Second time around

4 Posts | Page(s): 1 

Second time around

by gbm4daughter on Tue Sep 29, 2009 12:00 AM

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I’m new to this posting thing but wanted to share my story. In October 2007 my dad was diagnosed with GBM Grade IV. He had surgery 10/31 and then the standard 30 radiation treatments. Two days after his last treatment he had a VERY severe seizure and never walked again. My mother was the primary caregiver, but I traveled every weekend to give her relief so that she could rest and hopefully continue to have the strength to take care of Dad. She would have had it no other way than to have him at home with her. We lost my Dad in May 2008, the day after my youngest son graduated from high school. He fought a long, hard, BRAVE fight against this vicious disease. My sister was staying with him for me to attend my son’s graduation. I traveled back to my parent’s home after graduation was over and my father passed away the next day with his wife and two daughters by his side. I know in my heart that he knew my son was graduating and was waiting until that was complete and all of his “girls” could be with him. God blessed my life so richly throughout this journey with my dad. I was always the daughter that was closest to my mom. My dad and I had the most awesome months together to build a relationship that we had never had before. I would not trade that for anything!!! I wish this was the end of my story but I am sad to say it is not. One year and 6 days after my dad’s passing, my mother was diagnosed with exactly the same thing…located in exactly the same place my dad’s was. Unfortunately, hers was much larger and involving two lobes of her brain. So, now I have become the primary caregiver for my mom. We had surgery on 6/11 and have just completed the 30 radiation treatments along with taking Temodar at night during that six weeks. We are 4 weeks post treatment and meet with the doctor next week to set up the monthly rounds of Temodar. My heart goes out to all of the caregivers I have read posts from. I know how hard this is on the patient as well as the caregiver. God has given me the strength to live through the past two years and I know His grace will be the one thing that helps me to continue to walk through the next unknown amount of time of this journey. I once read somewhere that “The will of God will not take you where the grace of God will not protect you.” How I have clung to this as I get weary some days. My prayers are with you as caretakers. God Bless!!

RE: Second time around

by madonnav on Tue Sep 29, 2009 12:00 AM

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On 9/29/2009 gbm4daughter wrote:

I’m new to this posting thing but wanted to share my story. In October 2007 my dad was diagnosed with GBM Grade IV. He had surgery 10/31 and then the standard 30 radiation treatments. Two days after his last treatment he had a VERY severe seizure and never walked again. My mother was the primary caregiver, but I traveled every weekend to give her relief so that she could rest and hopefully continue to have the strength to take care of Dad. She would have had it no other way than to have him at home with her. We lost my Dad in May 2008, the day after my youngest son graduated from high school. He fought a long, hard, BRAVE fight against this vicious disease. My sister was staying with him for me to attend my son’s graduation. I traveled back to my parent’s home after graduation was over and my father passed away the next day with his wife and two daughters by his side. I know in my heart that he knew my son was graduating and was waiting until that was complete and all of his “girls” could be with him. God blessed my life so richly throughout this journey with my dad. I was always the daughter that was closest to my mom. My dad and I had the most awesome months together to build a relationship that we had never had before. I would not trade that for anything!!! I wish this was the end of my story but I am sad to say it is not. One year and 6 days after my dad’s passing, my mother was diagnosed with exactly the same thing…located in exactly the same place my dad’s was. Unfortunately, hers was much larger and involving two lobes of her brain. So, now I have become the primary caregiver for my mom. We had surgery on 6/11 and have just completed the 30 radiation treatments along with taking Temodar at night during that six weeks. We are 4 weeks post treatment and meet with the doctor next week to set up the monthly rounds of Temodar. My heart goes out to all of the caregivers I have read posts from. I know how hard this is on the patient as well as the caregiver. God has given me the strength to live through the past two years and I know His grace will be the one thing that helps me to continue to walk through the next unknown amount of time of this journey. I once read somewhere that “The will of God will not take you where the grace of God will not protect you.” How I have clung to this as I get weary some days. My prayers are with you as caretakers. God Bless!!


 

So sorry.  How can this be it is just too weird.  I can't imagine what you are going through knowing what you already went through.  I hope your sister is available to help again in some way.  You are very strong indeed.  Please keep us informed.  This site is still here. Wish it didn't need to be.  God Bless,

Donna, Rob's wife, dx 12/08 multifocal GBM, 7/09 progression

RE: Second time around

by heart_and_soul on Tue Sep 29, 2009 12:00 AM

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Dear GBM Daughter,

I too am so sorry you're on the journey again. I know you already know about making the best of every day. But let us know if we can help.

Love, Sarah

mom of Andy 27 dx gbm/pnet 1/09

RE: Second time around

by MD_Mom on Fri Oct 02, 2009 12:00 AM

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I also am caring for my family member who was dx in4/09 and his ex-wife in 8/07.  Both are still living but plan to go through local and state health officials to have further testing done on the farm where they lived.

Keep in touch!

Roxanne

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