I survivived my first Melphalan

Hi everyone,

I have survived my first Melplalan last night and all went well.  I am a bit sleepy this AM and fuzzy but not nauseated and I slept all night. except when they when they drew blood at midnight and took vital signs at midnight. They woke me up at 5:30AM for vital signs and some meds.  I get more Melphalan tonight and we will see how that goes.  I need a snack so going to the snack kitchen to find something! Gayle

 Hi Gayle,

 Do hope the rest of your treatment goes as easy on you!!

:)Dotty

On 9/9/2009 Windymoose50 wrote:

Hi everyone,

I have survived my first Melplalan last night and all went well.  I am a bit sleepy this AM and fuzzy but not nauseated and I slept all night. except when they when they drew blood at midnight and took vital signs at midnight. They woke me up at 5:30AM for vital signs and some meds.  I get more Melphalan tonight and we will see how that goes.  I need a snack so going to the snack kitchen to find something! Gayle

oh !  I do hope you have easy time as I did. Smile ! Worst part was the tiny sore throat. Im 13 months out..smile. i have hair again !!

I am new to your postings...so may i a sk what was with your feet?? It was a rash on my feet that diagnosed me..and my feet were what was most bothered by chemo too. 

Hi Danielle,

This is my second day of melphalan and tomorrow is my day of rest and my transplant is friday. I have neuropathy of my feet from Velcade.  It has been my worst side effect. I was diagnosed by blood tests after breast cancer , in 2004) that showed the m-protein in my blood.  So they have watched me and done periodic bone marrow biopsy's since then and the bx in Dec showed 50% myeloma in my cells. By April I was on chemo and 2 months later I was in remission. It took a couple of months to get this all set up so I was off of chemo and then now am almost done with the transplant! Yea me! I have had an easy time so far so hope I continue as you did. Everyone is so nice here in the transplant unit. Take are and I am so glad to meet you.  Gayle

well- its seems you will have an easy time . ! ;-)

The velcade made my feet crazy too ! What have they given you for it...and by the way- where are you. what state. i am in NY- SCTat sloan. in nyc

I was diag. in dec 07- 90 percent active. - chemo then transplant in aug 08.-i am 14 months..wow.. even i cant believe it ! 14 months out- and back to work full time. Life is good. ;-) I go to italy for a vacation next month !  oh what a difference a year makes....smile. 

Good Morning Danielle;

I go to Italy for a vacation next month! 

If you're travelling that far, why not contact Margaret @ Margaret's Corner and get some directions and take the opportunity to speak with thee guru concerning alternatives to fighting this beast.

Take care;

Kevin

On 9/9/2009 Windymoose50 wrote:

Hi Danielle,

This is my second day of melphalan and tomorrow is my day of rest and my transplant is friday. I have neuropathy of my feet from Velcade.  It has been my worst side effect. I was diagnosed by blood tests after breast cancer , in 2004) that showed the m-protein in my blood.  So they have watched me and done periodic bone marrow biopsy's since then and the bx in Dec showed 50% myeloma in my cells. By April I was on chemo and 2 months later I was in remission. It took a couple of months to get this all set up so I was off of chemo and then now am almost done with the transplant! Yea me! I have had an easy time so far so hope I continue as you did. Everyone is so nice here in the transplant unit. Take are and I am so glad to meet you.  Gayle

What transplant unit are you in? I was in Baylor in Dallas. I lost 45 lbs. after receiving 2 doses of malphalan. I wasn't that sick from it. I was just nauseated for about 2 weeks. My transplant was June 12, 2009. I am doing great. The last check of the abnormal protein was 0.9. The dr says myeloma cells are hard to kill. I go for a bone marrow biopsy Monday for another check. My first check for the protein before the transplant my number was 47%. I am hoping Monday's test shows zero %. Good Luck. Poppy

kevin-

where is she ...i will be in Tuscany 

thanks 

Good Morning Danielle;

Where is she?

Contact her at Margaret's Corner. She writes a daily blog regarding her battle. Very interesting gal!

Take care;

Kevin

Gayle,

I have been following your SCT experience - my Dad goes in for his transplant on Tuesday.  I just had a couple of questions for you.  How long were you actually in the hospital?  Did you have any visitors in the hospital or did they discourage that?  We're just trying to prepare so we can do the best thing...  Any info would be great.

Thanks.