Pre-Melanoma - and Phototherapy (psoriasis) Risks

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Pre-Melanoma - and Phototherapy (psoriasis) Risks

by reggiesdaughter3 on Thu Sep 24, 2009 12:00 AM

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Hello,

Looking for info.  My father passed away about 6 weeks ago - from melanoma - it was in his brain.  He had several melanomas over the last 30 years, and each was surgically removed - clear margins etc.  Anyhow - about 2 years ago - i had a mole on my arm that turned dark - i had it removed and was told it was dysplastic nevi.  Now, about a 4 weeks ago - had a mole removed, was told it was pre-melanoma and a clear margin cut.  Last week, rechecked and another mole was found on my leg, again revealed to be pre-melanoma - having a clear margin removed next week. 

I am stressing.  Is a pre-melanoma GOING to be a melanoma - if it isn't caught in time??? Aren't there any other tests to find all of these?  Seems scary to me - that my only line of defense is what I see and hopefully anything I miss - My dr sees?????????? WOW.....Can a mole go from ok to pre-melanoma between visits??????  As long as all of the pre-melanomas are "caught" before they are classified as an actual melanoma - does that prevent me from the risk of the melanoma moving thru the blood - possibly to the brain - as happened to my dad??? I am not finding enough information on this online....Any feedback will be appreciated.  Honestly, I was a bit taken aback - when this second one was found - weeks after the 1st one.  

Sidenote - I also have psoriasis - as the only treatment that has ever worked for me - is phototherapy....i know this has to increase my exposure and risk for the melanomas.....anyone else out there - being treated for psoriasis with phototherapy - and having problems with melanoma???

Thanks!

RE: Pre-Melanoma - and Phototherapy (psoriasis) Risks

by Linda_P_16 on Sun Sep 27, 2009 12:00 AM

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Hi,

I had a mole removed about 4 years ago, I was told the cells were changing but it was not a Melanoma. I had more flesh cut out and was told everything was clear, 2.5 years on l had Melanoma in 2 lymph nodes in my groin,same leg that I had the mole removed from. The doctors tell me that the original mole I had removed must have been a Melanoma and it was not diagnosed correctly. 

All I can say is keep an eye on any changes occur in your body as it could be Melanoma. Good luck

Linda P

RE: Pre-Melanoma - and Phototherapy (psoriasis) Risks

by Selma on Mon Sep 28, 2009 12:00 AM

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Do not stress just keep an eye on things as you have so far.

RE: Pre-Melanoma - and Phototherapy (psoriasis) Risks

by reggiesdaughter3 on Sun Oct 04, 2009 12:00 AM

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Hello,

Thanks for the reply - and I apoligize for not writing sooner - has been a hectic week.  I am scheduled on Tuesday - to cut a clear margin on the "pre melanoma" that appeared on my leg.  I am so scared of melanoma - I can't even tell you. 

Best of luck to you in your treatment.  Please let me know how you get along! 

Thanks!   Sue

RE: Pre-Melanoma - and Phototherapy (psoriasis) Risks

by reggiesdaughter3 on Sun Oct 04, 2009 12:00 AM

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Thanks for your reply - and I apologize for being so long to reply.  I am trying not to stress - but its easier said than done.  I guess its because I am painfully aware of what melanoma can do.  I just don't want to deal with it - however, I intend to be diligent - probably to excess.  It's just hard to imagine - that in 2009, visual observation - is the best defense - i am afraid that I will miss one. 

Thanks again, trying to chill - scheduled for Tuesday - to have clear margin cut on pre-melanoma on the leg.  I am curious to speak with my doctor more - and see what she recommends.

I see you are registered as a caregiver - good luck to you and yours!

RE: Pre-Melanoma - and Phototherapy (psoriasis) Risks

by radphll on Sat Nov 07, 2009 02:23 PM

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Hi

Did you find any further information / link with Melanoma and Phototherapy?  My son, aged 13 was diagnoised with a Melanoma in January.  My son was born 8 weeks premature, and spend some time under phototherapy lights.  He now has another 3 watch moles.  It was only "Mother Instinct that picked up the melanoma.  Doctor thought he was too young so it would be nothing.  It was on his back in a spot that is always covered. 

Hope all is going well for you

 

RE: Pre-Melanoma - and Phototherapy (psoriasis) Risks

by assafzar on Sun Nov 08, 2009 01:13 PM

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Did you try to keep track on your moles using mole-mapping solutions, such as MoleMax? Some dermatologists can offer you this service which helps to keep track of your moles.

Contact me if you need for information.

