First I would like to send out my sympathies to loved ones that have lost there loved ones may they rest in peace.
My therapist told me I should try to not read to much on this site that it is adding to my depression, I feel alone how can I not be with others that understand what my son and I are going through.
Sarah... Andy is in my prayers!! I am so sorry to hear about Andy's set back (Stay Strong Andy) I go on your/Andy's Web page all the time to read about your Family adventures..my heart is with you all.
Chris is playing Football he ran 117 yards last week on 13 carries he is a running back.He feels great,he looks great!! (((read on)))
Chris had his usual 3 month MRI on Oct 1st..the Doctor came in the exam room and said the tumor looked stable but would wait for the final report..Chris and I said WHAT TUMOR???? In all the reports it said stabile disease and he had a Pet scan that read negitive on June 30th. He proceeded to say there is a 1.5cm growth in the cavity were his surgery was and that it didnt show up until radiation was done his last radiation was 12/24/08, I have all the MRI reports and the March report did question a growth,so they called it stable disease,, you think they could have told us?? instead were told everything looks GREAT!! So I guess they didnt know for sure what it was until he went off treatment which was in June but still it was never pointed out to us until Oct 1st..
(Its all about perfusion)
Now were told that PET scan of the Brain is not accurate sooo why did we even have one ??? I get an email on Oct 2nd from our Dr at Sloan,,we need to make an appointment the tumor has grown 2.5mm on each side I'm still trying to cope with the fact that there is a tumor there at all NOW the SOB has grown very little but still a difference from the last MRI in July.
Chris is off the study now which I was told was the most aggressive treament out there,ok so whats next?? I wont know until next week.. Chris asked me when we left the Doc's office on Thursday why cant they do another surgery?? He has no idea that I got news that its has grown..I want him to play his Football season out he has 5 more games he's 17,he has SAT"s on the 10th ,his 18th birthday on 10/17, Jet tickets for the 18th, Halloween and on 11/5 his 1 year anniversary from his surgery.. I am hoping that the doctor gives the ok I only want him to have 4 more weeks of peace before we have to start what ever there plan maybe.
I also had a giloma profile done at Duke in July his tumor is 40% resistant to Temodar..the Doctor there said there are other options for treatment so I may be heading South?? This week I will see what Sloan proposes.
Thanks for listening..Diana My son Chris dx GBM 11/5/08