adrenal lung cancer

my husband had lung cancer 4yrs ago was in remission they have now found out he has a tumour on the adrenal gland said its come down from the lung and its malignant the specialist said they could not operate it would not help but sending him to see his specialist  to sort some kemo so does it mean its in the lung and that they are only prolonging his quality of life and if so what percentage of life has he got left anyone any idea

 

On 9/14/2009 samsan wrote:

my husband had lung cancer 4yrs ago was in remission they have now found out he has a tumour on the adrenal gland said its come down from the lung and its malignant the specialist said they could not operate it would not help but sending him to see his specialist  to sort some kemo so does it mean its in the lung and that they are only prolonging his quality of life and if so what percentage of life has he got left anyone any idea

Hi,

I am going through the same sort of thing only I had it in my left adrenal
gland. Had surgery for eleven hours and they removed my kidney, adrenal gland
and tumour. It was also invading the main vein into my heart, so the surgery
involved open heart surgery. It came back August 2007 in both lungs and liver
and I was told it was inoperable, could not have radiation as I only have one
kidney and the radiation will damage it.  Approx three weeks ago I was
told it is now back in my right adrenal gland.  I have been told by my
oncologist I have to be admitted into Clatterbridge (Merseyside) for Chemo. I
go to see my consultant next Thursday to see what they can do, I hope they can
operate as you can live without your adrenal glands. I am now on 1500mgs of
mitotane every day, it's a sort of chemo, but in tablet form.

Won’t know anything really until next Thursday 24th September. 

I can't really tell you why they won’t operate on your husband.  Tell
him to try and think positive, that's what I am doing.

Regards,

Jeanette

 

thank you for answering we go see another doctor thurs to see if they can do anything hope they can keep him pain free as hes in pain with his neck and shoulder now besides his back

How did it go on Thursday?  Well I hope. I know the pain is awful, what pain reliefi is he on?

I also went to see my consultant last Thurs 24th Sept and I have my operation 13th Oct to remove right adrenal gland and tumour, may have to take some of my liver.  Had blods taken Thurs, hospital called today and my cortisol levels are very high so have to go on medication, collect it tomorrow.

Best wishes,

Jeanette

 

 

On 9/30/2009 nettyb wrote:

How did it go on Thursday?  Well I hope. I know the pain is awful, what pain reliefi is he on?

I also went to see my consultant last Thurs 24th Sept and I have my operation 13th Oct to remove right adrenal gland and tumour, may have to take some of my liver.  Had blods taken Thurs, hospital called today and my cortisol levels are very high so have to go on medication, collect it tomorrow.

Best wishes,

Jeanette

 

hi jeanette sorry to hear your going through so much hope things get a little better for you yes we went today see prof lind we saw a colleague who was very nice they have explained there trying to slow the cancer down there trying him on a tablet form of kemo erlotinib(tatceva)other name for it he now takes morphine small dose 30mg at night and morning and some through day he will only take 1 10mg through day but can take upto 4 a day also as paracetamol and tramadol he goes on 7th oct for three injections in ribs for pain there all i want him to be his pain free hes lost 6pound in weight since last week he goes for prescript for kemo tabs and signs for them monday thank you for writing back please keep in touch let me know how your doing

sandra

Hi Sandra,

Sorry havn't been intouch before now only I have been really ill.  When I Went to see my consultant (Alison Waghorn) last month.  I had a phone call to say my cortisol levels were very high and they put me on a tablet called (just been to get my glasses, blind as a bat aswell ha ha) METYRAPONE and they knocked me for six.  My husband Paul called my consultant and she said to come off them as I go into hospital on Sunday 11th and have the op on Tuesday 13th.  How did it go on the 7th? What's your husband's name?  I have never heard of the medication he is on, what does it do?  I am on 30mg MST morning and night and oramorph when ever I need it, but like your husband I don't like taking it and only take it when I really need it, I try to stick with the paracetamol.  Hope you and your husband keep strong. 

Try to think of something to look forward to. I did the first time, my daughter had just had my granddaughter Lydia who has just started school in September.  I also had a wonderful grandson George who willbe nine in December. This time I have another beautiful granddaughter Charlotte who was one on 9th September and they all need me.  My daughter is also getting married 3rd July next year and I have been warned I have to be there.

Please keep intouch and if I don't speak before I go into hospital on Sunday I will be thinking of you both.  Take Care.

Best Wishes

Jeanette x

 

On 10/9/2009 nettyb wrote:

Hi Sandra,

Sorry havn't been intouch before now only I have been really ill.  When I Went to see my consultant (Alison Waghorn) last month.  I had a phone call to say my cortisol levels were very high and they put me on a tablet called (just been to get my glasses, blind as a bat aswell ha ha) METYRAPONE and they knocked me for six.  My husband Paul called my consultant and she said to come off them as I go into hospital on Sunday 11th and have the op on Tuesday 13th.  How did it go on the 7th? What's your husband's name?  I have never heard of the medication he is on, what does it do?  I am on 30mg MST morning and night and oramorph when ever I need it, but like your husband I don't like taking it and only take it when I really need it, I try to stick with the paracetamol.  Hope you and your husband keep strong. 

Try to think of something to look forward to. I did the first time, my daughter had just had my granddaughter Lydia who has just started school in September.  I also had a wonderful grandson George who willbe nine in December. This time I have another beautiful granddaughter Charlotte who was one on 9th September and they all need me.  My daughter is also getting married 3rd July next year and I have been warned I have to be there.

Please keep intouch and if I don't speak before I go into hospital on Sunday I will be thinking of you both.  Take Care.

Best Wishes

Jeanette x

hi jeanette sorry to hear you have been ill hope things go well in hospital sammy is my hubbys name they have started him on tarceva 150mg take one a day at same time i looked it up a lot of people are on it some good responces to it when you read about it we went hospital 7th looking forward to having these injections to kill pain in ribs got there allready for this doc who had a attitude i cant do it i went mad apparently these injections have to be done under ultrasound which they did not have one so to wait again and we were sent to wrong hospital i was starting to sleep a bit but all gone upset not sleeping we see specialist 2nd november to see how medication going to keep an eye for side affects well jeanette till i hear from you good luck

best wishes

sandra

Hi Sandra,

Have I got it right, the injections are into Sammy's ribs or just normal injections to stop the pain?  If it's into the ribs, that sounds really painfull in itself.  I would of gone mad to if the doctor told me they couldn't do it, because Sammy must of been worried as we always are when having something new done.  I must admit up to now I have been really lucky because my consultant, oncologist, nurses and GP have been great. I will be going to a hospice as an out-patient for my pain control.  I am also going for day therapy, it is supposed to be really good.  They give you massages, well alkinds of things.

Go today to see my oncologist to see if/when they will be starting my chemo.  I haven't slept, feel so tired now.  Have had McMillan nurse out to see me, she was really nice.  The only thing though is that she stopped my MST and Oramorph for Oxycontin and Oxynorm, also changed my anti sickness tablets to Metoclopramide.  Well I can tell you I only started them Friday night and all day Saturday I was awful, really weak, tired, had nausea and severe cramps in my legs and arms.  I got out of bed about 2pm and lay on the couch till 6pm and then went back to bed, all I did really was sleep, it was awful.

On Saturday night decided to go back onto MST and I can tell you I felt so much better Sunday.  It must of been the medication they changed.  Wish they would leave well alone when you are doing ok.

I am going to ask my oncologist today about Tarceva, because I have never heard of it.

Well take care and my love to you and Sammy.  Keep intouch and let me know how he is doing.

Best wishes

Jeanette