Uterine Leiomyosarcoma

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Uterine Leiomyosarcoma

by Dominga on Wed Sep 23, 2009 12:00 AM

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I am looking for a response from Tre at trehouse60.  I read the response to the posting by Kathy regarding "hypermetabolic."  It was very helpful to me. 

My 67 year old mother was diagnosed with LMS in July 2009.  Stage 1, High reoccurrence rate. She had a hysterectomy in July, and started chemo treatment on Sept 15th.  She reacted with all the side effects described for Taxotere/Gemzar.  Her second round of treatment, she was not able to start-up because her blood count was very low.  My concern is her Pet-Scan results came back and this is the conclusion:  Hypermetabolic suprapacreatic and retroduodenal lymphadenopathy suspicious for metastasis.  Well, you have to know that word mestastasis kind of put a scare in me for a moment.  However, the oncologist said it was inflammation because of the recent surgery she has just had and he would monitor the site during chemo treatments.  I jsut want to know if this is all proper protocol.  I like the Doctor but I don't want him keeping anything from me, I want to know the truth if he knows more and is not sharing it. 

What can anyone tell me.  

     

  

RE: Uterine Leiomyosarcoma

by Sharon_in_San_Francisco on Thu Sep 24, 2009 12:00 AM

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Hi,

I highly suggest that you join the ACOR LMS on-line discussion group.  You will find a wealth of medical information and wisdom there.

 Join here:

ACOR L-M-Sarcoma
http://listserv.acor.org/archives/l-m-sarcoma.html

 I'm sending hugs! 
Let me know if I can be of further help.

Sharon Anderson, MSW
Executive Director
LMSarcoma Direct Research Foundation  www.lmsdr.org
2758 E 44th place, Tulsa, Ok  74105
650-922-8762
.... Working not Wishing .....

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