long as he could  and tryed to largh as mach as posible   there a  Inhibitory Action with Adrenalin on Growth of Sarcoma cancer FDA test have proved this all the best Ray

http://www.sciencemag.org/cgi/pdf_extract/113/2941/557

http://www.gemm-therapy.com/eng/default.php

http://www.lewrockwell.com/sardi/sardi84.html

http://orthomolecular.org/resources/omns/v04n19.shtml &

http://www.mnwelldir.org/docs/nutrition/sugar.htm

 

On 9/10/2009 catchbull wrote:

Hello - I am in Perth Western Australia.  I friend of mine lady aged 82 noticed a lump protruding from her thigh.  went to docotr...nothing to worry about..a month later, the lump had grown.

Sorry he said...Yes, she had a sarcoma...she had surgery.  She also followed up with 33 consecutive days of radiotherapy.  The radiotherapy burnt/ damaged her knee causing her to fall.

She refused chemotheraphy and wished she had not completed the radiotherapy.

Not long after, the cancer spread to the lungs and this is the first place of metastasis (spreading).  And it did.

 We tried B17, Apricot kernels but for one day only as it made her very sick .Asparagus fresh or tinned was administered also sodium selenite drops.  She passed away less than 12 months from diagnosis.

If the sarcoma is say one or two nodules then Cyberknife treatment could be good.  There is also professor Rolle in Germany who is a potential source for cure/treatment.

I would be happy to tell you anything else I know or have found out.  Please feel free to contact me.

 

 

 

On 9/9/2009 RockCrawler wrote:

My husband was diag. with Sarcoma of the rt.thigh and in some pelvic lympnodeds.

I am 35 and he is 43. we have 4 daughters, 18,16,13,3yrs old.

our house was stressed enough and then i am sick on top of it.

when we got this news we were a reck, well guess what we still are.

i am trying to help him but i am not sure i am. i keep thinking negative and trying to prepare for the worst. everyone says not to but hell if everyone has blinders on what happens when it gets to that point.

i am scared and dont know how to be... any advice on how i can get through this with my husband. i miss him and he misses me but this cancer has gotten in between us.

april

Hi  i read your message and my heart goes out to you.

My husband died a while ago from a different form of cancer ,but the fears are all the same.

I was very frightened and worried about every thing, not relising my husband felt the same fears but more so as he was the one leaving me.

The onlyadvice i can give is the future takes care of it's self,live every day and love be each other as if it's the last.We spent everyday together making sil;ly little memories for me....try not to lose sight of the love for each ohter.....and if the bad day does come i'm sure like me friends and family will see you through the dark days ....till sunshine days come again.

Mary

 

 

On 9/9/2009 RockCrawler wrote:

My husband was diag. with Sarcoma of the rt.thigh and in some pelvic lympnodeds.

I am 35 and he is 43. we have 4 daughters, 18,16,13,3yrs old.

our house was stressed enough and then i am sick on top of it.

when we got this news we were a reck, well guess what we still are.

i am trying to help him but i am not sure i am. i keep thinking negative and trying to prepare for the worst. everyone says not to but hell if everyone has blinders on what happens when it gets to that point.

i am scared and dont know how to be... any advice on how i can get through this with my husband. i miss him and he misses me but this cancer has gotten in between us.

april

 

Hello April. My husband was diagnosed with a rare cancer on his spine last May 09 which caused him a lot of pain on both arms. All the pain medication he was taking had stopped working so he decided to have the surgery expedited. The doctors at UCLA Santa Monica operated on him on Aug 27, now is pain free but needed proton radiation treatment at Loma Linda Hospital.

I understand what you're going through because I went through it myself. I believe that God had already prepared me for such a time as this; He does allow disease and hard times to happen in our lives to let us know He is there and that He can bring us the comfort we need. It probably isn't making sense to you, April, but when God brings us to our knees, that is when we know we can't do anything on our own and we're in desperate need of the One who can save us from our predicament. Have faith, April, know that you are not on your own. Stress will kill you if you let it control your life. I will keep you and your family lifted in prayer.

My husband is not really crazy in love with God as I am but, in his time of great need, he was telling everyone that his cancer is a gift from God and something good will come out of it. God could turn any bad event to good.

"And we know that God causes everything to work together for the good of those who love God and are called according to his purpose for them." Romans 8:28

April, what devastating news for your family. I'm so, so, so sorry that this is happening to you. I don't know that there is any way that cancer will not disrupt you, your family, and your life. It's scary, very scary, even more when you and your spouse are so young and have young children. As a cancer survivor, I know that cancer got into my life and my family's even when I didn't want to allow it to take over. At some point I decided that the monster had terrified all of us enough so that instead of "living life" we spent too much time anticipating the worst of the future. Hopefully at some point you too will take the monster by the horns, and while you might not able to get it out of your life, you might not let it rule it either. It's important to live every day, not to die before death is here. You really don't know what the future holds, so all there is to face and enjoy is the present. Some days are grueling, and others have their good moments. Don't miss the good moments, however short they might be. There are a lot ot of us around you praying for you, your husban, and your children. Don't give up! And please: keep writing. We are here for you, and with you.

Monica