Wanting Anything But a Hysterectomy

6 Posts | Page(s): 1 

Wanting Anything But a Hysterectomy

by Meme27 on Fri Jan 13, 2006 12:00 AM

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I am 27 years old with no children as of yet. Last year I had a cone biopsy. My pap results are still abnormal. Now my doctor is suggesting a hysterectomy.I've been online reasearching and I just can't find any answers?

do You Have Any More Details?

by Abstrtt on Fri Jan 27, 2006 12:00 AM

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Hi there, I have been in a similar situation. I had to ask my doctor to write down the proper terms for what was happening, what the growth was called, etc.. In my case I had adenocarcinoma in situ in the cervix, had the tumour removed surgically and will need a hysterectomy. (also 28 no kids.. but she has given me a few years before I have the hysterectomy) But what has helped a lot is knowing the proper terms for what was happening. The doctor did not volunteer this, I had to ask for it. Then you can do research on sites like this or on the web sites like cancer.org to understand it better, or of course talk to your doctor. good luck, Alli

do You Have Any More Details?

by Abstrtt on Fri Jan 27, 2006 12:00 AM

Quote | Reply
Hi there, I have been in a similar situation. I had to ask my doctor to write down the proper terms for what was happening, what the growth was called, etc.. In my case I had adenocarcinoma in situ in the cervix, had the tumour removed surgically and will need a hysterectomy. (also 28 no kids.. but she has given me a few years before I have the hysterectomy) But what has helped a lot is knowing the proper terms for what was happening. The doctor did not volunteer this, I had to ask for it. Then you can do research on sites like this or on the web sites like cancer.org to understand it better, or of course talk to your doctor. good luck, Alli

RE: Wanting Anything But a Hysterectomy

by Loriseattle on Sun May 27, 2007 12:00 AM

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I'm 34 with stage 1B1 cervical cancer (adenocarcinoma) and just had my second cone biospy this week, along with a pelvic lymph node dissection. Until last Monday, I was debating two options; 1) radical hysterectomy and 2) radical trachelectomy. In my case, they decided at the last minute to try a repeat conization...but if that doesn't show clear margins, I will still need the hys. (and in most cases, even if we can hold off on the hys.,. we will probably need it later in life). I bring up the issue of radical trachelectomy, as this is an option not mentioned by all onologists, as not many do the procedure. I had researched the team at USC in Los Angeles and Memorial Sloan-Kettering in NYC. The procedure removes the cervix, paritoneal tissue around the cervix, and a portion of the upper vagina and can leave the ovaries and uterus intact. While it DOES reduce fertility and increases the risk of pre-term labor, women have had successful pregnancies. As a young women, this option was worth researching. Do a quick google search and it brings up some info...you have to dig a bit, though. I have been going through so many emotions about this (as I'm sure we all are in this situation), and it took me a long time to get to the realization that as much as a hys. at this young age is a hard thing to accept, it's so important to save our lives FIRST. Good luck with your decision making...I know it's tough and I know it's surreal. You will make the right decision for you. Hang in there...and keep reaching out for help while demaning AS MUCH INFO as you can find. I would be happy to chat more, if that would help. I'm still healing at home, but ok to chat online! ;-) - Lori, Seattle WA

RE: Wanting Anything But a Hysterectomy

by Loriseattle on Sun May 27, 2007 12:00 AM

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OOPS!!! I just realized the mistaking in replying to a message posted back in 2006...hopefully someone can still benefit from reading my reply so I'm leaving it there. Best, Lori

RE: Wanting Anything But a Hysterectomy

by Seattlesister on Tue Sep 30, 2008 12:00 AM

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Loris,

  I did benefit from reading it. I have CIN III and looking at a hysterectomy. I have had three Leeps and none have worked. I know this serious. I lost my 28 year old sister to Small Cell Cervical Cancer last Nov. 

Were you able to have that done here? I to am in Seattle. (Well North Bend)

 

Kerri 

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