help

Im a 37 yr old female and ive been diagnosied with angiosarcoma. I was born with what was supposedly was a strawberry birthmark on my right buttocks. As I got older the "birthmark" was not strawberry in color but was the same color as my skin but looked like I had been severly burned.  Ive never had any problems with it up until this past Feb I noticed that it was raised and swollen but no pain. In the mean time I also hurt my back and was apply a heating pad to my lower back and this brought the "birthmark" to a head. I went the the emergency room because it busted open and was bleeding severly. I was then put into the hosptial for 8 days and was told that it was "AVM" but was told by Doctors that they did not know how to treat it. I was then sent to a major hospital and found a plastic surgeon to operate. When the doctor took the mass out it came back as an angiosarcoma. He also went back in and took some more tissue and buttocks muscle out and that came back negative.  Ive since then been to an oncologist and he has told me how rare the cancer is and he had to consult with other doctors in the area to decide what type of treatment to give me. The treatment that he as subscribe for me is chemo with radiation. The chemo treatment that I will be going through is for breast cancer patients. I guess im hoping that someone will read this posting and maybe know someone who has went through this type of cancer and maybe know a specialist that can treat me

You need to get to a hospital that SPECIALIZES in sarcomas...some will claim to be able to treat them, but there are only a few that truly specialize in it and do in depth research.  Here are 3 places that have some of the top docs in the world:

Memorial Sloan-Kettering Hospital (NYC)...

Dana Farber in Boston, Mass

MD Anderson in Houston, TX.

If you go to the websites (google them) of these cancer hospitals, you will find dr's names. I have had a lot of luck in getting dr's to respond to emails, and got right in for appts. 

Best of Luck to you..Stay strong and be proactive...don't delay.

:)