Assaf

RE: Pre-Melanoma - and Phototherapy (psoriasis) Risks

by reggiesdaughter3 on Fri Feb 05, 2010 04:23 PM

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Hi,

Sorry to be so long in reply - i have not been on the site in months....anyhow - to be honest - i have found basically nothing - and haven't gotten much response.  I don't know what to think.  I have psoriasis - and therefore use the phototherapy to control it - unfortunately for me - none of the medications they have tried over the years - have worked, except for the phototherapy.  On the other hand - my father had a significant history of 5 malignant melanomas.  I have a cousin - who in high school had a malignant melanoma removed from the back of her neck.  My "pre-melanoma" was last year.  And - like your son - was in an area that was NEVER exposed to sun.  I noticed it in the mirror - after taking a shower one day.  I made an appt - and it was immediately removed.  When I went for the followup - my dr noticed another suspicious mole - on my calf - and it was removed - again "pre-melanoma".  I was a bit freaked out - as they were just weeks apart - the one on my leg was so tiny - my dr couldn't even believe it, when it came back.  so, with my family history - she suggested giving up the phototherapy - i was so reluctant - as my psoriasis is out of control without it.  so - we agreed to cut back to 1 time per week - (i used to go 3 x week) anyhow - my psoriasis is barely maintained - but no funky moles last check.....

i am sure - someone will come up with a study one of these days...i guess i basically know - the phototherapy isn't really good for my skin.....but i can't bear being covered with psoriasis - so its one of those lousy trade-offs......I think the key is to watch CAREFULLY.  I am afraid of missing something - but i guess with my hubby, myself and my doctor looking all the time....??????  I don't know why these things happen - i have 4 siblings - the other 4 - all clear - no psoriasis - and no melanomas....oh well....

i will be more diligent in checking this site - will let you know if i ever find any more sources of info - and trust things will go well with your son!  my best wishes to you both!! and i am satisfied there is nothing better than mothers intuition!!! i don't care what anybody says!!!

Take Care!!!   Sue

RE: Pre-Melanoma testing

by Rockus on Thu Sep 09, 2010 11:02 PM

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On Feb 05, 2010 4:23 PM reggiesdaughter3 wrote:

Hi,

Sorry to be so long in reply - i have not been on the site in months....anyhow - to be honest - i have found basically nothing - and haven't gotten much response.  I don't know what to think.  I have psoriasis - and therefore use the phototherapy to control it - unfortunately for me - none of the medications they have tried over the years - have worked, except for the phototherapy.  On the other hand - my father had a significant history of 5 malignant melanomas.  I have a cousin - who in high school had a malignant melanoma removed from the back of her neck.  My "pre-melanoma" was last year.  And - like your son - was in an area that was NEVER exposed to sun.  I noticed it in the mirror - after taking a shower one day.  I made an appt - and it was immediately removed.  When I went for the followup - my dr noticed another suspicious mole - on my calf - and it was removed - again "pre-melanoma".  I was a bit freaked out - as they were just weeks apart - the one on my leg was so tiny - my dr couldn't even believe it, when it came back.  so, with my family history - she suggested giving up the phototherapy - i was so reluctant - as my psoriasis is out of control without it.  so - we agreed to cut back to 1 time per week - (i used to go 3 x week) anyhow - my psoriasis is barely maintained - but no funky moles last check.....

i am sure - someone will come up with a study one of these days...i guess i basically know - the phototherapy isn't really good for my skin.....but i can't bear being covered with psoriasis - so its one of those lousy trade-offs......I think the key is to watch CAREFULLY.  I am afraid of missing something - but i guess with my hubby, myself and my doctor looking all the time....??????  I don't know why these things happen - i have 4 siblings - the other 4 - all clear - no psoriasis - and no melanomas....oh well....

i will be more diligent in checking this site - will let you know if i ever find any more sources of info - and trust things will go well with your son!  my best wishes to you both!! and i am satisfied there is nothing better than mothers intuition!!! i don't care what anybody says!!!

Take Care!!!   Sue

I just had a pre-melanoma mole removed from my foot. It was a tiny black mole, nothing unusual except that it was darker in color than my hundreds of other moles. I have since found a couple of other darker-than-usual moles I'd like to have removed. When it comes to cancer, I figure one can never be too careful. My doctor, however, says he is uncomfortble taking off tiny moles because they almost all come back with a suspicious, pre-malignant diagnosis. Reason is pathologiist can't always disginguish the ominous cellar changes that occur in cancer cells from normal changes that occur in small moles that are still growing. What he is saying, I think, is that, while the patient should be vigilant in looking for changes on their bodies, doctors should not be over-vigilant in ordering tests that are  emotionally and financially costly but aren't medically predictive.

RE: Pre-Melanoma - and Phototherapy (psoriasis) Risks

by faymeister on Sat Sep 18, 2010 01:08 AM

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I would request a Pet Scan specialy with your and your Fathers history. They told my husband his margin was met and they where wrong.I hope that this is just a few little step stones and it does not come back but you have to be very careful so please take this in consideration.  Fay

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