Hi again, just thought id update you with whats happening! Ive seen
onocologist who had decided to start chemo in a couple of weeks to give
me a little more time for my surgery recovery.. The drug is
fluorouracil 5fu with calcium folinate which apparently helps to have
with it. I will have treatment once per week for 7 months, he said
that due to the rarity and lack of studies of gbc he is treating it
like pancreatic cancer which they have had sucees with. He said my
cancer markers were not too bad so i could wait a couple of weeks to
start??? different to what the surgeon said as he wants me to start
asap, but anyway im just going with the flow..he said that basically
again with little to go on he just doesnt know outcomes et and didnt
really have any statisics to go on. The thing that hasme a bit worried
at the moment is I have continued to lose weight quite rapidly since
surgery, I try so hard to eat but the smell of anything cooking makes
me want to vomit, and the thoguht of a lot of foods give me nausea, I
have to stick to the blandest of foods and am tolerating a boiled egg
every now again and water crackers with avocado at the moment, it
remings me of morning sickness where you just dont know what you will
feel like and nausea just comes on for no reason, I'm finding it one of
the hardest things to do just to try and eat something every day.. the
surgeon told me that there wasnt really a medical reason i should be
feeling like this, but the onocologist didnt seem too surprised and has
prescribed a drink called ensure plus to try and give me what i
need. As you said the side effects for this treatment arnt too bad, he
doesnt think ill lose my hair which has really please me!! but with a
metallic taste being one of the more common side effects im a bit
worried about being more unable to eat than now! Does anyone else have
this problem with theeating for no apparent reason? I am a chef so dont
need ideas on what to eat or anything just how to make myself eat it...
Ok
Ill sign off now and look forward to your response, once again i really
appreciate having somewhere to talk to other people with gbc, am still
hoping someone from my side of the world will log in! thanks to
everyone for their replies as well as the private messages which i am
trying to endeavor to anser as well!
Carolyn